Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for November 2023

microbleeds

Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked...

Hi I wondered if any of you have had micro bleeds in the brain and had to theref...

•5 months ago

What doesn't mix well with Coumadin?

Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take...

Hello, my name is Chris from french part of Canada, please forgive my poor Engli...

Corporal_Canada

•5 months ago

The Mind Body Connection with APS and any autoimmune disease

Hi again, I’m an Osteopath, Naturopath, Medical Acupuncturist etc and it took 20 years for me to get an APS diagnosis. I was initially diagnosed as having...

Hi again, I’m an Osteopath, Naturopath, Medical Acupuncturist etc and it took 20...

•5 months ago

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APS/POTS

another issue I would like to raise. Do the people with POTS also suffer from chronic venous insufficiency due to a DVT? Thank you for sharing 🙏🏻

another issue I would like to raise. Do the people with POTS also suffer from ch...

•5 months ago

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APS/Pots

could you guys share is anyone else has APS and POTS combined ? Was POTS diagnosed before or After APS? Thank you

could you guys share is anyone else has APS and POTS combined ? Was POTS diagnos...

•5 months ago

This might help someone ?

Hi Everyone Just wanted to post some information that might be useful. I have followed 2 Md’s who have what we have what we have been blessed with. Both had...

Hi Everyone Just wanted to post some information that might be useful. I have f...

•5 months ago

Coming home

So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my...

So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming ba...

•5 months ago

night sweats

I got aps sticky blood I been to seen once in the last 8 years think they forgot about me seen I should be on 6 months that was 7half years ago everything ok...

I got aps sticky blood I been to seen once in the last 8 years think they forgo...

•5 months ago

Having a seriously bad year

As per the title, I’m having one hell of a year.. Last year I had awful pains in my right leg (so bad I could barely walk), so my Gp sent me for an MRI on my...

As per the title, I’m having one hell of a year.. Last year I had awful pains i...

•5 months ago

APS Symptoms

As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a...

As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromy...

•5 months ago

warafin and hairloss

hello- my daughter (12 years old) was recently diagnosed with APS - double confirmed- after a dvt in her leg that was luckily caught just in time. She is on...

hello- my daughter (12 years old) was recently diagnosed with APS - double confi...

FiguringThingsOut

•5 months ago

I’m still not convinced

Hi Don’t want to name and shame any medical professional on here but will tell you a story. I was diagnosed with Primary APS after a blood clot in my IVC...

Hi Don’t want to name and shame any medical professional on here but will tell...

Michaeljenkinson

•6 months ago

Change in range

Hi everyone hope you are all good I saw pharmacist today at St Thomas’ instead of my usual APS consultant not sure why. However she wanted to reduce my...

Hi everyone hope you are all good I saw pharmacist today at St Thomas’ instead ...

•6 months ago

Feliz em participar , fui diagnosticada com síndrome do intestino irritável ,e estou aqui pra ficar atualizada e saber mais sobre o assunto

Passei por muitos médicos e com dores e todos os sintomas que a sii nos fornece ,encontrei uma médica maravilhosa hoje consigo ficar longe dos sintomas e sou...

Passei por muitos médicos e com dores e todos os sintomas que a sii nos fornece...

•6 months ago