Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for July 2013

Any advice welcome

H i live in Somerset do go through my GP to ask for a referral? I have many symptoms of MS and APS but cannot get a diagnosis, Im on lifelong warfarin for...

H i live in Somerset do go through my GP to ask for a referral? I have many symp...

dawnie1

•11 years ago

7 Replies

My afternoon in A&E

So I went to the GP who did a heart trace as I was getting chest pain as well as the stroke like symptoms. They sent me to A&E. Chest x ray fine, bloods ok -...

So I went to the GP who did a heart trace as I was getting chest pain as well as...

stillwaiting

•11 years ago

4 Replies

Just read some case studies, and its scary how many symptoms I have....

I've had to stop reading because I'm getting disorientated. The spatial awareness thing was amazing trying to explain what it's like is hard for me, I had it...

I've had to stop reading because I'm getting disorientated. The spatial awarene...

Lolly83

•11 years ago

5 Replies

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At my recent visit to see the Rheumatologist Dr Green at York DH.

I found him to be very caring and thorough. So I would definitely recommend him. However he didn't think I had Hughes and said he thought I had Fibromyalgia...

I found him to be very caring and thorough. So I would definitely recommend him...

Everdean

•11 years ago

14 Replies

Stopping warfarin

I've heard recently of some people with a diagnosis of APLS being told to stop the warfarin they are on, by their consultants, including one at St Ts. This...

I've heard recently of some people with a diagnosis of APLS being told to stop t...

Peanut

•11 years ago

18 Replies

Does any know if APS is related to Hemochromotosis ( absorbing too much iron)

My brother who has many symptoms of aPS but refuses to get tested was just diagnosed with hemochromotosis. I was just wondering if it could related.

My brother who has many symptoms of aPS but refuses to get tested was just diagn...

APSdsntHaveMe

•11 years ago

7 Replies

Prof Graham Hughes' latest blog book

Graham has asked me to let you know that his latest blog booklet has been published and you can now buy it from the charity's website:...

Graham has asked me to let you know that his latest blog booklet has been publis...

Hidden

•11 years ago

5 Replies

Hi all

I haven't been diagnosed with APS, but I'm convinced this is what I have. I've had 3 miscarriages a placental abruption where I clotted behind my placenta, I'm...

I haven't been diagnosed with APS, but I'm convinced this is what I have. I've h...

Lolly83

•11 years ago

4 Replies

Does anyone with Hughes syndrome have or had a biological parent that had polio?

I've read there may be a link between polio parents and their children having autoimmune disorders.

I've read there may be a link between polio parents and their children having au...

Dagen

•11 years ago

8 Replies

Does anybody have B12 deficiciency in conection with APS???

traceylou

•11 years ago

8 Replies

DLA and Hughes

I have been on DLA since I had a stroke in 2011, brain scan showed that I had suffered multiple strokes in the past, unfortunately I suffer terribly from all...

I have been on DLA since I had a stroke in 2011, brain scan showed that I had su...

traceylou

•11 years ago

4 Replies

Stroke recovery - article from The Daily Telegraph

http://www.telegraph.co.uk/health/healthnews/10146448/Brain-stimulation-helps-stroke-recovery.html Mary F x

http://www.telegraph.co.uk/health/healthnews/10146448/Brain-stimulation-helps-st...

MaryF

Administrator•11 years ago

1 Reply

How long for blood test results to come back?

Hi, I am new to the board but not to autoimmune issues. I was diagnosed with my first autoimmune disease in 1977....Addison's Disease and Hashimoto's...

Hi, I am new to the board but not to autoimmune issues. I was diagnosed with m...

jetler

•11 years ago

1 Reply

IVF

Any one out there who have had IVF ladies? I'm so scared it will all end in a miscarriage again :(

Any one out there who have had IVF ladies? I'm so scared it will all end in a mi...

Anabella76

•11 years ago

5 Replies

Anyone experience numbness in one foot? I've had this for about 6 weeks. GP thinks it could be vasulitus. I'm not diabetic.

jean48

•11 years ago

4 Replies

Has anyone had very low blood pressure along with undiagnosed illness which went along with a flare-up of APS symptoms?

It all started with feeling very unwell and then suddenly loads of livedo reticularis on the palms (where it is normally clear) and backs of hands along with...

It all started with feeling very unwell and then suddenly loads of livedo reticu...

Squeezer

•11 years ago

17 Replies

Has anyone noticed a difference in their INR results when taking generic warfarin vs name brand Coumadin?

I've been in my target range more often when taking Coumadin than when I took the generic.

I've been in my target range more often when taking Coumadin than when I took th...

Holley

•11 years ago

5 Replies

Any one have pericarditous?

Been away from site for a few week - navigation really changed! After lots of support from this site, I got a consultation with heomotologist. She was...

Been away from site for a few week - navigation really changed! After lots of su...

Hidden

•11 years ago

3 Replies

Appt with the prof

saw Dr. D,Cruz yesterday who re-instated my diagnosis, but said I don,t need to be seen again, feel a bit high and dry,also asked for something for fatigue...

saw Dr. D,Cruz yesterday who re-instated my diagnosis, but said I don,t need to ...

donnabrain

•11 years ago

3 Replies

APS and Small Vessel Disease - MY MRI

Hi have any of you been told you have Small Vessel Disease or MS after an MRI my latest MRI shows I may have SVD or MS I don't think it is MS to be honest,...

Hi have any of you been told you have Small Vessel Disease or MS after an MRI m...

Cherrydi

•11 years ago

5 Replies

INR ? I know this is to do with Warfarin but do I need to know what mine is ? I am only on 150mg of aspirin

I am also building up to 400mg of Hydroxychloroquine I am on about 250mg at the mo and have to say i think its about time they started to make the stuff in...

I am also building up to 400mg of Hydroxychloroquine I am on about 250mg at the ...

staceylou

•11 years ago

6 Replies

Steroids

I am due to see my General Physician tomorrow and will be asking him about his thoughts on APS and steroids and in particular, Prednisolone. Has any fellow APS...

I am due to see my General Physician tomorrow and will be asking him about his t...

diggers

•11 years ago

8 Replies

Raised bumps on hands - connected symptom?

I have just had first set of positive LA results and waiting for second testing to confirm APS diagnosis. Have had a stroke and have most of the seemingly...

I have just had first set of positive LA results and waiting for second testing ...

Frhd

•11 years ago

3 Replies

Microvascular disease

I have aps and wonder if anyone links microvascular disease to APS. I had bilateral pulmonary emboli years ago, also Tia's although it was never documented by...

I have aps and wonder if anyone links microvascular disease to APS. I had bilat...

downsy5

•11 years ago

3 Replies

New here .....

Hello all - yesterday I was newly diagnosed with APS ... had a small stroke one month ago and blood results from that hospital stay showed lupus anticoagulant...

Hello all - yesterday I was newly diagnosed with APS ... had a small stroke one ...

w8andhewill

•11 years ago

6 Replies

I tested positive for lupus anticoagulant, but retest a few months later is negative. I have MS like sx - not dx with anything at the time

Other than possible MS - followed by neuro for the past three years - follow up MRI show no new lesions - (have 13 or so small, scattered). Do docs usually do...

Other than possible MS - followed by neuro for the past three years - follow up ...

cmars

•11 years ago

10 Replies

Weak positive on 1st ACL, blood test

I have now seen the rheumatologist, not sure how I feel to be honest, some of my 'symptoms' were dismissed.. the two miscarriages were too early to be counted...

I have now seen the rheumatologist, not sure how I feel to be honest, some of my...

PepperT

•11 years ago

Be the first to reply

Is it safe to fly with Hughes Syndrome? I've had 2 strokes already and I'm on 75mg aspirin daily.

Thanks to Mary F on this site I have been pointed in the direction of Hughes Syndrome as my existing diagnosis is 'migrainous strokes' and prior to that I'd...

Thanks to Mary F on this site I have been pointed in the direction of Hughes Syn...

Travipop

•11 years ago

1 Reply

Case study required for Health Matters magazine

Calling anyone who attends the private London Lupus Centre and is under the care of David D'Cruz. We have managed to get some free space for an article in...

Calling anyone who attends the private London Lupus Centre and is under the care...

Hidden

•11 years ago

8 Replies

Multiple Fibrovascular hemangiomas of the Spine?

Has anyone had and or got multiple fibrovascular hemangiomas of the spine? If so what treatment have you been offered?

Has anyone had and or got multiple fibrovascular hemangiomas of the spine? If s...

InSpain

•11 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2013

Any advice welcome

My afternoon in A&E

Just read some case studies, and its scary how many symptoms I have....

At my recent visit to see the Rheumatologist Dr Green at York DH.

Stopping warfarin

Does any know if APS is related to Hemochromotosis ( absorbing too much iron)

Prof Graham Hughes' latest blog book

Hi all

Does anyone with Hughes syndrome have or had a biological parent that had polio?

Does anybody have B12 deficiciency in conection with APS???

DLA and Hughes

Stroke recovery - article from The Daily Telegraph

How long for blood test results to come back?

IVF

Anyone experience numbness in one foot? I've had this for about 6 weeks. GP thinks it could be vasulitus. I'm not diabetic.

Has anyone had very low blood pressure along with undiagnosed illness which went along with a flare-up of APS symptoms?

Has anyone noticed a difference in their INR results when taking generic warfarin vs name brand Coumadin?

Any one have pericarditous?

Appt with the prof

APS and Small Vessel Disease - MY MRI

INR ? I know this is to do with Warfarin but do I need to know what mine is ? I am only on 150mg of aspirin

Steroids

Raised bumps on hands - connected symptom?

Microvascular disease

New here .....

I tested positive for lupus anticoagulant, but retest a few months later is negative. I have MS like sx - not dx with anything at the time

Weak positive on 1st ACL, blood test

Is it safe to fly with Hughes Syndrome? I've had 2 strokes already and I'm on 75mg aspirin daily.

Case study required for Health Matters magazine

Multiple Fibrovascular hemangiomas of the Spine?

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