Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for November 2021

3rd primary Covid vaccination

My first two vaccines were AZ I was expecting a reaction as I react to most things but had very little only tiredness. So had my 3rd vaccine was Pfizer today...

My first two vaccines were AZ I was expecting a reaction as I react to most thin...

•3 years ago

understanding blood results

Hello all Does anyone understand blood resultls? My printout says that my anti b2 glyco IgG is *HIGH* at 6.3U/ml and that the normal range is 0.0-5.0. when I...

Hello all Does anyone understand blood resultls? My printout says that my anti b...

•3 years ago

Black Eye while on Coumadin?

I am wondering if anyone has ever had a black eye on coumadin. I have one right now and have been told that the blood thinner will make full healing fairly...

I am wondering if anyone has ever had a black eye on coumadin. I have one righ...

•3 years ago

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Right Heart Catherization

Has anyone had a Right Heart Catherization done? If so, how did it go, did it help? My wife is getting one done, she has (C)APS....

Has anyone had a Right Heart Catherization done? If so, how did it go, did it he...

•3 years ago

Mechanical valve

Has anyone had the vaccines that has APS, Lupus, and a mechanical heart valve and on blood thinners and prednisone? If so, did you have complications?...

Has anyone had the vaccines that has APS, Lupus, and a mechanical heart valve an...

•3 years ago

APS Specialist

I am looking for APS specialist in Houston. I am currently seeing Cardiologist. And sister is seeing Hematologist. Both have just general knowledge.

I am looking for APS specialist in Houston. I am currently seeing Cardiologist....

•3 years ago

Pregnancy and delivery with APS

Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FVL so I'm on 2 dalteparin 5000 injections and a mini aspirin a day. I am...

Hi ladies, I'm currently 23 weeks pregnant and so far so good. I have APS and FV...

•3 years ago

GHIC Patient's Day - 9th December - online

We are delighted to announce that on Thursday 9th December from 10.15 a.m. – 16.00 p.m, the Graham Hughes International Charity will be hosting an...

We are delighted to announce that on Thursday 9th December from 10.15 a.m. – 16....

Administrator•3 years ago

What medications are safe to take if I test positive for COVID?

So far I have been lucky not to get COVID. I am double vaccinated and have recently had my booster. I know that eventually it is inevitable and we are all...

So far I have been lucky not to get COVID. I am double vaccinated and have recen...

•3 years ago

INR Self testing for triple + patients

Hi All, I am triple + aps, well controlled on warfarin and HCQ. INR pretty stable between 2-3. My only past symptom was a sizeable dvt two years ago which...

Hi All, I am triple + aps, well controlled on warfarin and HCQ. INR pretty stab...

•3 years ago

end of my tether

Hi all So once again I am contemplating going private just to get some sensible answers and get on the right treatment plan but with latest developments I am...

Hi all So once again I am contemplating going private just to get some sensible ...

•3 years ago

Apixaban compared to Warfarin in APS

https://ashpublications.org/bloodadvances/article/doi/10.1182/bloodadvances.2021005808/477384/Apixaban-compared-with-warfarin-to-prevent

https://ashpublications.org/bloodadvances/article/doi/10.1182/bloodadvances.2021...

•3 years ago

APS/Lungs

Was diagnosed in ICU in August 8, 2017 and for the next almost three years I threw clots like popping popcorn. Trying every medicine including warfarin and was...

Was diagnosed in ICU in August 8, 2017 and for the next almost three years I thr...

•3 years ago