Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for January 2014

How often or what blood test are done when you are on clexane injections everyday?

I was wondering what blood test or done & how often they are done. I don't think the clexane is thing my blood enough. My dr. Here in the U.S. has not done any...

I was wondering what blood test or done & how often they are done. I don't think...

designer16

•11 years ago

2 Replies

Has prof Hughes ever wrote an article or posted anything about diet affecting APS/Hughes ? Whether Good or bad.

We all have had an interesting conversation about the different diets or foods that have made us feel better. What I would like to know is if anything has been...

We all have had an interesting conversation about the different diets or foods t...

designer16

•11 years ago

2 Replies

So what about seronegative APS?

Hi. Reading the forum I'm not sure, yet, what to think about the so called seronegative APS. I'm seroenegative but I have symptoms. I'm on warfarin for life....

Hi. Reading the forum I'm not sure, yet, what to think about the so called seron...

Romartsantos

•11 years ago

6 Replies

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Has anyone went to the Food Hospital in the UK?

I have been having so many problems which I feel can be food related. I sometimes will eat something & about 15 minutes later I will get pain. My legs & arms...

I have been having so many problems which I feel can be food related. I sometime...

designer16

•11 years ago

8 Replies

New TV show - discovery channel - looking for patients with Hughes Syndrome

Having had communication with Optomen TV, apparently they are beginning to work on a new programme to be hosted on Discovery TLC Channel. Their remit is to...

Having had communication with Optomen TV, apparently they are beginning to wor...

MaryF

Administrator•11 years ago

22 Replies

why cant I read and answer health locked - I never had problems before -- now what do we have to do to correct this as members are trying t

trying to reach me and I can't answer them - Am I doing something wrong ??????please get back to me -----jet

trying to reach me and I can't answer them - Am I doing something wrong ??????pl...

jetjetjet

•11 years ago

2 Replies

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Hi folks not sure what I'm looking for to be honest but wanted to put a post on here. Have been told over the years I have vasculitis, lupus and APS, I'm also...

Hi folks not sure what I'm looking for to be honest but wanted to put a post on ...

annie330

•11 years ago

2 Replies

Which self testing machine?

Hi All, Went to see my rheumatologist today. He says that he wants me to stay on Warfarin as, although a clot can not be seen on a scan, when I am off...

Hi All, Went to see my rheumatologist today. He says that he wants me to stay o...

stillwaiting

•11 years ago

10 Replies

Hi, can you develop hughes syndrome as you get older? I have had to healthy pregnancies but on my third I had a miscarriage at 16 weeks

I have had 2 healthy pregnancies resulting in two live babies but on my third I had a missed miscarriage at 16 weeks. I have read a lot about hughes syndrome...

I have had 2 healthy pregnancies resulting in two live babies but on my third I...

Kirstyed

•11 years ago

6 Replies

Can anyone help me understand the test results I have just received?

I have just got back the results from the range of blood tests ordered at St Thomas' but still have a month to wait before I am back to see the doctor. I am...

I have just got back the results from the range of blood tests ordered at St Tho...

Bonnie39

•11 years ago

5 Replies

Could swelling in random fingers mean Lupus?

When I was originally diagnosed with APS 4 years ago, I was told I only have APS, but not Lupus. I have been treated with Coumadin, and have responded fine. 3...

When I was originally diagnosed with APS 4 years ago, I was told I only have APS...

AmandaH

•11 years ago

5 Replies

Scared to be diagnosed...scared to be undiagnosed :-(

This APS possibility is really niggling at my mind lately....I'm having ups and downs of 'youre a hypochondriac your bloods are normal they've told you...

This APS possibility is really niggling at my mind lately....I'm having ups and ...

jp83

•11 years ago

23 Replies

Pulmonary Hypertension

Hi. I'm Roberto from Spain. I was diagnosed with primary APS in 2001 after a massive pulmonary embolism. In 2011 I was diagnosed with Primary or Idiopathic...

Hi. I'm Roberto from Spain. I was diagnosed with primary APS in 2001 after a mas...

Romartsantos

•11 years ago

2 Replies

Hi my husband has been ill for 13 years it started with his arms and legs twitching and his balance . Then he started to get depression

and panic attacks then he had falls and he was told he had epilepsy and tias and vascular dementia before all this he had trouble with his heart and a blood...

and panic attacks then he had falls and he was told he had epilepsy and tias and...

mabble

•11 years ago

10 Replies

Partner doesnt seem bothered

As most of you know I recently lost a baby at 8 weeks pregnant. Im really messed up by the whole thing as this was miscarriage number 6. I feel so alone my...

As most of you know I recently lost a baby at 8 weeks pregnant. Im really messed...

sarahlou1801

•11 years ago

10 Replies

A new huges syndrome pacient from spain, we need help

Hi, my english is poor, but i ll try to understznd tou all of you. We are a group of spanish pacients , with huges syndrome, here many doctors dont know...

Hi, my english is poor, but i ll try to understznd tou all of you. We are a gro...

salva76

•11 years ago

2 Replies

Bruises like varicose veins/sore to touch skin?

Hi just wondering if anyone gets a kind of sore skin? I get instances where my skin is sore to touch, even my clothes rubbing against it makes me wince a bit....

Hi just wondering if anyone gets a kind of sore skin? I get instances where my s...

jp83

•11 years ago

2 Replies

Via Hughes Syndrome Foundation Charity Website

Not wishing to panic anyone, but a recent study found that if you had shingles under the age of 40, your risk of stroke and heart attack increases...

Not wishing to panic anyone, but a recent study found that if you had shingles u...

MaryF

Administrator•11 years ago

1 Reply

Do you get called back to LondonLupus after 1st appointment?

Just wondering if someone can tell me a bit more info please. I have booked an appointment to see Dr Khamashta in February, it's my 1st appointment so I'm...

Just wondering if someone can tell me a bit more info please. I have booked an a...

jp83

•11 years ago

16 Replies

Costs of private referrals?

Hi all, for those who have taken the private route, can you tell me firstly is payment required on making the appointment over the telephone or is it made upon...

Hi all, for those who have taken the private route, can you tell me firstly is p...

jp83

•11 years ago

16 Replies

Charity Bike Ride for HSF

Right folks its gentle reminder time... My hubby only has about 12 weeks left to raise the £600 for his Tour De France challenge (so his place can be booked...

Right folks its gentle reminder time... My hubby only has about 12 weeks left to...

kateb81

•11 years ago

6 Replies

Vitamin K for emergencies

Hi, I have a INR level set at 3-4, I live in rural Wales where an ambulance would take 30 mins to get to me. I am also a keen woodworker so the risk of a cut...

Hi, I have a INR level set at 3-4, I live in rural Wales where an ambulance woul...

LesJames

•11 years ago

7 Replies

Anticardiolipin levels?

Hi I'm a 30 year old female with a recent central retinal vein occlusion which is apparently very rare. my ophthalmologist is being thorough but I want to take...

Hi I'm a 30 year old female with a recent central retinal vein occlusion which i...

jp83

•11 years ago

28 Replies

Can sticky blood occur just once after an operation should it be checked by hospital after

Glyn1944

•11 years ago

7 Replies

Clotting on Clexane

Hi Everyone and thankyou for your replies to my last question. This time I want to ask whether it is possible to have a clot whilst on Clexane. I have just...

Hi Everyone and thankyou for your replies to my last question. This time I want ...

margaretjo

•11 years ago

7 Replies

First draft of my newspaper article received today!!!

Hya all, Ive just received my draft of my newspaper article,and im very pleased - they have managed to compact my lengthy history in to a few paragraphs and...

Hya all, Ive just received my draft of my newspaper article,and im very pleased ...

emmaj

•11 years ago

10 Replies

d-dimer

ive just had another spell in hospital because i had back pain so they did a d=dimer. It was high so i was wisked into hospital in case it was a clot. CT scan...

ive just had another spell in hospital because i had back pain so they did a d=d...

margaretjo

•11 years ago

5 Replies

Fed up of feeling unwell

Since October I have felt ill most of the time. I feel like I have a permanent cold and have had a couple of urinary infections too. Worst is the constant...

Since October I have felt ill most of the time. I feel like I have a permanent ...

panda60

•11 years ago

4 Replies

What will be a treatment for my primary aps when a combination of aspirin and Plavix is not reducing Cardiolipins from IgG 0.55 and IgM0.068

I was diagnosed with primary aps on 2009. At first I was on aspirin (75mg.) for may years. Last year Cardiolipins went up to levels of 0.70 and 0.08. Plavix...

I was diagnosed with primary aps on 2009. At first I was on aspirin (75mg.) for ...

luisal

•11 years ago

9 Replies

Does anyone experience stomach bloating/distension. I look 5 months pregnant! What can I take for this

Am waiting for 2nd blood test at end of this month to confirm diagnosis.

Linmur1957

•11 years ago

18 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2014

How often or what blood test are done when you are on clexane injections everyday?

Has prof Hughes ever wrote an article or posted anything about diet affecting APS/Hughes ? Whether Good or bad.

So what about seronegative APS?

Has anyone went to the Food Hospital in the UK?

New TV show - discovery channel - looking for patients with Hughes Syndrome

why cant I read and answer health locked - I never had problems before -- now what do we have to do to correct this as members are trying t

Negative Anca, normal antibeta 2 glycoprotein and started with seizures

Which self testing machine?

Hi, can you develop hughes syndrome as you get older? I have had to healthy pregnancies but on my third I had a miscarriage at 16 weeks

Can anyone help me understand the test results I have just received?

Could swelling in random fingers mean Lupus?

Scared to be diagnosed...scared to be undiagnosed :-(

Pulmonary Hypertension

Hi my husband has been ill for 13 years it started with his arms and legs twitching and his balance . Then he started to get depression

Partner doesnt seem bothered

A new huges syndrome pacient from spain, we need help

Bruises like varicose veins/sore to touch skin?

Via Hughes Syndrome Foundation Charity Website

Do you get called back to LondonLupus after 1st appointment?

Costs of private referrals?

Charity Bike Ride for HSF

Vitamin K for emergencies

Anticardiolipin levels?

Can sticky blood occur just once after an operation should it be checked by hospital after

Clotting on Clexane

First draft of my newspaper article received today!!!

d-dimer

Fed up of feeling unwell

What will be a treatment for my primary aps when a combination of aspirin and Plavix is not reducing Cardiolipins from IgG 0.55 and IgM0.068

Does anyone experience stomach bloating/distension. I look 5 months pregnant! What can I take for this

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