Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for September 2022

Aps and topamax?

I was diagnosed with aps years ago after being diagnosed with lupus before that. I had a dvt and pulmonary embolism and have since been on warfarin for the...

I was diagnosed with aps years ago after being diagnosed with lupus before that....

•2 years ago

APS & Hearing Loss?

Hi all, just wondering if anyone else (or how common it is?) has experienced hearing loss as a result of their APS? I’m also wondering how far this may go....

Hi all, just wondering if anyone else (or how common it is?) has experienced hea...

•2 years ago

INR. Too Low

Despite increased dosage it keeps going lower ?? Been in and out of 4 emergency rooms this month. Where when they monitored it was too high??? I don’t know...

Despite increased dosage it keeps going lower ?? Been in and out of 4 emergency...

•2 years ago

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spontaneous bleeds into joints of fingers/hands/wrist

I am on warfarin so had my INR Checked due to spontaneous bleeding into joints of hand/wrist. It was 4 so only slightly elevated. I have APLS and now...

I am on warfarin so had my INR Checked due to spontaneous bleeding into joints o...

•2 years ago

Update on Mayo visit

UPDATE regarding my Mayo visit. So excited and fascinated by this hopsital/clinic!! Not sure if being excited about finding more issues is good or not...but I...

UPDATE regarding my Mayo visit. So excited and fascinated by this hopsital/clini...

•2 years ago

Very worried

Good morning I wonder if anyone can give me some advice. I have had APS for 20years and suddenly have a major problem. It started with my INR going up to...

Good morning I wonder if anyone can give me some advice. I have had APS for ...

•2 years ago

Autumn Booster Vaccinations

Is the Autumn Booster suitable for APS patients? We were advised by JCVI not to have Astra Zeneca, I have had Pfizer previously. What about this new one?...

Is the Autumn Booster suitable for APS patients? We were advised by JCVI not to...

•2 years ago

Employment

can I ask what jobs people do who have anti phospholipid syndrome please and thank yous? And did anyone have to change jobs because of the condition? Many...

can I ask what jobs people do who have anti phospholipid syndrome please and tha...

•2 years ago

Inrange Coagucheck wrong readings

Hi all, For the past couple of years my Coagucheck and venous readings are pretty much the same. I have venous tests every 3 weeks. Today venous is 7.3...

Hi all, For the past couple of years my Coagucheck and venous readings are pre...

•2 years ago

GOING TO MAYO!!!!

I am so excited! I will be in Rochester, MN next week for a full week of labs, imaging, and doctor visits for APS and my strokes at the Mayo Clinic. I finally...

I am so excited! I will be in Rochester, MN next week for a full week of labs, i...

•2 years ago

Triple Positive - Way Forward

Hi, About 4 years ago after years of all sorts of issues such a regular headaches, visual migraines, joint & muscle pain, stomach, memory issues, fatigue,...

Hi, About 4 years ago after years of all sorts of issues such a regular headach...

•2 years ago