Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for December 2015

APS and lung inflammation

I know there's been recurrent pneumonias with some of our APS members, but I'm wondering if anyone has encountered an "inflammatory lung" condition? Me:...

I know there's been recurrent pneumonias with some of our APS members, but I'm w...

CaliforniaGail

•8 years ago

6 Replies

Eliquis or Xarelto

There is an antidote to these drugs being approved here in the states in 2016. I opted to not take wither of these because of no antidote being available. My...

There is an antidote to these drugs being approved here in the states in 2016. I...

mylafont

•8 years ago

14 Replies

Happy New Year!!!

Just want to wish everyone a very Happy New Year !!!!!!

ledlegs

•8 years ago

2 Replies

Want to take advantage of all our features? Just log in!

It's been over a year.

So I can't remember where I left off last year in this forum. But I did test positive for antiphospholipids 3x. Though my doctor felt the levels were not high...

So I can't remember where I left off last year in this forum. But I did test pos...

krystalcallison83

•8 years ago

14 Replies

Aps and endometriosis

I was diagnosed with aps in 2013 and have now been diagnosed with endometriosis and adhesions are these two related. Thanks.

I was diagnosed with aps in 2013 and have now been diagnosed with endometriosis ...

sarahlou1801

•8 years ago

4 Replies

Why is my body sore to touch

Ok so it feels like flu but I haven'tg or flu , and my skin is so sore and if I touch anything cold it kills its like a icy pain and its makingm e feel so...

Ok so it feels like flu but I haven'tg or flu , and my skin is so sore and if I ...

kezebabe

•8 years ago

5 Replies

Diagnosed 2 years ago after 3 miscarriages, pregnant again and terrified!

I'm panicking at what should be a happy time as I called my doctor recently to get shots for going long haul and he didn't know what I was talking about- I...

I'm panicking at what should be a happy time as I called my doctor recently to g...

Avydoo

•8 years ago

11 Replies

Phenindione shortage

I have just received a letter from my doctor referring me to a haematologist as Phenindione is due to reach critical levels in the new year. I can not...

I have just received a letter from my doctor referring me to a haematologist as ...

tiredmum

•8 years ago

3 Replies

Low dose naltrexone, has anyone heard or used this FDA approved drug?

This drug is supposed to be a great drug for autoimmune diseases even some cancers and hiv but so far I've asked 2 doctors about it and they haven't heard...

This drug is supposed to be a great drug for autoimmune diseases even some cance...

determinedandstrong

•8 years ago

17 Replies

This place is ace

Just a quick repeated 'Thank You' to the Admins and Responders on here You are all amazing and make just coping a little easier with the kind responses and...

Just a quick repeated 'Thank You' to the Admins and Responders on here You are ...

CheddarAddict

•8 years ago

5 Replies

Update

Took everyone's advice. Went to ER had tests and ct scan they packed me up and shipped Me to a larger hospital by ambulance. Ct showed an older stroke but...

Took everyone's advice. Went to ER had tests and ct scan they packed me up and s...

dar58

•8 years ago

8 Replies

Joint pain...

Hello everyone, I have not written a note on the forum in quite sometime. I am reaching out today hoping to find some further connections into a solution for...

Hello everyone, I have not written a note on the forum in quite sometime. I am ...

beccafullcircle

•8 years ago

15 Replies

Heart rate

Has anyone suffered with an extremely fast heart rate. I have had this several times and was admitted one of them, where Bloods showed a high rate of troponin...

Has anyone suffered with an extremely fast heart rate. I have had this several t...

Danni33

•8 years ago

14 Replies

Referral Letter

I finally got around to going to a GP to get a referral to see a Rheumatologist. He is going to refer me to Dr Will Taylor (who was recommended to me on here...

I finally got around to going to a GP to get a referral to see a Rheumatologist....

Nellennium

•8 years ago

2 Replies

Scared to tell my doc I'm going to APS Doc & not him Need advice on how to tell him w/o hurting his feelings!

Hello I hope everyone had a Merry Christmas and mostly pain free!!! I just read About Lynn starting Heperin injections & jetjetjet giving me great advice on my...

Hello I hope everyone had a Merry Christmas and mostly pain free!!! I just read ...

Debbweb01

•8 years ago

5 Replies

Well that went well..... Not!

Quick review: Up for emergency op on New Years Eve and being Bridged last Warfarin Wednesday night when machine INR was 2.5 Test booked for today on ward to...

Quick review: Up for emergency op on New Years Eve and being Bridged last Warfar...

CheddarAddict

•8 years ago

6 Replies

Sjögren's syndrome

What is Sjögren's Syndrome? Is it related to Hughes syndrome? Just found out my sister in law has it.

What is Sjögren's Syndrome? Is it related to Hughes syndrome? Just found out my ...

Nanny23

•8 years ago

20 Replies

Merry Christmas

A wonderful Merry Christmas to all . All over the world tonight . Casey and I

A wonderful Merry Christmas to all . All over the world tonight . Cas...

jetjetjet

•8 years ago

9 Replies

Greetings

Just want to wish everybody a very Happy Christmas and New Year.

ledlegs

•8 years ago

2 Replies

It's Bridging time....

Well it has been an eventful week! Never thought I would want to be told I have another clot but of the 4 options presented to me yesterday it is the most...

Well it has been an eventful week! Never thought I would want to be told I have ...

CheddarAddict

•8 years ago

6 Replies

Still so confused

I feel like I've been through hell and back. I had the problem where I was just hospitalized for a total of 2 weeks due to #1...contact with black mold which...

I feel like I've been through hell and back. I had the problem where I was just...

dar58

•8 years ago

7 Replies

Tinnitus

Hello does anyone have any experience of tinnitus, i have been suffering about 2 years now with a swooshing and pulsating noise in my ear. any help or...

Hello does anyone have any experience of tinnitus, i have been suffering about 2...

Jenkine

•8 years ago

16 Replies

Vitamin D

Hi all I want to start the vitamin d protocol on the vit d wellness forum on Facebook which involves me taking 5000iu a day of vit d3 with vit k2 and...

Hi all I want to start the vitamin d protocol on the vit d wellness forum on Fa...

linagirl

•8 years ago

11 Replies

APS AND FLU

I have a regular flu jab but still appear to have caught flu this year. As I am on Warfarin I am being very careful what I take and self monitor my INR. But...

I have a regular flu jab but still appear to have caught flu this year. As I am ...

Jolevans

•8 years ago

16 Replies

2 different opinions! APS specialist or regular Hemotologist & Nanny 23

I'm in a debacle please help! I'm about to ask my APS SPECIALIST CUZ I'm confused! My Hemotologist of 12 years for Polycythemia Vera, was happy my INR was at...

I'm in a debacle please help! I'm about to ask my APS SPECIALIST CUZ I'm confuse...

Debbweb01

•8 years ago

4 Replies

THANKYOU to everyone on this site

Hi I would like to thank everyone on this site for educating me. My sister was recently diagnosed with APS. I did not understand what she was going through....

Hi I would like to thank everyone on this site for educating me. My sister was r...

Nanny23

•8 years ago

7 Replies

First Appointment with haematologist tomorrow.. what can I expect?

Hi guys, Tomorrow I have my first ever haematologist appointment tomorrow that I have been waiting for for ages. This will be the first step since finding out...

Hi guys, Tomorrow I have my first ever haematologist appointment tomorrow that ...

LeanneLouise15

•8 years ago

1 Reply

Recently Diagnosed! Having some weird symptoms? Can anyone help?

Hi! Thanks for taking the time to have a look at my question. Cut a long story short I was recently diagnosed with APS after a lot of miscarriages so I'm...

Hi! Thanks for taking the time to have a look at my question. Cut a long story s...

LeanneLouise15

•8 years ago

12 Replies

APS

Well been Manchester Royal hospital today rheumatology lupus clinic seen speclist doctor called Rachela Gorodkin very nice lady she asked me lots of questions...

Well been Manchester Royal hospital today rheumatology lupus clinic seen speclis...

Lesley61

•8 years ago

4 Replies

Finding doctors who know how to help

Hi all. My APS has become very symptomatic in the past couple of years. Three years ago, my blood disorder played a fairly insignificant role in my life....

Hi all. My APS has become very symptomatic in the past couple of years. Three ...

smartboredgirL

•8 years ago

21 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2015

APS and lung inflammation

Eliquis or Xarelto

Happy New Year!!!

It's been over a year.

Aps and endometriosis

Why is my body sore to touch

Diagnosed 2 years ago after 3 miscarriages, pregnant again and terrified!

Phenindione shortage

Low dose naltrexone, has anyone heard or used this FDA approved drug?

This place is ace

Update

Joint pain...

Heart rate

Referral Letter

Scared to tell my doc I'm going to APS Doc & not him Need advice on how to tell him w/o hurting his feelings!

Well that went well..... Not!

Sjögren's syndrome

Merry Christmas

Greetings

It's Bridging time....

Still so confused

Tinnitus

Vitamin D

APS AND FLU

2 different opinions! APS specialist or regular Hemotologist & Nanny 23

THANKYOU to everyone on this site

First Appointment with haematologist tomorrow.. what can I expect?

Recently Diagnosed! Having some weird symptoms? Can anyone help?

APS

Finding doctors who know how to help

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