Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2019

Hello! I’m new here.

Hey I’m new here and I had a few questions. First let me give you some insight. I have been dealing with APS since April 2019 so I’m also new to APS. I’m 23...

Hey I’m new here and I had a few questions. First let me give you some insight. ...

•5 years ago

Nice to meet you.

Good morning, I'm new here never posted. I will do my best to introduce myself with out writing a novel. My name is Laura I'm 52 live in NW Pa. USA. I'm new...

Good morning, I'm new here never posted. I will do my best to introduce myself ...

•5 years ago

Help with Hughes/Aps and Symptoms

I have had a long battle with my health and was diagnosed with The big 3 By Prof Hughes (Lupus, sjrogens , Hughes) + Hashimoto's a while ago although he...

I have had a long battle with my health and was diagnosed with The big 3 By Prof...

•5 years ago

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Seeking doctors up to date on APS

Is there anyone here from the Geater Kansas City area? If so, do you have any Rheumatology and Cardiology recommendations?

Is there anyone here from the Geater Kansas City area? If so, do you have any Rh...

•5 years ago

APS - Foggy and confused.

I was diagnosed with APS 20+ years ago before then, and since I have suffered from pre-stroke conditions that resolve with Nitroglycerin. I have gone to every...

I was diagnosed with APS 20+ years ago before then, and since I have suffered fr...

•5 years ago

Bruising

Hello all, I was just wondering if I bruise weirdly or just like others with APS. If I knock myself somewhere sometimes I bruise right then and other times it...

Hello all, I was just wondering if I bruise weirdly or just like others with APS...

•5 years ago

Lupus Anticoagulant...?

Lupus anticoagulant - I’m trying to find out information but I’m only ever redirected to APS info pages. Has anyone got any recommendations for general...

Lupus anticoagulant - I’m trying to find out information but I’m only ever redir...

•5 years ago

Yet another appointment!

Getting a little nervous as I normally have an annual check with the lupus clinic at Guys and have no problem with that as they are wonderful. But having seen...

Getting a little nervous as I normally have an annual check with the lupus clini...

•5 years ago

Seven Key Recommendations for Managing Blood Clots

Gregory M. Weiss, M.D. October 15, 2019 Fifty percent of people with systemic lupus erythematosus (SLE) have anti-phospholipid antibody syndrome (APS), a...

Gregory M. Weiss, M.D. October 15, 2019 Fifty percent of people with systemic ...

Administrator•5 years ago

Has anyone with APLS HAD REOCCURRING CELLULITIS??

So I'm 33 yrs young and over the last year and a half I've had cellulitis 4 times!! Every time I've finished my antibiotics. It's always in my ankles /feet ....

So I'm 33 yrs young and over the last year and a half I've had cellulitis 4 time...

•5 years ago

High antibodies but Dr states I do not have APS

Hi I had a rheumatologist appointment last week and the Dr asked me various questions and then advised me that I do not have APS. I have had two blood tests,...

Hi I had a rheumatologist appointment last week and the Dr asked me various ques...

•5 years ago

To Fly or Not To Fly

Hi everyone and I hope you are all keeping as well as possible. Just a quick question . . . we have been lucky enough to have been invited to a wedding in...

Hi everyone and I hope you are all keeping as well as possible. Just a quick qu...

•5 years ago

Support stockings, c section

Hi everyone. I have a scheduled c-section next week after 6 weeks of total bed rest. I have been immobile due to Vasa Previa and bleeding since 22 weeks....

Hi everyone. I have a scheduled c-section next week after 6 weeks of total bed r...

•5 years ago

Back Pain

Has anyone had lower back pain problems. Not sure if it's related or not. Our hematologist here ( Cheyenne Wy ) told me there's nothing she can do for my APS...

Has anyone had lower back pain problems. Not sure if it's related or not. Our he...

•5 years ago

APS positive but won’t diagnose

Hello everyone, I hope you all are well. So I tested positive for Cardiolipin IGM twice...very highly elevated levels...however my rheumatologist has advised...

Hello everyone, I hope you all are well. So I tested positive for Cardiolipin IG...

•5 years ago

Funny turns

Hi guys , been feeling a little bit off lately , not sure if it’s a flare or menopause . Just get waves if feeling unwell , pains in my upper joints especially...

Hi guys , been feeling a little bit off lately , not sure if it’s a flare or men...

•5 years ago

Pregnancy and APS

Hi I am after some advise on anyone who has been pregnant with antiphospholipid syndrome. Can I ask how u felt during the pregnancy and if u suffered with...

Hi I am after some advise on anyone who has been pregnant with antiphospholipid ...

•5 years ago

Any one have...

Is there Any one have 20 to 30 years of time with aps syndrome on anticoagulant treatment ...with out LUPUS i.e my question is can we live 40 to 50 years with...

Is there Any one have 20 to 30 years of time with aps syndrome on anticoagulant ...

•5 years ago

Primary aps

Can antipospholipid turn in to lupus...

Can antipospholipid turn in to lupus...

•5 years ago

Thrombophlebitis

So last week I thought I must have banged my leg as I had a red tender area (felt like a bruise coming) but over the week it’s got bigger so decided I better...

So last week I thought I must have banged my leg as I had a red tender area (fel...

•5 years ago

Eye problems

Just Seen my normal eye check up and told them I had blurry vision in my left eye. Having been seen by a senior optometrist she said that as I had an eye...

Just Seen my normal eye check up and told them I had blurry vision in my left ey...

•5 years ago