Hi all. I'm new to all this. I have coeliac s and hypothyroidism and lots of other symptoms. My sister has very similar symptoms to me and is under the care of St Thomas's. I discovered that I had a positive lupus blood result in my notes that no-one told me about, so, after a big fight with my now ex-GP, managed to get a referral to St Tomas's myself. I haven't got lupus, but I do seem to have Hughes syndrome. My bloods were fairly borderline but have been positive twice for anti phospholipid antibodies (is that the right term?). I've never had a clot but have a history of migraine and 3 miscarriages. The consultant has suggested I take 75mg aspirin and has discharged me. I got his letter today and have read a bit about Hughes syndrome today. I think it could explain a lot of my remaining symptoms (foggy brain, pins and needles, depression, forgetfulness etc) and it now concerns me that I've been discharged back to my GP, who probably doesn't know much about the syndrome and what symptoms it can cause, so how is he going to be able to monitor my meds effectively? Should I be insisting on seeing another specialist to monitor me? Nothing has been explained to me, only what I've read myself. Many thanks!
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