Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,350 members • 10,538 posts

All posts for April 2013

Oh what a kettle of worms i have opened from the response.

it just goes to show how many have gone down that same awful path as I ! Thank you all for shareing your stories but most of all for sharing your warmth....as...

it just goes to show how many have gone down that same awful path as I ! Thank ...

Jillymo

•11 years ago

10 Replies

Fundraising

Hi I am raising money for a neuro unit in Sussex where I have received treatment for clots on my brain caused by APS Have managed to get local press to do a...

Hi I am raising money for a neuro unit in Sussex where I have received treatment...

Womble88

•11 years ago

2 Replies

Low INR but still bruising

Hello, I am on Warfarin with target 3-4.5 and Heparin if it falls below 3. Well the last couple of weeks the INR again been up and down and then the last few...

Hello, I am on Warfarin with target 3-4.5 and Heparin if it falls below 3. Well...

daisy11

•11 years ago

22 Replies

Want to take advantage of all our features? Just log in!

Varoccus veins

Is there any way to make varoccus veins smaller ? Or stop them hurting?

Charli84

•11 years ago

7 Replies

School Room Local Hospital - can you help?

Hi guys For those in the UK... if you are offered, or ask for the school vouchers at Sainsbury/Tesco and have no need for them.. I am collecting in bulk...

Hi guys For those in the UK... if you are offered, or ask for the school ...

MaryF

Administrator•11 years ago

2 Replies

Am I supposed to have other conditions too?

Hi again, reading the poll it would imply that Hughes doesn't occur on its own very often. I've just been diagnosed and on the whole I feel ok. I work full...

Hi again, reading the poll it would imply that Hughes doesn't occur on its own v...

Hidden

•11 years ago

6 Replies

Warfarin- INR - DVT

Hi, My warfarin levels are between 3-4 and is currently at 4.2. What are the chances of contracting another DVT? My Thigh/Groin is painful and my leg feels...

Hi, My warfarin levels are between 3-4 and is currently at 4.2. What are the cha...

LesJames

•11 years ago

4 Replies

Mrs Slocum and Patsy (silly question)

I know this is a right silly post but every time I see the avatars for APSnotFab (Patsy) and MaryF (Mrs Slocum) I can't help wondering how they would have got...

I know this is a right silly post but every time I see the avatars for APSnotFab...

Coppernob

•11 years ago

10 Replies

Eyes - flashers and floaters

Hi, I know APS is more about the loss of vision due to migraines and blood clots etc but just wondered how many people have floaters and or flashing lights....

Hi, I know APS is more about the loss of vision due to migraines and blood clot...

rosiemay

•11 years ago

10 Replies

Thank God for this website!

I want to thank everyone who helped me. I am in the California, USA. I was not to find a dr. because after testing.positive for APS, I started testing...

I want to thank everyone who helped me. I am in the California, USA. I was not t...

designer16

•11 years ago

15 Replies

APS

just had a blood clotting test and it came back as over 70, can depression make your blood clotting worse, i have got to go back next week and have another one...

just had a blood clotting test and it came back as over 70, can depression make ...

christinebonner

•11 years ago

10 Replies

New here, anyone in the states? In or around Georgia?

I'm new here and looking for anyone near or around georgia. Looking for an experienced doctor around me. Blessings!!

I'm new here and looking for anyone near or around georgia. Looking for an expe...

Ilovemyfamily

•11 years ago

7 Replies

differant brands of hydroxychloroquine

I have been on Hydroxychloroquine for 6 years i have lupus sjrogens hughes syndrome and raynauds,Last year i was switched to quinoric but when I spoke to Prof...

I have been on Hydroxychloroquine for 6 years i have lupus sjrogens hughes syndr...

wales

•11 years ago

9 Replies

How many of you have the livedo or corned beef skin and are your overall symptoms related to where it is or how much you have?

tchance11

•11 years ago

18 Replies

Lupus Anticoagulant

Hi again everyone, I just wanted to thank people for their lovely responses to my last two questions. I have another! (And many more) I'm still waiting for...

Hi again everyone, I just wanted to thank people for their lovely responses to m...

Hidden

•11 years ago

2 Replies

achy leggy's, my legs begin to shake now too

Hi have been sent for ultra sound scan on my leg as they think my blood flow is not fast enough, blood sample taken showed blood was a little to sticky evrn...

Hi have been sent for ultra sound scan on my leg as they think my blood flow is ...

KarenOR

•11 years ago

5 Replies

Feelgood factor for our community

Hi All Just read this interesting article by Dr Briffa and thought it applied very well to this community - patient powered health. BTW - this year, we...

Hi All Just read this interesting article by Dr Briffa and thought it applied...

Hidden

•11 years ago

6 Replies

result??

hi on my question blog i wrote about pulpertions and i get them all the time and in my sleep.anywhay went to docters and to my suprise he had heard of aps.he...

hi on my question blog i wrote about pulpertions and i get them all the time an...

chapman

•11 years ago

9 Replies

Why would something like lyrica be prescribed rather than plaquenil?

What's the difference in what they do? I've seen lots of talk on here about plaquenil, not so much about gabapentin or lyrica. My GP prescribed me gabapentin,...

What's the difference in what they do? I've seen lots of talk on here about plaq...

Paleosooze

•11 years ago

7 Replies

Waiting for Rheumy appointment.

I haven't been diagnosed with APS, but I have some symptoms . (I take 75 mg of Aspirin a day). Blood tests for APS came back normal. Also 15 other tests came...

I haven't been diagnosed with APS, but I have some symptoms . (I take 75 mg of A...

Everdean

•11 years ago

8 Replies

anti malarials

I have been told that being treated with anti malarials helps with the extreme fatigue. I wondered if anyone else had heard this or tried it. Thanks

I have been told that being treated with anti malarials helps with the extreme f...

margaretjo

•11 years ago

5 Replies

Thanks for good wishes for London.

I had a really good visit yesterday oh and the sun shone, glorious unlike our Yorkshire weather. I am no longer trying plaquenil as the prof knew it can...

I had a really good visit yesterday oh and the sun shone, glorious unlike our Yo...

Jade

•11 years ago

7 Replies

its not new.

hi all. last yr before i found out about my p.e then i couldnt sleep on my left side, all the spmptoms start such as racing heart, pins and needles in...

hi all. last yr before i found out about my p.e then i couldnt sleep on my left ...

chapman

•11 years ago

12 Replies

Edema of the Legs

I'm curious if anyone can give me any information about edema of the legs? For the last several weeks my legs have be swollen and heavy feeling (similar to...

I'm curious if anyone can give me any information about edema of the legs? For t...

fitsofhappyness

•11 years ago

7 Replies

Cash point fright

Than goodness I wasn't having one of my dippy days today. Went to get cash from ATM outside a well known supermarket 'local' and while I was doing the...

Than goodness I wasn't having one of my dippy days today. Went to get cash from...

panda60

•11 years ago

6 Replies

Vacation

Please pray for me that I am able to get through a 2 week cruise wih my family. I am having a lot of severe arthritis pain and intesinal problems and now they...

Please pray for me that I am able to get through a 2 week cruise wih my family. ...

NanaPam

•11 years ago

6 Replies

Does black licorice increase or decrease INR?

I have searched all over the web, and very reputable sites contradict each other. Some say it raises INR, while others say it lowers INR.

I have searched all over the web, and very reputable sites contradict each other...

iwantsimple

•11 years ago

7 Replies

Circulation problems?

I just wondered whether circulation problems are part of Hughes? Also I've been getting Raynaud's in my fingers, toes and lips. I know this can occur with...

I just wondered whether circulation problems are part of Hughes? Also I've been ...

Hidden

•11 years ago

4 Replies

INR shoot up

Looking for advice. My INR range is 2-3. I was due to have a tooth out last week but they wouldn't do it as my INR was 3.4. Had a blood test yesterday and...

Looking for advice. My INR range is 2-3. I was due to have a tooth out last w...

Zezes-nan

•11 years ago

12 Replies

Must read book

" In the Kingdom of the Sick" by Laurie Edwards is a thoughtful appraisal of how patients, and Western society is, and is not, coping with chronic illness....

" In the Kingdom of the Sick" by Laurie Edwards is a thoughtful appraisal of how...

GinaD

•11 years ago

1 Reply

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2013

Oh what a kettle of worms i have opened from the response.

Fundraising

Low INR but still bruising

Varoccus veins

School Room Local Hospital - can you help?

Am I supposed to have other conditions too?

Warfarin- INR - DVT

Mrs Slocum and Patsy (silly question)

Eyes - flashers and floaters

Thank God for this website!

APS

New here, anyone in the states? In or around Georgia?

differant brands of hydroxychloroquine

How many of you have the livedo or corned beef skin and are your overall symptoms related to where it is or how much you have?

Lupus Anticoagulant

achy leggy's, my legs begin to shake now too

Feelgood factor for our community

result??

Why would something like lyrica be prescribed rather than plaquenil?

Waiting for Rheumy appointment.

anti malarials

Thanks for good wishes for London.

its not new.

Edema of the Legs

Cash point fright

Vacation

Does black licorice increase or decrease INR?

Circulation problems?

INR shoot up

Must read book

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive