Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for December 2017

Wishing everyone a Happy HEALTHY New Year

Time to think about the last year and what we hope to achieve, change and improve on for next year. Let's hope for a good one! Big hug to all xxx

Time to think about the last year and what we hope to achieve, change and improv...

HollyHeski

Administrator•7 years ago

6 Replies

Thsnks for adding me to your group! Much aporeciated.

gmarcy. Thanks so much for adding me. In hospital right now as they try to sort things out for me. Love reading the posts!

gmarcy. Thanks so much for adding me. In hospital right now as they try to sor...

gmarcy

•7 years ago

4 Replies

Issues getting Zentiva made Hydroxychloroquine and alternative manufacturers

Hi all, this is a repeat of a reply I put to a recent post on availability of Zentiva locally to me in Sussex to see if its everywhere or just my local supply...

Hi all, this is a repeat of a reply I put to a recent post on availability of Ze...

CheddarAddict

•7 years ago

7 Replies

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Upper body pain

Hi guys , I told you of my aches and Pains a few days ago . I didn’t get any better so off I trotted to my lovely Gp today . B/p high , palpitations, pains In...

Hi guys , I told you of my aches and Pains a few days ago . I didn’t get any bet...

amy1808

•7 years ago

11 Replies

A great mention from Dr Scurr off the Daily Mail, of our condition and the charity launch

I was so very grateful that Dr Scurr came along and also has over the years continued to take an interest not only in the charity I support but also knows of...

I was so very grateful that Dr Scurr came along and also has over the years cont...

MaryF

Administrator•7 years ago

18 Replies

C-section or induction!?

Hello all Merry Christmas! I am nearing week 30 of my second pregnancy. Very briefly for those who don't know, my first pregnancy ended at 30 weeks due to...

Hello all Merry Christmas! I am nearing week 30 of my second pregnancy. Very ...

merrohawk83

•7 years ago

14 Replies

Lupus anticoagulant

Hi Im totally confused. I had a minor stroke that occured in my brain. After years of testing for neurological issues, memory loss, brain fog, cognitive...

Hi Im totally confused. I had a minor stroke that occured in my brain. After y...

Karenmaree144

•7 years ago

10 Replies

Seasons greetings

Wishing you all a very merry Christmas an a happy new year

dawnzy

•7 years ago

1 Reply

Have a wonderful day everybody!

https://www.youtube.com/watch?v=is4NQkUN3AI MaryF

MaryF

Administrator•7 years ago

1 Reply

Merry Christmas

Merry Christmas and a safe and Happy New Year to all our group where ever you are or say on this Joyous day around our world Bless YOU ALL....

Merry Christmas and a safe and Happy New Year to all our group where ever yo...

jetjetjet

•7 years ago

7 Replies

Merry Christmas and a Happy New Year From Texas!

Your support to me and my family is invaluable❤️

KellyInTexas

Administrator•7 years ago

5 Replies

Pain in upper arms

Does anyone suffer with upper arm pain, it’s like a dull ache , right or left arm comes and goes . Suffering this morning with weak arms too 😐in fact get...

Does anyone suffer with upper arm pain, it’s like a dull ache , right or left ar...

amy1808

•7 years ago

7 Replies

It's been a long road back, but I'm here now!

I'd like to wish all of you a Very Merry Christmas and Health, Peace, and Happiness in the New Year! I've been very busy taking care of my husband and...

I'd like to wish all of you a Very Merry Christmas and Health, Peace, and Happin...

Debbweb01

•7 years ago

15 Replies

Flare

First of all I want to wish my APS family a very merry Christmas. Had a really good run since starting Amitriptyline. Then Christmas kicked in at work !! I am...

First of all I want to wish my APS family a very merry Christmas. Had a really g...

amy1808

•7 years ago

7 Replies

Hydroxychloroquine

Good and evening and seasons greetings. I was wondering if anyone else in the UK has been told by their Pharmacist that there are supply issues with this...

Good and evening and seasons greetings. I was wondering if anyone else in the UK...

MLNC

•7 years ago

11 Replies

Wishing our Admins and Fellow Suffers a Merry Christmas and a Happy and Hopefully Healthier 2018

I would like to not only wish you all a wonderful Christmas and hopefully healthier 2018 but would also like to thank you for your support throughout the...

I would like to not only wish you all a wonderful Christmas and hopefully healt...

Jillymo

•7 years ago

5 Replies

false positive Lupus Anticoagulant blood test

I've read that if you are on Warfarin, then the lupus anticoagulant test can have a false positive result. Is that also true if you are on Pradaxa during the...

I've read that if you are on Warfarin, then the lupus anticoagulant test can hav...

dwheeler

•7 years ago

13 Replies

Hello

Hey everyone

HiraK

•7 years ago

26 Replies

How long did you wait for results?

Hi all, Just a question wondering how long you had to wait for results once you had seen a rheumatologist? I was referred to one as it was suspected that I...

Hi all, Just a question wondering how long you had to wait for results once you ...

Shaddix29

•7 years ago

10 Replies

Gluten free

I have just posted about autonomic dysfunction , but also want to know if many of you follow a guten-free diet, and does it really help?

I have just posted about autonomic dysfunction , but also want to know if many o...

Zamalek

•7 years ago

6 Replies

Autonomic Dysfunction?

Is there anyone coping with this ghastly condition. Could you tell me what medication you are on, and if there has been any improvement. Thank you

Is there anyone coping with this ghastly condition. Could you tell me what medic...

Zamalek

•7 years ago

38 Replies

Looking for answers.

Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do...

Hi, I live in the UK and last week had a routine blood test which showed my Crea...

Hidden

•7 years ago

7 Replies

I’m seeing posts on here that people are stating they have had lesions/clots found in body’s organ and are put on warf then disappear? You?

Then when rechecked 6-12 months later, clot is gone... am I understanding this correctly? Thanks, Cindy

Then when rechecked 6-12 months later, clot is gone... am I understanding this c...

Wittycjt

•7 years ago

24 Replies

Silent stroke?

Had MRI of brain and found I had a silent stroke. No symptoms what so ever. Right cerebellum showed chronic small infarct was being tested for hearing loss due...

Had MRI of brain and found I had a silent stroke. No symptoms what so ever. Righ...

Nanny23

•7 years ago

12 Replies

Coagucheck test strips in USA??

I just wondered if anyone has a reasonably priced supplier in the US for the Coaguchek XS test strips? It seems like every time I buy them the price...

I just wondered if anyone has a reasonably priced supplier in the US for the Coa...

prj789

•7 years ago

7 Replies

DVT"S AGAIN

DVT"S Again - Friday 12-15-17 in ER 6 PM to 2 Am- results DVT clot in back left thigh - broke and traveled to behind left knee - broke again and lodged...

DVT"S Again - Friday 12-15-17 in ER 6 PM to 2 Am- results DVT clot in back...

jetjetjet

•7 years ago

29 Replies

High diastolic pressure?

Has anyone dealt with high diastolic blood pressure? I'm really battling with keeping mine under 100. Just had bloodwork and ecg, blood all normal except low...

Has anyone dealt with high diastolic blood pressure? I'm really battling with ke...

Saralmac

•7 years ago

13 Replies

high triglycerides?

just tested slightly high on triglycerides and thought someone else on here mentioned this might be usual for us? just checking, thanks!

just tested slightly high on triglycerides and thought someone else on here ment...

Esolt

•7 years ago

9 Replies

I'm new here - and glad I'm probably not crazy afterall

Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and...

Hi, I've been following this support group for a few months now and have learne...

Tyler3

•7 years ago

33 Replies

Feeling cross!!!!

Hello all, I have just spoken to my consultant via telephone appointment and feel incredibly frustrated and p*ssed off. Just a quick recap on my history - I...

Hello all, I have just spoken to my consultant via telephone appointment and fe...

Oliversmum

•7 years ago

68 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2017

Wishing everyone a Happy HEALTHY New Year

Thsnks for adding me to your group! Much aporeciated.

Issues getting Zentiva made Hydroxychloroquine and alternative manufacturers

Upper body pain

A great mention from Dr Scurr off the Daily Mail, of our condition and the charity launch

C-section or induction!?

Lupus anticoagulant

Seasons greetings

Have a wonderful day everybody!

Merry Christmas

Merry Christmas and a Happy New Year From Texas!

Pain in upper arms

It's been a long road back, but I'm here now!

Flare

Hydroxychloroquine

Wishing our Admins and Fellow Suffers a Merry Christmas and a Happy and Hopefully Healthier 2018

false positive Lupus Anticoagulant blood test

Hello

How long did you wait for results?

Gluten free

Autonomic Dysfunction?

Looking for answers.

I’m seeing posts on here that people are stating they have had lesions/clots found in body’s organ and are put on warf then disappear? You?

Silent stroke?

Coagucheck test strips in USA??

DVT"S AGAIN

High diastolic pressure?

high triglycerides?

I'm new here - and glad I'm probably not crazy afterall

Feeling cross!!!!

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