Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for September 2018

Flare??

Do we have Flares? 10 days ago we were in Colorado and I felt like my old self, when got back checked INR it was 5, so of course the hemo doc adjusted and I...

Do we have Flares? 10 days ago we were in Colorado and I felt like my old self, ...

edgewater100

•6 years ago

10 Replies

A patient journey to diagnosis found by one of our members

http://www.lovewhatmatters.com/i-woke-up-being-wheeled-to-the-icu-in-the-worst-pain-imaginable-all-i-could-silently-mouth-was-hows-my-baby-i-needed-a-doctor-to-

http://www.lovewhatmatters.com/i-woke-up-being-wheeled-to-the-icu-in-the-worst-p...

MaryF

Administrator•6 years ago

7 Replies

New research out of UCL regarding Antiphospholipid Antibodies

https://www.frontiersin.org/articles/10.3389/fimmu.2018.02244/full MaryF

MaryF

Administrator•6 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Bloody noses

Hello Anyone else on anticoagulation and antiplatelet therapy? I take warfarin and Brilinta both and just had an outrageous bloody nose that landed me in the...

Hello Anyone else on anticoagulation and antiplatelet therapy? I take warfarin a...

orygun66

•6 years ago

3 Replies

How can I relieve bruising?

Is there a medication or vitamin I can take to improve the bruising from Plavix & baby aspirin?

Is there a medication or vitamin I can take to improve the bruising from Plavix ...

countrytunes

•6 years ago

2 Replies

My story

In 2014 my brother who was 26 had a huge clot in his leg in which they were sure they were going to amputate but instead was able to save it, he was put on...

In 2014 my brother who was 26 had a huge clot in his leg in which they were sure...

Molwal

•6 years ago

2 Replies

Sander Otter and Prof Graham Hughes greeting each other at our GHIC First Patient Meeting

Sander Otter runs the Dutch APS Group https://www.antifosfolipidensyndroom.nl/ Here he is, once again catching up with Prof Graham Hughes. It was great to...

Sander Otter runs the Dutch APS Group https://www.antifosfolipidensyndroom.nl/ ...

MaryF

Administrator•6 years ago

2 Replies

A film of Professor Graham Hughes' in Australia a couple of years back, a great film

This is a good interview. https://psychscenehub.com/video/introduction-world-lupus-antiphospholipid-syndrome-prof-graham-hughes/...

This is a good interview. https://psychscenehub.com/video/introduction-world-lu...

MaryF

Administrator•6 years ago

7 Replies

A short article - by Patient Info - Hughes Syndrome/APS

https://patient.info/health/blood-clotting-tests/antiphospholipid-syndrome Mary F

https://patient.info/health/blood-clotting-tests/antiphospholipid-syndrome Mary...

MaryF

Administrator•6 years ago

10 Replies

Next GHIC Event - Kay Thackery Book Relaunch

Tickets are selling fast for this event, an evening one, as soon as I have the date for the next Patient's Event in six months I will put this on, but for now,...

Tickets are selling fast for this event, an evening one, as soon as I have the d...

MaryF

Administrator•6 years ago

4 Replies

Functional Medicine Doctor

Has anyone seen a functional Medicine doctor. They are a MD. They treat the problem instead of the symptom. They do it with diet & supplements. I learned about...

Has anyone seen a functional Medicine doctor. They are a MD. They treat the prob...

designer16

•6 years ago

9 Replies

Has anyone just started bleeding with no warning while on warfarin

Last Tuesday night with no warning I got a nose bleed. Everything we tried didn’t work to stop it. It was so bad I started throwing up dark blood. We went to...

Last Tuesday night with no warning I got a nose bleed. Everything we tried didn’...

designer16

•6 years ago

17 Replies

QUESTION

I was 48 years old by the time I got tested for Factor V and for APS, I had my daughter tested when she was 19 and it showed up that she does not have either...

I was 48 years old by the time I got tested for Factor V and for APS, I had my d...

Pepper81297

•6 years ago

14 Replies

New cardiologist

Hello, I met with a new cardiologist today. I was talking about Dr. Schofield and having seen her before and he told me she had a new concierge practice. It...

Hello, I met with a new cardiologist today. I was talking about Dr. Schofield an...

orygun66

•6 years ago

18 Replies

I am running out of options...

I stumbled upon this site during my search for options and I could really use some advice... I am a 22 year old active female and I have recently suffered...

I stumbled upon this site during my search for options and I could really use so...

AllyFern

•6 years ago

20 Replies

Preventative migraine drugs?

I was diagnosed 5 years ago with Hughes Syndrome, Sjogren's and Hypothyroidism. I take warfarin and aspirin daily. Although this has helped I still suffer from...

I was diagnosed 5 years ago with Hughes Syndrome, Sjogren's and Hypothyroidism. ...

AvsG

•6 years ago

49 Replies

Last few tickets for our Patient's Day

Fancy coming along, easy to book your ticket on eventbrite:...

MaryF

Administrator•6 years ago

5 Replies

APS and IVF treatment?

Hi, I've been through 2 rounds of IVF, 2 early miscarriages and 2 unsuccessful attempts - my sister has APS (Antiphospholipid syndrome) and I asked my doctor...

Hi, I've been through 2 rounds of IVF, 2 early miscarriages and 2 unsuccessful a...

atiajanssens

•6 years ago

13 Replies

Hughes specialist at London Bridge Hospital?

Over the past 5 years I have been seen by Prof Hughes at London Bridge Hospital. Due to his retirement I am unable to see him again. Can you recommend the next...

Over the past 5 years I have been seen by Prof Hughes at London Bridge Hospital....

AvsG

•6 years ago

10 Replies

New and looking for advice

Hi all! I'll start by saying that I haven't been diagnosed with APS - or tested even - but I would like to share my story and hopefully receive some advice on...

Hi all! I'll start by saying that I haven't been diagnosed with APS - or tested ...

Dani92

•6 years ago

14 Replies

Advice Post DVT Varicose Veins

Diagnosed with APS in 2012 following a series of DVTs (left leg) and been on Warfarin since. Managed by self-testing (Coagucheck) and quarterly venous tests...

Diagnosed with APS in 2012 following a series of DVTs (left leg) and been on War...

JPMcGee75

•6 years ago

1 Reply

coaguchek

So my letter about the duff test strips finally arrived from Roche late yesterday - large red envelope and large red print on the acknowledgement form that...

So my letter about the duff test strips finally arrived from Roche late yesterda...

Ray46

•6 years ago

9 Replies

Severe ITCHING

i HAVE BEEN TAKING clopidogrel after a heart attack and found it cured my migraines practically. However, I itched so severely with it that I reduced it to a...

i HAVE BEEN TAKING clopidogrel after a heart attack and found it cured my migrai...

lousyhead

•6 years ago

2 Replies

Anyone think this is peripheral neuropathy?

Hello 😊 I had a heart attack last year and a dvt when on heparin during pregnancy. I've been on rivaroxaban and clopidogrel since but have started around 6...

Hello 😊 I had a heart attack last year and a dvt when on heparin during pregnan...

Avydoo

•6 years ago

6 Replies

Severe Tiredness

Hi I was diagnosed 16 years ago with APS after I had my second daughter, my first daughter was stillborn at 40 weeks. I had a blood clot at the age of 19 and...

Hi I was diagnosed 16 years ago with APS after I had my second daughter, my fir...

Sal1967

•6 years ago

5 Replies

Rules and Regulations of this site!

Hi to everyone. Hope your day is going good! I have a question. What are the things we are can and cannot write about on this site? i.e. Give the name of a...

Hi to everyone. Hope your day is going good! I have a question. What are the t...

hihannula

•6 years ago

1 Reply

Healing Autoimmune APS by treating Leaky Gut

Hi Have suspected MS. No confirmation of it. Symptoms too similar to APS to ignore so insisted GP test for it. Waiting for first test results. Has anyone...

Hi Have suspected MS. No confirmation of it. Symptoms too similar to APS to igno...

MirandaMarr

•6 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2018

Flare??

A patient journey to diagnosis found by one of our members

New research out of UCL regarding Antiphospholipid Antibodies

Bloody noses

How can I relieve bruising?

My story

Sander Otter and Prof Graham Hughes greeting each other at our GHIC First Patient Meeting

A film of Professor Graham Hughes' in Australia a couple of years back, a great film

A short article - by Patient Info - Hughes Syndrome/APS

Next GHIC Event - Kay Thackery Book Relaunch

Functional Medicine Doctor

Has anyone just started bleeding with no warning while on warfarin

QUESTION

New cardiologist

I am running out of options...

Preventative migraine drugs?

Last few tickets for our Patient's Day

APS and IVF treatment?

Hughes specialist at London Bridge Hospital?

New and looking for advice

Advice Post DVT Varicose Veins

coaguchek

Severe ITCHING

Anyone think this is peripheral neuropathy?

Severe Tiredness

Rules and Regulations of this site!

Healing Autoimmune APS by treating Leaky Gut

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