Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,349 members • 10,537 posts

All posts for November 2011

anyone else on mepacrine

Highly allergic to plaquenil so have been on mepacrine for 10 yrs, My dad told me it was prescribed to troops during the war and they all turned bright yellow...

Highly allergic to plaquenil so have been on mepacrine for 10 yrs, My dad told ...

panda60

•12 years ago

5 Replies

Hughes London Support Group

Hi everyone I am holding a meeting for any Hughes sufferers, friends, relatives etc on Dec 15th. It will be in the AMT Coffee House on the ground floor of...

Hi everyone I am holding a meeting for any Hughes sufferers, friends, relativ...

london-lass

•12 years ago

9 Replies

? causes of symptoms getting worse. Dehydration

Hi Just a thought, I always felt that flying was a problem to me memory getting worse etc. Having thought about it a bit more. Yes you can get dehydration...

Hi Just a thought, I always felt that flying was a problem to me memory gettin...

daisyd

•12 years ago

4 Replies

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Does having ASP affect the way your body reacts to the common cold or other common illness? or will it simply over react each time?

ClareSteggles

•12 years ago

17 Replies

Celiacs and Gluten free foods.

I have had a couple of people email me about gluten free food so please see the below info. Paddy Well, gluten is hidden in MANY foods. The...

I have had a couple of people email me about gluten free food so please see the...

paddyandlin

•12 years ago

3 Replies

Sky BBC News Interview back in 2010 (For information)

Hi All On the 23/10/2010 in the UK Dr Graham Hughes and some of his patients appeared on a Sky BBC News in an interview about Hughes Syndrome The link...

Hi All On the 23/10/2010 in the UK Dr Graham Hughes and some of his patients...

paddyandlin

•12 years ago

2 Replies

Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families

Hi all, I just thought i'd share this e-petition, "Stop and review the cuts to benefits and services which are falling disproportionately on disabled...

Hi all, I just thought i'd share this e-petition, "Stop and review the cu...

paddyandlin

•12 years ago

3 Replies

APLSUK site is merging with the Hughes Syndrome Community on HealthUnlocked

Dear Members Back in 2001, it was decided to develop an online support group for Hughes / Antiphospholipid Syndrome patients that would be friendly,...

Dear Members Back in 2001, it was decided to develop an online suppor...

paddyandlin

•12 years ago

6 Replies

Pelvic Surgery

Hi I'm new. Has anyone had pelvic surgery and then found things got worse e.g. other symptoms started to crop up.

Hi I'm new. Has anyone had pelvic surgery and then found things got worse e.g....

anje

•12 years ago

5 Replies

Lost an old friend.

As I was growing up my next door neighbours had a boy of the same age (just a month difference) his name was Paul, he was born with spina bifida, we didn't...

As I was growing up my next door neighbours had a boy of the same age (just a mo...

Suzypawz

•12 years ago

5 Replies

seen the rheumatologist

Saw this lovely doctor yesterday and he was really helpful and knows all about Hughes and related conditions. He said I have clearly had some kind of flare...

Saw this lovely doctor yesterday and he was really helpful and knows all about H...

panda60

•12 years ago

3 Replies

A & P lecture including blood clotting on Monday

Just looked at my timetable for Uni on Monday and part of our lecture is regarding blood clotting. Am going to challenge my lecturer and ask him if he knows...

Just looked at my timetable for Uni on Monday and part of our lecture is regardi...

studentnurse1970

•12 years ago

13 Replies

I have been diagnosed with Sneddons syndrome and APS anybody else?

Symptoms are exactly same as hughes, still-births,miscarriages,strokes.

sharonap

•12 years ago

15 Replies

Scotland area leader.

Hi, would it be possible to speak to an area leader of the Scotland area as there is a lady there I have been speaking to thats having some problems & I think...

Hi, would it be possible to speak to an area leader of the Scotland area as ther...

Suzypawz

•12 years ago

3 Replies

Early Pregnancy advice. Info a lil yucky and not directly linked to APS.......

Hello everyone, I'm sorry I haven't been posting recently, life has just got a bit manic recently. My husband and I have started trying for baby number...

Hello everyone, I'm sorry I haven't been posting recently, life has just got ...

kateb81

•12 years ago

9 Replies

That time again

Hospital day 2day.fingers crossd inr above 2.was 1.7 otha day so hopeful injections stop.x

Hospital day 2day.fingers crossd inr above 2.was 1.7 otha day so hopeful injecti...

rach1081985

•12 years ago

2 Replies

Hey

Compard 2 most ov u on here i dnt get most of symptoms associated with aps n neva know if my inr is in range.cn anybody tell me any tips n wa 2 look out 4.im...

Compard 2 most ov u on here i dnt get most of symptoms associated with aps n nev...

rach1081985

•12 years ago

5 Replies

how well do your drugs work?

with the exception of warfarin which i know we all need to stay alive! and to help relieve some symptoms of APs, how well do you feel the other drugs work? I...

with the exception of warfarin which i know we all need to stay alive! and to he...

mully

•12 years ago

4 Replies

Word is spreading amongst the medical profession

I recently had to see a cardiologist about the results of a heart echo (good news for a change) Asked what was causing me the most problem at the moment I...

I recently had to see a cardiologist about the results of a heart echo (good new...

tim47

•12 years ago

3 Replies

Does Hughes get Diagnosed By Blood Tests?

I was diagnosed earlier this year. My GP looked at past blood tests. I have had results all over the place. I have had 2 borderline Lupis results. The...

I was diagnosed earlier this year. My GP looked at past blood tests. I have ha...

Mystynzl

•12 years ago

5 Replies

Is GERD anotother typical symptom of APS?

I'd seen several references to GERD in people's accounts on this site and having looked up what it is, I now realise I have what's called silent reflux, which...

I'd seen several references to GERD in people's accounts on this site and having...

PaquitaV

•12 years ago

4 Replies

My path through the minefield too diagnosis.

Hi all As a child as far as I can remember I didn't really catch all the colds and bugs my siblings caught. Always had severe reactions to insect bites and...

Hi all As a child as far as I can remember I didn't really catch all the colds ...

jessielou

•12 years ago

12 Replies

Coag' machine & inr.

Been offered a coag machine by a fellow Hughie.....good price :) so I've snapped it up, should recieve it tomorrow!! I've had a word with my doc' today &...

Been offered a coag machine by a fellow Hughie.....good price :) so I've snapped...

Suzypawz

•12 years ago

16 Replies

Is Our Blood Always Sticky, or Just Periodically Sticky?

This is a follow up to my last question regarding why APS sufferers feel better when our INR goes higher. It was established in the answers to my question...

This is a follow up to my last question regarding why APS sufferers feel better ...

TheKid

•12 years ago

5 Replies

Anothe update on blind spots

Hi again everyone, hope you're all well.Went to my opthalmology dept yesterday and got all the usual tests done to be told that it was probably all due to my...

Hi again everyone, hope you're all well.Went to my opthalmology dept yesterday a...

9090heatherm

•12 years ago

1 Reply

package insert contains a warning of the inaccuracy of the machine for patients with Antiphospholipid Antibody Syndrome

see attached file page 2 !!!!!!!!!!!!!!!!!!!!!!!! Tests This is a CLIA waived system. These test strips are to be used with the CoaguChek System. Intended...

see attached file page 2 !!!!!!!!!!!!!!!!!!!!!!!! Tests This is a CLIA waived ...

Hidden

•12 years ago

12 Replies

GP Appointment today!!!

I have managed to get an appointment with the GP today as I have had pain in my leg for about a week and the pain seems to be moving upwards, now I am having...

I have managed to get an appointment with the GP today as I have had pain in my ...

Stannington-lad

•12 years ago

3 Replies

How stupid can i get

My Daughter is getting married on Saturday. I had an appointment for a flu vaccine today, didn't even think I might get side effects eg. mild flu symptom...

My Daughter is getting married on Saturday. I had an appointment for a flu vac...

daisyd

•12 years ago

5 Replies

One cold foot, one hot foot!

Since i had a DVT and a thrombectomy in my left side, my left foot becomes extremely cold and tingly, however my right foot goes horribly boiling and i don't...

Since i had a DVT and a thrombectomy in my left side, my left foot becomes extre...

emilycarr11

•12 years ago

5 Replies

Why Do Symptoms Improve When INR Goes Up?

Does anyone know scientifically why our symptoms seem to improve as our INRs go up? My hematologist told me today that there was no link between use of...

Does anyone know scientifically why our symptoms seem to improve as our INRs go ...

TheKid

•12 years ago

19 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2011

anyone else on mepacrine

Hughes London Support Group

? causes of symptoms getting worse. Dehydration

Does having ASP affect the way your body reacts to the common cold or other common illness? or will it simply over react each time?

Celiacs and Gluten free foods.

Sky BBC News Interview back in 2010 (For information)

Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families

APLSUK site is merging with the Hughes Syndrome Community on HealthUnlocked

Pelvic Surgery

Lost an old friend.

seen the rheumatologist

A & P lecture including blood clotting on Monday

I have been diagnosed with Sneddons syndrome and APS anybody else?

Scotland area leader.

Early Pregnancy advice. Info a lil yucky and not directly linked to APS.......

That time again

Hey

how well do your drugs work?

Word is spreading amongst the medical profession

Does Hughes get Diagnosed By Blood Tests?

Is GERD anotother typical symptom of APS?

My path through the minefield too diagnosis.

Coag' machine & inr.

Is Our Blood Always Sticky, or Just Periodically Sticky?

Anothe update on blind spots

package insert contains a warning of the inaccuracy of the machine for patients with Antiphospholipid Antibody Syndrome

GP Appointment today!!!

How stupid can i get

One cold foot, one hot foot!

Why Do Symptoms Improve When INR Goes Up?

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