Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,348 members • 10,536 posts

All posts for March 2012

Swollen fingers

Hi I wrote on here a month ago about getting swollen fingers, and there seemed to be a few people on here suffering from the same thing. So why is it when I...

Hi I wrote on here a month ago about getting swollen fingers, and there seemed t...

Debs18

•12 years ago

6 Replies

I feel dreadful!

Almost two years after moving 1500 miles, and having to find new doctors, two months ago I finally got into a rhematlogist. It is unbelievable that in the area...

Almost two years after moving 1500 miles, and having to find new doctors, two mo...

BJF325

•12 years ago

9 Replies

It's really a small world!!

Last night I was in London for a concert- Black Veil Brides... Think Kiss back in the 70s when they were young and wild and all made up!! Well I went outside...

Last night I was in London for a concert- Black Veil Brides... Think Kiss back i...

Hidden

•12 years ago

3 Replies

Want to take advantage of all our features? Just log in!

I know I have mentioned this before in passing

However with it being the holidays. I wanted to bring up a couple of petitions which need vital support. Some of us may have thyroid issues or know other...

However with it being the holidays. I wanted to bring up a couple of petitions ...

MaryF

Administrator•12 years ago

2 Replies

Any other men with APS?

Hi, my name is Sam I am 42 years old and live in Cornwall with my wife and 13 year old son. I was diagnosed in 2011 after suffering a huge PE at the beginning...

Hi, my name is Sam I am 42 years old and live in Cornwall with my wife and 13 ye...

Frank004

•12 years ago

14 Replies

Anyone out there know anything about the relationship of Hughes with Guillian-Barre syndrome?

My daughter has symptoms that also relate to Guillian-Barre Syndrome and was wondering if there is any co-relation between them?

My daughter has symptoms that also relate to Guillian-Barre Syndrome and was won...

WayneL

•12 years ago

3 Replies

Auto immune and Rh neg blood types

Hi folks I have been reading some stuff about Rh neg blood types being more disposed towards auto immune disorders, so may I ask who of you out there have...

Hi folks I have been reading some stuff about Rh neg blood types being more dis...

CarolBSL

•12 years ago

63 Replies

APS/Hughes and cancer

Just curious if you or anyone you know has had any correlation with APS and cancer?

Just curious if you or anyone you know has had any correlation with APS and canc...

pumpkincake

•12 years ago

7 Replies

Will an MRI of the pelvic area reveal the tiny micro-clots which some suspect of causing arthritis-like joint pain in Hughes patients?

GinaD

•12 years ago

3 Replies

I AM ACTIVE DUTY ARMY RECENTLY DIAGNOISED WITH APS.DUE TO ME STANDING ON MY HEAD DEMANDING BLOOD TEST DUE TO DVT AND COUPLE MISCARRIAGES AND

OTHER SYMPTOMS.NOW I AM HAVING STROKE LIKE SYMPTOMS WEAKNESS AND WHEN THE DOCTORS DO NOT SEE ANYTHING ON A CT OR MRI THEY THINK I AM MALINGERING.WHAT IS GOING...

OTHER SYMPTOMS.NOW I AM HAVING STROKE LIKE SYMPTOMS WEAKNESS AND WHEN THE DOCTOR...

MALINGER1

•12 years ago

10 Replies

good reason to follow your paper work ????????????????

i just went thru the hole problem of believing in my docs , actually that has not changed, at least not to much , my problem is that they dont talk to much at...

i just went thru the hole problem of believing in my docs , actually that has n...

jetjetjet

•12 years ago

7 Replies

Please see question below. Sorry i wasnt sur ehow to enter this

Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss...

Hi Everyone, I havent written in a while. I am having a terrible time with my gu...

lovemyheart

•12 years ago

2 Replies

When you say you know you clot, how do you know, what are the symptoms and when to go to doctors, and what can they do?

Just worried about my left calf, its a bit swollen and I had a fall lately that resulted in a bruise on my left thigh. Left calf a bit sensitive to the touch....

Just worried about my left calf, its a bit swollen and I had a fall lately that ...

Sarita

•12 years ago

3 Replies

Re: Friday and SuziePaws and Corby Radio

Via the internet... we should be all able to listen live via here, on Friday, just give us a rough idea on times. http://www.corbyradio.com/ Love...

Via the internet... we should be all able to listen live via here, on Friday, ju...

MaryF

Administrator•12 years ago

6 Replies

Corby radio!!!!

Hi all, Just letting you know I am travelling down to Corby today & I'm being interviewed on Corby radio on Friday!!!!! I hope I dont let you down......I've...

Hi all, Just letting you know I am travelling down to Corby today & I'm being i...

Suzypawz

•12 years ago

49 Replies

I want to cry

It really helps me to vent all of these things to you all...as you know how all of this feels. I am crying. Went to the doc today after a month of not...

It really helps me to vent all of these things to you all...as you know how all ...

pumpkincake

•12 years ago

26 Replies

Coconut Oil

Does anyone take Coconut Oil to help with your memory? This was recammended to me. I might be helping, but then it my be all in my head. It is an experimental...

Does anyone take Coconut Oil to help with your memory? This was recammended to m...

Hidden

•12 years ago

8 Replies

International Congress Antiphospholipid Galveston 2011?

The International Congress Antiphospholipid Galveston 2011 recommends INR target 2-3? Is this right? I looked everywhere on the web to find the report and...

The International Congress Antiphospholipid Galveston 2011 recommends INR targe...

Danimgw

•12 years ago

8 Replies

Now I'm told that my INR has to be between 2-3

Hello I was in Madrid last week to see my specialist in Hospital La Paz. He told me that because I'm on warfarine and aspirin I should lower my INR to...

Hello I was in Madrid last week to see my specialist in Hospital La Paz. H...

Danimgw

•12 years ago

6 Replies

plz help

i have permanent damage 2 my veins in my legs due 2 clots there ......... wat does this mean any1 knw

i have permanent damage 2 my veins in my legs due 2 clots there ......... wat do...

rach1081985

•12 years ago

6 Replies

Great News

The National Migraine Centre is now on HealthUnlocked. I know a lot of us have headaches/migraines due to Hughes Syndrome and Lupus... however I have many many...

The National Migraine Centre is now on HealthUnlocked. I know a lot of us have h...

MaryF

Administrator•12 years ago

7 Replies

why is it so hard to find a support group

have tried searching for local support group and am finding it almost impossible ...have of the net searches are online groups or you have to join and pay...

have tried searching for local support group and am finding it almost impossible...

lollierai

•12 years ago

12 Replies

How do you increase ferritin levels without messing up INR?

I have just been told that I am borderline anaemic and that my ferritin levels are extremely low at 8 with the range being 12 - 291! I also have no idea why I...

I have just been told that I am borderline anaemic and that my ferritin levels a...

tiredmum

•12 years ago

12 Replies

Roche Coaguchek XS....looking for this online

Does anyone know of a website besides Roche to purchase the Coaguchek new or used???

Does anyone know of a website besides Roche to purchase the Coaguchek new or use...

pumpkincake

•12 years ago

4 Replies

Dementure

Sorry tired tonight, hope this makes sence. This morning unless I was dreaming it said their was going to be more money for research into Dementure. I hope...

Sorry tired tonight, hope this makes sence. This morning unless I was dreaming ...

daisyd

•12 years ago

5 Replies

Benlysta - what do you know?

I understand there is a new drug available for auto-immune diseases called Benlysta and it's only available in the US. Does anyone know more information on...

I understand there is a new drug available for auto-immune diseases called Benly...

Nat1969

•12 years ago

5 Replies

Complete loss of feeling in a thumb?

Just curious if many have experience with complete temporary loss of feeling in thumbs or fingers. I have Raynauds but it didnt see to be that at all as...

Just curious if many have experience with complete temporary loss of feeling in ...

pumpkincake

•12 years ago

2 Replies

Do you know of a painkiller that will work for me?

I experience severe pain in my joints, especially my hands, elbows and knees. I use the following medication: Buprenorfin 20 mikrog/time. It does not help...

I experience severe pain in my joints, especially my hands, elbows and knees. I ...

gruva

•12 years ago

7 Replies

Cancelled appointments at St Thoms

I promised to say what happened about my letter to St Thoms querying my change of appointment from tomorrow (27th March) to a date in November. It seems the...

I promised to say what happened about my letter to St Thoms querying my change o...

tim47

•12 years ago

3 Replies

I feel awful

I have hughes syndrome. Does anyone else feel very tired and have a lot of migraines. I need to get back to work and i cant go back if i continue to feel like...

I have hughes syndrome. Does anyone else feel very tired and have a lot of migra...

tandtsmith

•12 years ago

23 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2012

Swollen fingers

I feel dreadful!

It's really a small world!!

I know I have mentioned this before in passing

Any other men with APS?

Anyone out there know anything about the relationship of Hughes with Guillian-Barre syndrome?

Auto immune and Rh neg blood types

APS/Hughes and cancer

Will an MRI of the pelvic area reveal the tiny micro-clots which some suspect of causing arthritis-like joint pain in Hughes patients?

I AM ACTIVE DUTY ARMY RECENTLY DIAGNOISED WITH APS.DUE TO ME STANDING ON MY HEAD DEMANDING BLOOD TEST DUE TO DVT AND COUPLE MISCARRIAGES AND

good reason to follow your paper work ????????????????

Please see question below. Sorry i wasnt sur ehow to enter this

When you say you know you clot, how do you know, what are the symptoms and when to go to doctors, and what can they do?

Re: Friday and SuziePaws and Corby Radio

Corby radio!!!!

I want to cry

Coconut Oil

International Congress Antiphospholipid Galveston 2011?

Now I'm told that my INR has to be between 2-3

plz help

Great News

why is it so hard to find a support group

How do you increase ferritin levels without messing up INR?

Roche Coaguchek XS....looking for this online

Dementure

Benlysta - what do you know?

Complete loss of feeling in a thumb?

Do you know of a painkiller that will work for me?

Cancelled appointments at St Thoms

I feel awful

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