Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2021

News about me after having the two astra jabs and how well it has worked for me

To anyone here worried about having the Covid astra jab, can I re assure you that it’s fine, I have had both jabs with no side effects, not even a sore arm....

To anyone here worried about having the Covid astra jab, can I re assure you tha...

mariamoo1

•3 years ago

8 Replies

It's been awhile since my last post...

Hello all, hope everyone on the forum is finding answers and support. It has been a long while since I posted, felt a check in might be nice. A looming...

Hello all, hope everyone on the forum is finding answers and support. It has be...

beccafullcircle

•3 years ago

13 Replies

AZ query/ APS

Hi all, I apologise if this has been asked a million times already, I’ve had a trawl through and can’t find anything definitive. I tested positive for lupus...

Hi all, I apologise if this has been asked a million times already, I’ve had a t...

Chris1802p

•3 years ago

19 Replies

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Lovanox lump question

I was taking lovanox and still have a few lumps in my stomach. It has been a little over 2 months

I was taking lovanox and still have a few lumps in my stomach. It has been a lit...

Hidden

•3 years ago

5 Replies

The recent Q&A with Professor Graham Hughes and GHIC

https://www.facebook.com/TheGrahamHughesInternationalCharity/videos/896645731181953 MaryF

https://www.facebook.com/TheGrahamHughesInternationalCharity/videos/896645731181...

MaryF

Administrator•3 years ago

1 Reply

APS just during pregnancy?

Hi, I'm looking for some advice please! I have two questions... Is it possible to have antiphospholipid antibodies purely during pregnancy? Would the fact that...

Hi, I'm looking for some advice please! I have two questions... Is it possible t...

rebeccajaney

•3 years ago

6 Replies

Update on muscle spasms

Well I have had the blood test results back all ok I am still getting muscle spasms in my lt thigh, with severe pain, I phoned my Gp who I don’t trust, due to...

Well I have had the blood test results back all ok I am still getting muscle sp...

daisyd

•3 years ago

4 Replies

Tomorrow's Q&A with Professor Hughes on Facebook/Twitter

Thursday 15th April at 11.30 am: Join us tomorrow for another live Q&A at 11:30 am! Comment your questions for Professor Graham Hughes down below, (on the...

Thursday 15th April at 11.30 am: Join us tomorrow for another live Q&A at 11:30...

MaryF

Administrator•3 years ago

9 Replies

And more information !

And more info today , looks like they are on the case!

Sevenstar

•3 years ago

6 Replies

Pinched off Twitter, via Pulse Magazine, (mag for UK GP's)

https://www.pulsetoday.co.uk/clinical-areas/pain/headache-after-covid-vaccination/ MaryF

https://www.pulsetoday.co.uk/clinical-areas/pain/headache-after-covid-vaccinatio...

MaryF

Administrator•3 years ago

2 Replies

Article, New York Times - Johnson & Johnson Vaccine

Just published in US. Passing on as FYI. I had J and J three weeks ago. Triple positive APS. No issues so far. Thx...

Just published in US. Passing on as FYI. I had J and J three weeks ago. Triple p...

Px123

•3 years ago

2 Replies

News

An encouraging tweet from Prof Beverly Hunt this morning!

Sevenstar

•3 years ago

5 Replies

via GHIC Social Media

A really useful illustration of the very low relative risk of thrombosis with the AstraZeneca covid vaccine compared to thrombosis risks such as the combined...

A really useful illustration of the very low relative risk of thrombosis with th...

MaryF

Administrator•3 years ago

12 Replies

via GHIC Social Media

"More comparative data for AstraZeneca covid vaccine risks, may need adjustment for APS patients with higher thrombosis risk, but on anticoagulation which...

"More comparative data for AstraZeneca covid vaccine risks, may need adjustment ...

MaryF

Administrator•3 years ago

5 Replies

Advice re DVTs, Hughes Syndrome

I have DVTs, major clot, posterior left knee. Just diagnosed w/ Hughes Syndrome complication (Hughes-Stevin?) . What type specialist should I see? What...

I have DVTs, major clot, posterior left knee. Just diagnosed w/ Hughes Syndrome ...

MajorKrimes

•3 years ago

14 Replies

Pfizer Vaccinated with APS/Gene Mutations & Pulmonary Embolisms

Hello, I have followed this website for years and it has very beneficial information. I have 2 copies of MTHFR gene mutation. I was also diagnosed with APS in...

Hello, I have followed this website for years and it has very beneficial informa...

jusroxy1

•3 years ago

7 Replies

I am positive for about 4 years now. Can this disease suddenly attack your whole body?

I now have arthritis had hip replacement in September. Have hypothyroidism my teeth are rotting have spinal stenosis Barrett’s Esophagus ulcers colon polyps. I...

I now have arthritis had hip replacement in September. Have hypothyroidism my te...

Nanny23

•3 years ago

7 Replies

Hello from me

I haven’t been in the board for quite a while. Have been stable on the usual drug cocktail + azathioprine for MCI. Unfortunately I can feel that things are...

I haven’t been in the board for quite a while. Have been stable on the usual dru...

Fusch

•3 years ago

7 Replies

Newly Diagnosed APS.

Hi all, A bit confused: having had 2 PE over a 2yrs diagnosed APS ,single positive to LA. The diagnosed came from a consultant haematologist using my works...

Hi all, A bit confused: having had 2 PE over a 2yrs diagnosed APS ,single positi...

Kev667

•3 years ago

5 Replies

Muscle spasms

Just wondering if anyone has severe muscle spasms, I have started getting these in my thigh along with hip pain left hip only

Just wondering if anyone has severe muscle spasms, I have started getting these ...

daisyd

•3 years ago

13 Replies

Astra Zeneca Vaccine

I am 74 yrs, old and had first dose of above on 8th Feb. The latest news about the blood clots is concerning. I am triple positive for APS, two thrombotic...

I am 74 yrs, old and had first dose of above on 8th Feb. The latest news about t...

Zamalek

•3 years ago

47 Replies

Help

This is hard to ask but with my ongoing mental issues due to my Cerebral APS I have become an even more angry and aggressive person and am putting my marriage...

This is hard to ask but with my ongoing mental issues due to my Cerebral APS I ...

Greenmil3

•3 years ago

28 Replies

Oxford vaccination

I have server APS & a bleeding condition with low platelets. I have already had a stroke & multiple TIAs. I have not long finished treatment for a brain...

I have server APS & a bleeding condition with low platelets. I have already had...

Lind8

•3 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2021

News about me after having the two astra jabs and how well it has worked for me

It's been awhile since my last post...

AZ query/ APS

Lovanox lump question

The recent Q&A with Professor Graham Hughes and GHIC

APS just during pregnancy?

Update on muscle spasms

Tomorrow's Q&A with Professor Hughes on Facebook/Twitter

And more information !

Pinched off Twitter, via Pulse Magazine, (mag for UK GP's)

Article, New York Times - Johnson & Johnson Vaccine

News

via GHIC Social Media

via GHIC Social Media

Advice re DVTs, Hughes Syndrome

Pfizer Vaccinated with APS/Gene Mutations & Pulmonary Embolisms

I am positive for about 4 years now. Can this disease suddenly attack your whole body?

Hello from me

Newly Diagnosed APS.

Muscle spasms

Astra Zeneca Vaccine

Help

Oxford vaccination

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