Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,349 members • 10,537 posts

All posts for September 2016

Any updates on int'l convention in Istanbul, ended Sept 24?

Any thing new regarding APS at this convention?

Wittycjt

•8 years ago

8 Replies

Update, sadly not what I'd hoped.

Hi again, I posted a few weeks back to say I was expecting again but sadly I had a scan at 9 weeks and the pregnancy had not developed beyond 6.5 weeks. This...

Hi again, I posted a few weeks back to say I was expecting again but sadly I had...

Hopingforababy

•8 years ago

13 Replies

Life

Hi guys, It's been a while since I was on here. The doctors eventually put me back on warfarin after 2 years of me saying clopidogrel wasn't working, but only...

Hi guys, It's been a while since I was on here. The doctors eventually put me ba...

Lmb28

•8 years ago

8 Replies

Want to take advantage of all our features? Just log in!

New TV programme

Good morning all I am currently in St Mary's hospital in Paddington London. and yesterday I was picked by the hospital to have a chat with some people from BBC...

Good morning all I am currently in St Mary's hospital in Paddington London. and ...

Budleigh

•8 years ago

9 Replies

APS Specialist in Neptune, Nj USA 07753

Dr Deborah Alpert 2240 State Route 33, Neptune, NJ Ph: 732 897-3985, fax; 732 897-3982. Look her upon Google has many APS publications, and is a fellow at...

Dr Deborah Alpert 2240 State Route 33, Neptune, NJ Ph: 732 897-3985, fax; 732 89...

Wittycjt

•8 years ago

3 Replies

Bundle branch block

Hi everyone, I've had the results from a 7 day heart monitor. Upshot is being referred to cardiology. GP has said he sees lots of ectopic beats but also signs...

Hi everyone, I've had the results from a 7 day heart monitor. Upshot is being re...

OB1k

•8 years ago

5 Replies

Stroke

I have been reading all the interesting posts and want to add my experience. 26th July I had a mitral valve repair and Atrial valve appendage. On 1st August...

I have been reading all the interesting posts and want to add my experience. 26t...

pug002

•8 years ago

5 Replies

Ms or AS or what

Hello, guys! I m 29 yrs old.In 2010 doctors sent me to MRI because my period lates for a 2 years.Diagnosed with hyperprolactinemia. Accidentally,they took MRI...

Hello, guys! I m 29 yrs old.In 2010 doctors sent me to MRI because my period lat...

OMgirl

•8 years ago

3 Replies

Hemoglobin

I am so gutted, I am waiting to have a total knee replacement and went to my Pre-Operative assessment on Thursday. Heart fine, blood pressure etc, all info for...

I am so gutted, I am waiting to have a total knee replacement and went to my Pre...

teadonna

•8 years ago

2 Replies

Newbie

Hi I'm a newbie here. At the moment the doctors are struggling to get my Warfarin dosage correct. I have been on Warfarin since December 2015. Has anyone...

Hi I'm a newbie here. At the moment the doctors are struggling to get my Warfar...

Ditsy-Kirsty

•8 years ago

18 Replies

APS or Not

I was diagnosed with APS by my neurologist.. my anticardiolipin was 22 and then 20. I saw a Rheumatologist who repeated the test and it was 18... he told me...

I was diagnosed with APS by my neurologist.. my anticardiolipin was 22 and then ...

dannigirl39

•8 years ago

37 Replies

As I've no APS specialist ..

Can anyone tell me why at Xmas my APL levels were 68 now 108 . ? At Xmas time I was passing large fist size clot's ..going to APS specialist next week getting...

Can anyone tell me why at Xmas my APL levels were 68 now 108 . ? At Xmas time I ...

fitzyc

•8 years ago

5 Replies

Newbie Introduction: Sticky blood

Hello, Due to a myriad of debilitating symptoms, I was originally diagnosed with Chronic Fatigue Syndrome, although subsequent blood tests - taken 3 years...

Hello, Due to a myriad of debilitating symptoms, I was originally diagnosed wit...

DilysStrides

•8 years ago

31 Replies

APS with a PFO &/or ADS of the heart.

I have been diagnosed with APS, I have the lupus anticoagulant, antiphospholipid antibody, the byta G thing(lol), high protien S & C, as well ashomosiesten...

I have been diagnosed with APS, I have the lupus anticoagulant, antiphospholipid...

SoulRebel-APS

•8 years ago

7 Replies

Possible starting point for APS >Physician referral in US...877 606-1555,read:

This is theHSS ( Hospital for Special Surgery) # based in NY, maybe they can refer you to someone in your area. This is how I found an APS specialist in NJ....

This is theHSS ( Hospital for Special Surgery) # based in NY, maybe they can ref...

Wittycjt

•8 years ago

11 Replies

Possible TIA

I was diagnosed with a transient case of APS following multiple miscarriages and prem birth. Inbetween miscarriages, I often had sensations of numbness and...

I was diagnosed with a transient case of APS following multiple miscarriages and...

Maybells

•8 years ago

17 Replies

Re my bladder again

Hi all again ..i am still in hospital and my inr is 5.5 today which is well over my target of 3.to 4. I was alittle bit puzzled ..why the doctors have not...

Hi all again ..i am still in hospital and my inr is 5.5 today which is well over...

Budleighgeorge

•8 years ago

5 Replies

Colorado Utah APS specialist?

We live in Western Colorado and are in desperate need of an APS specialist in Colorado or Utah. My husband was diagnosed a year ago and between the...

We live in Western Colorado and are in desperate need of an APS specialist in Co...

Apswife

•8 years ago

8 Replies

A round up of the newspapers

These are put on just for general news and interest, 1....

MaryF

Administrator•8 years ago

4 Replies

Disgusted

I had been in hospital a month after bad episode and my body reverted back to jerky walking etc like last year when diagnosed with Antiphosphilipid syndrome in...

I had been in hospital a month after bad episode and my body reverted back to je...

Fra22-57

•8 years ago

21 Replies

Past Post about HSS NY CRITERIA FR APS

Hi about 3 weeks ago I think AnnNY Wrote a post about Criteria for APS in HSS IN NEW YORK USA! I was curious to c that again because someone on here is going...

Hi about 3 weeks ago I think AnnNY Wrote a post about Criteria for APS in HSS IN...

Debbweb01

•8 years ago

9 Replies

Lovenox is a friend of mine

GM , First time, still in the learning stage. I have been off warfin for 2days & supposed to take 50mg of my friend, having surgery tomorrow afternoon....

GM , First time, still in the learning stage. I have been off warfin for 2days &...

Coagu-chick

•8 years ago

1 Reply

New tool for helping to predict DVT risk

via ITV/NHS choices! http://www.itv.com/news/2016-04-28/the-combined-pill-and-dvt-what-are-the-risks-and-how-can-they-be-reduced/ MaryF

via ITV/NHS choices! http://www.itv.com/news/2016-04-28/the-combined-pill-and-d...

MaryF

Administrator•8 years ago

5 Replies

Double dosed for my fragmin

I am a bit uncertain whether I have had 2 fragmin injections instead of my normal one I normally have one per day between 5_7 o clock... But for the life of me...

I am a bit uncertain whether I have had 2 fragmin injections instead of my norma...

Shazzh

•8 years ago

5 Replies

FYI: Revlon" nat'l blood clot alliance" is going to award $$ for blood clot research to most donated charity between now and middle of Oct.

Found this by accident on tweeter. If anyone can direct us how to do this we maybe able to get add'l funding. I don't know how I got it...

Found this by accident on tweeter. If anyone can direct us how to do this we may...

Wittycjt

•8 years ago

1 Reply

Bladder problem

Good morning all. I have been in hospital now for 17 days and I have not been able to pass ureine by myself.they are going to remove the catheter on Monday...

Good morning all. I have been in hospital now for 17 days and I have not been ab...

Budleigh

•8 years ago

5 Replies

Here we go again

Here we go again Blood takes another dive even thought warfarin dose has almost doubled PCP office , my dear Shannon -- called up to Dartmouth in...

Here we go again Blood takes another dive even thought warfarin dose has al...

jetjetjet

•8 years ago

4 Replies

Fondaparinux injections

Hi I was just wondering if anyone else was using fondaparinux injections ...as I am injecting myself twice a day with 7.5mg is there any time limit on how long...

Hi I was just wondering if anyone else was using fondaparinux injections ...as I...

Budleigh

•8 years ago

4 Replies

Got appt w/APS specialist in USA finally👍🏻

first I called Dr Gaito's office who were very pleasant but when I asked if she were an APS specialist they told me she was not but she sees APS patients. I...

first I called Dr Gaito's office who were very pleasant but when I asked if she ...

Wittycjt

•8 years ago

14 Replies

Eye issues

I have APS. Diagnosed 11 years ago. Has it many years before. 2 strokes. Heart surgery. Inr issues like many. On Coumadin and target inr of 4.1 and in anti...

I have APS. Diagnosed 11 years ago. Has it many years before. 2 strokes. Heart s...

Juejue11

•8 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2016

Any updates on int'l convention in Istanbul, ended Sept 24?

Update, sadly not what I'd hoped.

Life

New TV programme

APS Specialist in Neptune, Nj USA 07753

Bundle branch block

Stroke

Ms or AS or what

Hemoglobin

Newbie

APS or Not

As I've no APS specialist ..

Newbie Introduction: Sticky blood

APS with a PFO &/or ADS of the heart.

Possible starting point for APS >Physician referral in US...877 606-1555,read:

Possible TIA

Re my bladder again

Colorado Utah APS specialist?

A round up of the newspapers

Disgusted

Past Post about HSS NY CRITERIA FR APS

Lovenox is a friend of mine

New tool for helping to predict DVT risk

Double dosed for my fragmin

FYI: Revlon" nat'l blood clot alliance" is going to award $$ for blood clot research to most donated charity between now and middle of Oct.

Bladder problem

Here we go again

Fondaparinux injections

Got appt w/APS specialist in USA finally👍🏻

Eye issues

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2016

Any updates on int'l convention in Istanbul, ended Sept 24?

Update, sadly not what I'd hoped.

Life

New TV programme

APS Specialist in Neptune, Nj USA 07753

Bundle branch block

Stroke

Ms or AS or what

Hemoglobin

Newbie

APS or Not

As I've no APS specialist ..

Newbie Introduction: Sticky blood​

APS with a PFO &/or ADS of the heart.

Possible starting point for APS >Physician referral in US...877 606-1555,read:

Possible TIA

Re my bladder again

Colorado Utah APS specialist?

A round up of the newspapers

Disgusted

Past Post about HSS NY CRITERIA FR APS

Lovenox is a friend of mine

New tool for helping to predict DVT risk

Double dosed for my fragmin

FYI: Revlon" nat'l blood clot alliance" is going to award $$ for blood clot research to most donated charity between now and middle of Oct.

Bladder problem

Here we go again

Fondaparinux injections

Got appt w/APS specialist in USA finally👍🏻

Eye issues

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive

Newbie Introduction: Sticky blood