Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,349 members • 10,537 posts

All posts for April 2015

Deep tissue massage

Hi, Does anyone know if deep tissue massaging is recommended for someone with APS?

Hi, Does anyone know if deep tissue massaging is recommended for someone with A...

ShannonKennedy

•9 years ago

14 Replies

Confused Newbie

Hello All - I am from the USA and just came upon this forum and am looking for some answers/information. I am 38 yrs old and had a blood clot in my abdomen...

Hello All - I am from the USA and just came upon this forum and am looking for s...

3Snyders

•9 years ago

13 Replies

Fatigue is kicking my ass!

Hi there. Does anyone have any tips or solutions dealing with the wave of fatigue that hits. It seems to be almost constant at the moment so just rest isnt an...

Hi there. Does anyone have any tips or solutions dealing with the wave of fatigu...

CharH

•9 years ago

7 Replies

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Sun exposure

I hope you don't mind but I have a question, any help appreciated. I have APS but tests for Lupus such as ANA always come back negative. But every time I am in...

I hope you don't mind but I have a question, any help appreciated. I have APS bu...

lornaeloise

•9 years ago

8 Replies

Turned down for Life Insurance

Been to sort out my new mortgage which is in joint name with my hubby, got to the Life Insurance Application and Hubby sailed through, I on the other hand...

Been to sort out my new mortgage which is in joint name with my hubby, got to th...

JoJo0405

•9 years ago

6 Replies

Gastroparesis (slow stomach emptying with pain)

Does anyone have any knowledge of gastroparesis? I was back in the hospital on Friday with terrible stomach pain. For the last two weeks, every time I have...

Does anyone have any knowledge of gastroparesis? I was back in the hospital on ...

Tranquility1

•9 years ago

14 Replies

Platelets clumping on blood test

Hello everyone, My daughter is nearly 16 and I watch her like a hawk, scared she will get APS or some other autoimmune disease. So far she is quite healthy....

Hello everyone, My daughter is nearly 16 and I watch her like a hawk, scared sh...

Good4u

•9 years ago

6 Replies

Sports / Activities

I can see from reading various posts on here there's a number of people on here who continue to enjoy relatively active lifestyles - something I want to...

I can see from reading various posts on here there's a number of people on here ...

SheRidesAUnicorn

•9 years ago

8 Replies

Daily Mail article

Hi there Just a heads up to our article appearing in the Mail today - online and in the newspaper. Thanks to all involved....

Hi there Just a heads up to our article appearing in the Mail today - online an...

Hidden

•9 years ago

18 Replies

Glycogen Storage Disease

I have Antiphospholipids, Sjogrens and Glycogen Storage disease type 4 I would like to know if any have Glycogen Storage Disease

I have Antiphospholipids, Sjogrens and Glycogen Storage disease type 4 I would l...

dalalf

•9 years ago

1 Reply

Professor Graham Hughes April 2015 Blog

April 2015 March saw a marvellous new initiative here in London. Baroness Estelle Morris, the Chair of our charity, and Baroness Drake succeeded in raising...

April 2015 March saw a marvellous new initiative here in London. Baroness Estel...

MaryF

Administrator•9 years ago

5 Replies

Help Cant get rid of bruising

Can other help me. Way back last April i was on Heparin injections for APS - i also have SLEthis caused brusing that sI still have. However, what is...

Can other help me. Way back last April i was on Heparin injections for APS - i ...

diane1428

•9 years ago

6 Replies

Recently diagnosed

In February I experienced some numbness in my right arm and leg - I wasn't overly concerned so made an appointment to see my GP, but they sent me immediately...

In February I experienced some numbness in my right arm and leg - I wasn't overl...

SheRidesAUnicorn

•9 years ago

11 Replies

Psoriasis and APS?

Hi everyone, I haven't posted in a while. I just wondered whether anyone with APS also has psoriasis? I have just been diagnosed with it. I believe it is auto...

Hi everyone, I haven't posted in a while. I just wondered whether anyone with AP...

Hopingforababy

•9 years ago

4 Replies

INR...Can you counter something you eat or drink on the same day?

If you eat or drink something you know will raise your INR, can you eat something on the same day that would lower it to cancel out the affects? and can you...

If you eat or drink something you know will raise your INR, can you eat somethin...

mylafont

•9 years ago

24 Replies

APS small fetus with treatment

For those who has been pregnant with treatment, did any of you have a early scan made in 6-7 weeks? I had one a couple of days ago and we saw a heartbeat but...

For those who has been pregnant with treatment, did any of you have a early scan...

Pektosa

•9 years ago

16 Replies

Long haul flights with APS

would like to travel to USA, Have not flown long haul flights for many years Have SLE, APS, Sjogrens, Angina. am very concerned re risks of DVT, Should I take...

would like to travel to USA, Have not flown long haul flights for many years Hav...

Kimu

•9 years ago

28 Replies

Help...what anti coag meds now

Please can somebody advise ref my anti coag meds.... started on warfarin in Nov 14 but re clotted (DVT) In Jan 15 Put on Fragmin 17,500 dose split twice daily...

Please can somebody advise ref my anti coag meds.... started on warfarin in Nov ...

AngelinaN

•9 years ago

17 Replies

Ferritin levels

I have had a ferritin result and it showed my levels to be 40.3. I have been suffering with a thinning hair line and the Dr's believe I have discoid lupus or...

I have had a ferritin result and it showed my levels to be 40.3. I have been suf...

sarahlou1801

•9 years ago

8 Replies

APS

Hi just like to know if any one else has this problem I feel like my ears need to pop I can not hear right feel like I am deff most of the Tim I do get the...

Hi just like to know if any one else has this problem I feel like my ears need t...

Lesley61

•9 years ago

4 Replies

Tias mini strokes?

Hi folks just reading through all the posts not been on for a while. Can anyone clarify a tia for me please? I was told by a consultant that there was no such...

Hi folks just reading through all the posts not been on for a while. Can anyone ...

molly1969

•9 years ago

17 Replies

How do you know when your INR is not within range?

How do you feel when it's too high? How do you feel when it's too low? My INR is by no means regulated yet. I get episodes of double vision, confusion and...

How do you feel when it's too high? How do you feel when it's too low? My INR is...

mylafont

•9 years ago

11 Replies

Hi I've now been told I've got rosacea.

Does anyone else have this and is it associated with ApS?

Hidden

•9 years ago

10 Replies

Feeling let down

Hi everyone, After not being seen by a specialist in 13 years from being diagnosed with APS i asked my GP if she would refer me to see one of the...

Hi everyone, After not being seen by a specialist in 13 years from be...

kay67

•9 years ago

8 Replies

Newly diagnosed and saying hi

I just wanted to say hi to my fellow sufferers. I have recently been diagnosed with APS and have been surprised by how little information there appears to be...

I just wanted to say hi to my fellow sufferers. I have recently been diagnosed ...

Positiveandhopeful

•9 years ago

10 Replies

TIA's ?

Hi Last night I had a really frightening experience. I was sitting using my laptop when my head suddenly felt like it would explode like all the blood was...

Hi Last night I had a really frightening experience. I was sitting using my lapt...

ledlegs

•9 years ago

12 Replies

A new (Dutch)APS Website

Yesterday we launched a new website for Dutch people with the antiphospholipid syndrome! The website is made in consultation with the medical staff of the...

Yesterday we launched a new website for Dutch people with the antiphospholipid s...

sanderotter

•9 years ago

5 Replies

uruguay poca informacion

hola soy ana tengo un safe hace años con nada a excaso tratamiento salvo en los 2 embarazos sanos q curse luego del diagnostico.despues de esto los medicos son...

hola soy ana tengo un safe hace años con nada a excaso tratamiento salvo en los ...

55704340

•9 years ago

4 Replies

Holiday insurance

Anyone know of a good insurance company got Hughes Thanks in advance kristian

Magoowood

•9 years ago

3 Replies

Gynae issues and APS

Could APS cause gynae problems such as heavy bleeding, passing clots, pain in pelvis and rectum and subsequent inflammation in bowel, lumbar region, and even...

Could APS cause gynae problems such as heavy bleeding, passing clots, pain in pe...

janeingirona

•9 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2015

Deep tissue massage

Confused Newbie

Fatigue is kicking my ass!

Sun exposure

Turned down for Life Insurance

Gastroparesis (slow stomach emptying with pain)

Platelets clumping on blood test

Sports / Activities

Daily Mail article

Glycogen Storage Disease

Professor Graham Hughes April 2015 Blog

Help Cant get rid of bruising

Recently diagnosed

Psoriasis and APS?

INR...Can you counter something you eat or drink on the same day?

APS small fetus with treatment

Long haul flights with APS

Help...what anti coag meds now

Ferritin levels

APS

Tias mini strokes?

How do you know when your INR is not within range?

Hi I've now been told I've got rosacea.

Feeling let down

Newly diagnosed and saying hi

TIA's ?

A new (Dutch)APS Website

uruguay poca informacion

Holiday insurance

Gynae issues and APS

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