Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for March 2021

Plavix & Plaquinil

Anyone using just Plavix and Plaquinil to manage their APS? Just curious. I can not deal with Warfarin. I have tried it for 4 months and my INR has not once...

Anyone using just Plavix and Plaquinil to manage their APS? Just curious. I can...

TouchofFrost

•4 years ago

24 Replies

Looking for practitioners in Chicago area

Hello! I am trying to find a rheumatologist well versed in APS in the Chicago area. We are located in the western suburbs Thanks!

Hello! I am trying to find a rheumatologist well versed in APS in the Chicago ar...

ChicagoCubs

•4 years ago

19 Replies

Quadrantanopia

Hi thank you all so much for all the support and advice I have received from you all regarding my truly awful GP (hanging up on me 5 times over the course of...

Hi thank you all so much for all the support and advice I have received from you...

mully

•4 years ago

14 Replies

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Covid vaccine

Hi I have been following the member's experience of their covid vaccination symptoms I am just wondering if the people that had a bad reaction could possibly...

Hi I have been following the member's experience of their covid vaccination sym...

mully

•4 years ago

12 Replies

Should I go for 2nd opinion?

I had a recent MRA done and it shows I have a partial clot in my transverse sinus vein and a small one in my sagittal sinus. These are from an old clot that I...

I had a recent MRA done and it shows I have a partial clot in my transverse sinu...

Youmi111

•4 years ago

32 Replies

Hrt

Hope someone can advise about hrt. Firstly to be clear I have not been diagnosed with antiphospholipid syndrome but during the course of investigations for my...

Hope someone can advise about hrt. Firstly to be clear I have not been diagnosed...

Brychni

•4 years ago

12 Replies

Need Sjogren's advice

Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your...

Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist ...

Piscesdreamer

•4 years ago

8 Replies

Aps Specialist near Daytona Beach FL?

UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna...

UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clini...

Piscesdreamer

•4 years ago

5 Replies

Lovanox and Pfizer vaccine

Quick question. I might have to go on lovanox (all depending if test shows clot). Is it ok to get my 2nd Pfizer vaccine shot?

Quick question. I might have to go on lovanox (all depending if test shows clot)...

Youmi111

•4 years ago

2 Replies

Astrazeneca??

Is there any risk for HS people with having the Astrazeneca vaccination? I had first and only mild reaction and judge risk of not being vaccinated as greater...

Is there any risk for HS people with having the Astrazeneca vaccination? I had f...

Muleteer

•4 years ago

5 Replies

Sinovac vaccine COVID-19

Hello guys, Just wanted to give you my report regarding 1st dose of "Coronavac" from Sinovac which I was supplied 3 days ago. My rheumatologist strongly...

Hello guys, Just wanted to give you my report regarding 1st dose of "Coronavac" ...

Ignacio182

•4 years ago

2 Replies

Occasional beer ?

Hi about to go on warfarin for life. Would Drinking 2 pints of beer once a week with my friends down the pub effect my levels? Any experience ? Thanks Kevin

Hi about to go on warfarin for life. Would Drinking 2 pints of beer once a week ...

Kev667

•4 years ago

14 Replies

Covid Vaccinations - St Thomas’ Hospital, London

Hello, I have a Covid vaccination tomorrow at St Thomas’ Hospital in London and am wondering whether I’m likely to be given Pfizer or AstraZenaca vaccine...

Hello, I have a Covid vaccination tomorrow at St Thomas’ Hospital in London and ...

Katariina

•4 years ago

3 Replies

INR Crazy times!

Go figure! Last week at 4.7 little higher than I need so as I self medicate and adjust dropped from 8mg 7mg alternate nights to 7mg for 7 days and arrive at...

Go figure! Last week at 4.7 little higher than I need so as I self medicate and ...

Greenmil3

•4 years ago

7 Replies

Covid Vaccination, Thrombosis and GHIC

Covid vaccination, thrombosis and GHIC Arvind Kaul Consultant Rheumatologist, St. George’s Hospital, London and Medical Expert for GHIC March 14th, 2021 What...

Covid vaccination, thrombosis and GHIC Arvind Kaul Consultant Rheumatologist, St...

MaryF

Administrator•4 years ago

9 Replies

What are your thought or experience?

I believe 1 clotting event due to this vaccine is one too many. What’s you experience of it? https://f7td5.app.goo.gl/RQuEoi

I believe 1 clotting event due to this vaccine is one too many. What’s you exper...

Evette123

•4 years ago

16 Replies

Ny side for APS i Skandinavia

Hei, har akkurat opprettet en gruppe for APS i Skandinavia. Har du lyst og behov for å kommuniserer på Svensk, Norsk eller Dansk kan det være noe for deg?...

Hei, har akkurat opprettet en gruppe for APS i Skandinavia. Har du lyst og behov...

Jonr

•4 years ago

8 Replies

Research re COVID and APLS

Somewhere on the Health Unlocked site I read this research and my doc would like to see it but I can't find it. Can anyone help? I know its early days but...

Somewhere on the Health Unlocked site I read this research and my doc would like...

rockcats4

•4 years ago

2 Replies

warfarin dose advice

Hi I've written here before about how when I changed GP (after a house move) My GP refused to reinstate my prescription for warfarin which I have taken for...

Hi I've written here before about how when I changed GP (after a house move) My...

mully

•4 years ago

13 Replies

Promising news

https://science.sciencemag.org/content/371/6534/eabc0956 Breakthrough study on APS drivers

https://science.sciencemag.org/content/371/6534/eabc0956 Breakthrough study on ...

Ignacio182

•4 years ago

5 Replies

Any thoughts on having a bleeding peptic ulcer and APS and Lupus Anticoagulant

I have just had a bleeding peptic ulcer cauterised and clipped. The doctor says it’s stonking! He has taken me off warfarin because of the danger of bleeding...

I have just had a bleeding peptic ulcer cauterised and clipped. The doctor says ...

Nutwood1

•4 years ago

7 Replies

Pain Pain Pain

I have Polymyalgia and I am on warfarin and a small amount of aspirin. I have been to a specialist and have had a year on decreasing prednisone. Can anyone...

I have Polymyalgia and I am on warfarin and a small amount of aspirin. I have b...

rockcats4

•4 years ago

7 Replies

March 11th, 3.30 pm Q&A with GHIC and Dr Arvind Kaul

If you head over to the GHIC Facebook page, you can put your questions under the post, on FACEBOOK, rather than here!...

If you head over to the GHIC Facebook page, you can put your questions under the...

MaryF

Administrator•4 years ago

2 Replies

The international Biomedicine magazine is going to feature Antiphospholipid antibody syndrome in their Special Issue.

"The international Biomedicine magazine is going to feature Antiphospholipid antibody syndrome in their *Special Issue*. Research Manuscripts are being...

"The international Biomedicine magazine is going to feature Antiphospholipid ant...

Piscesdreamer

•4 years ago

4 Replies

Covid Vaccine and APS

Good morning, I was wonder if getting the Covid Vaccine will also prevent clots from Covid? I know with the vaccine, you are supposed to have a more mild...

Good morning, I was wonder if getting the Covid Vaccine will also prevent clots...

APS4EVER

•4 years ago

6 Replies

Advice, please

HI , apologies this is rather complicated, in In 2002 I was diagnosed by Dr D'cruz (after my mother paid for me to see him privately) with seronegative APS and...

HI , apologies this is rather complicated, in In 2002 I was diagnosed by Dr D'cr...

mully

•4 years ago

5 Replies

I am moving to the Woodlands in Texas anybody know a Doctor Who is good with Hughes syndrome

I am moving to the Woodlands in Texas anybody know a Doctor Who is good with Hughes syndrome Designer 16

I am moving to the Woodlands in Texas anybody know a Doctor Who is good with Hug...

designer16

•4 years ago

13 Replies

Covid vaccination for moderate risk (clinically vulnerable)

I am confused. The Government website in the UK where it says who should get the vaccine lists over 60 (I’m 50) clinically extremely vulnerable (nope) people...

I am confused. The Government website in the UK where it says who should get the...

Greenmil3

•4 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2021

Plavix & Plaquinil

Looking for practitioners in Chicago area

Quadrantanopia

Covid vaccine

Should I go for 2nd opinion?

Hrt

Need Sjogren's advice

Aps Specialist near Daytona Beach FL?

Lovanox and Pfizer vaccine

Astrazeneca??

Sinovac vaccine COVID-19

Occasional beer ?

Covid Vaccinations - St Thomas’ Hospital, London

INR Crazy times!

Covid Vaccination, Thrombosis and GHIC

What are your thought or experience?

Ny side for APS i Skandinavia

Research re COVID and APLS

warfarin dose advice

Promising news

Any thoughts on having a bleeding peptic ulcer and APS and Lupus Anticoagulant

Pain Pain Pain

March 11th, 3.30 pm Q&A with GHIC and Dr Arvind Kaul

The international Biomedicine magazine is going to feature Antiphospholipid antibody syndrome in their Special Issue.

Covid Vaccine and APS

Advice, please

I am moving to the Woodlands in Texas anybody know a Doctor Who is good with Hughes syndrome

Covid vaccination for moderate risk (clinically vulnerable)

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