Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for October 2011

Advice on Cold Medicines?

I have an annoying cold with cough. I spoke to a pharmacist this morning who said it was safe to take 'Day Nurse' and also 'Robitussin' cough medicine. Both...

I have an annoying cold with cough. I spoke to a pharmacist this morning who sai...

StuartD

•12 years ago

16 Replies

APS You Tube

I was searching You Tube for APS info and i have already posted the HSF Youtube on the Foundations Blog have a look but found this one which i thought might be...

I was searching You Tube for APS info and i have already posted the HSF Youtube ...

paddyandlin

•12 years ago

3 Replies

Halloween (Just a bit of Fun)

Hi All, I thought we would just have a bit of fun as it is Halloween we did a Kids party Yesrtday and went trick and treating as well kids looked fab!!!...

Hi All, I thought we would just have a bit of fun as it is Halloween we did a...

paddyandlin

•12 years ago

11 Replies

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INR

Anyone else feel worse when their INR drops below the required range? I do all the time but get dismissive looks and comments from those who should know!

Anyone else feel worse when their INR drops below the required range? I do all t...

LesJames

•12 years ago

29 Replies

Antiphospholipid Syndrome or Sneddon Syndrome

While doing some research on APS I've come across another condition called Sneddon Syndrome, the symptoms appear to be the same, treatment appears to be the...

While doing some research on APS I've come across another condition called Snedd...

Andy_A

•12 years ago

9 Replies

Waking up with joints hurting?

I have a bit of a grotty knee anyway but when that is playing up it is only that knee. The last couple of days I've woken up with both knees, both ankles, both...

I have a bit of a grotty knee anyway but when that is playing up it is only that...

travelnut

•12 years ago

21 Replies

Memory problems

Is anyone having treatment for memory problems or had some sort of assessment to ascertain how much memory has been lost (not a brain scan though)

Is anyone having treatment for memory problems or had some sort of assessment to...

TJSTICKYBLOOD

•13 years ago

24 Replies

Plaquenil at last!!!!

Hi all Finally, been to rheumy nurses clinic, she was lovely. Went through all details about the plaq, checked my eyes etc. Did bloods and if results ok on...

Hi all Finally, been to rheumy nurses clinic, she was lovely. Went through all ...

jessielou

•13 years ago

17 Replies

Inr & flu jab....part 2!

I havn't managed to get through to the docs at St. Thomas' yet to ask about agreeing with my doc' to keep my inr to 3 - 3.5 , so he doesn't have to worry about...

I havn't managed to get through to the docs at St. Thomas' yet to ask about agre...

Suzypawz

•13 years ago

4 Replies

Hi Everyone, and a few questions...

Hi everyone, I'm new here, and to be honest I'm a bit lost with the whole APS thing. I've been ill since 2008 with many varied and unexplained symptoms,...

Hi everyone, I'm new here, and to be honest I'm a bit lost with the whole APS...

Andy_A

•13 years ago

15 Replies

Welcome New members and a bit of support from you members.

Hi I would like to welcome all the new members to the group and hope they find this site useful. I alkso wanted to ask people if they could do 3 things...

Hi I would like to welcome all the new members to the group and hope they find t...

paddyandlin

•13 years ago

2 Replies

St Thomas hospital appointments

Anyone else had their appointments put off for seven months? I usually go every July but this years was cancelled and I was given another one for February!...

Anyone else had their appointments put off for seven months? I usually go every...

panda60

•13 years ago

5 Replies

Bit of rant... sorry

Hi all Sorry I have been away for so long, I've been visiting hospital, donating blood for research and generally trying to make the place more...

Hi all Sorry I have been away for so long, I've been visiting hospita...

Hidden

•13 years ago

5 Replies

Inr & flu jab.

Pic' to start your day with a smile :) Been to docs today & had my inr checked, it's still only 2.1!! On 7 & 8 warfarin still & another appointment...

Pic' to start your day with a smile :) Been to docs today & had my inr c...

Suzypawz

•13 years ago

17 Replies

Constant back and leg pain - a symptom of APS?

Hi everyone I havent posted much on the site but do read with interest posts from others. I have Factor V Leiden and Protein S deficiency and have had...

Hi everyone I havent posted much on the site but do read with interest posts ...

Karen_Probyn

•13 years ago

6 Replies

Switching from Tinzaparin to Fondaparinux

Hi all, I've been happily (well relatively happily!) injecting LMW heparin in the form of Tinzaparin twice daily for 10 years. Saw Prof Beverly Hunt last week...

Hi all, I've been happily (well relatively happily!) injecting LMW heparin in t...

Womanfriday

•13 years ago

8 Replies

Concerned

I am not really sure how to put this without upsetting or offending anyone, but I am really concerned about the content of a blog/post recently written....

I am not really sure how to put this without upsetting or offending anyone, but ...

AnnieAxVale

•13 years ago

5 Replies

Can you have Hughes Syndrome AND factor XI deficiency?

bltblt

•13 years ago

5 Replies

How many in your family have APS and/or other autoimmune issues?

You hear it all the time, is APS hereditary or not..... Then you hear from patients who have several family members with APS or other autoimmune diseases....

You hear it all the time, is APS hereditary or not..... Then you hear from ...

Hidden

•13 years ago

11 Replies

Update, Good news on plaquenil!!!! :-) :-)

Hi all Rheumy dept at local hospital has agreed to shared care with gp. Appointment in next 2 weeks, eyecheck then go-ahead with plaquenil treatment!! Get...

Hi all Rheumy dept at local hospital has agreed to shared care with gp. Appoint...

jessielou

•13 years ago

21 Replies

Negative Anticardiolipin but told I have APS

I had elevated anticardiolipin and whatever other test shows positive for APS. On my second set of tests the anticardiolipin were normal but the other test...

I had elevated anticardiolipin and whatever other test shows positive for APS. O...

Texasgal

•13 years ago

8 Replies

MIGRAINE TYPE HEADACHE - pounding, pressure

Hello Well for the last two weeks, my head has been pounding like made pressure on top of head, behind ears, lymph node area, and because I went for usual...

Hello Well for the last two weeks, my head has been pounding like made pressu...

daisy11

•13 years ago

1 Reply

Yet another hospital appt-really stressed!

After a 5 day stay in hospital where everybody was wondering if i actually had APS or not, and not having access to my previous hospital's records I was...

After a 5 day stay in hospital where everybody was wondering if i actually had A...

emmaj

•13 years ago

13 Replies

My own experiences, treatment regime and results (this is a long one)

Having had virtually all the symptoms for APS and with nightly injections of Heparin relieving the symptoms you would have thought that I would have been...

Having had virtually all the symptoms for APS and with nightly injections of Hep...

Hidden

•13 years ago

23 Replies

Issues with eyes

Does any one have issues with their eyes? From time to time I see flashing of red and my eyes starts to jump also I mistakenly see things or I just blink...

Does any one have issues with their eyes? From time to time I see flashing of...

Stannington-lad

•13 years ago

22 Replies

Can anyone tell me if APS is hereditary. I was diagnosed and would like to know if my daughter could have it.

Sue2803

•13 years ago

12 Replies

I

I have all the symptoms of APS including 2 positve ACL's 22 and 19 and the specialist will not diagnose me. I have been diagnosed with MS at the age of 57. A...

I have all the symptoms of APS including 2 positve ACL's 22 and 19 and the speci...

whynotme

•13 years ago

21 Replies

Memory clinic in London.

Off tomorrow for a trip to London to the memory clinic. 2nd. time I've been, they want to do further tests plus I would like them to get to the bottom of...

Off tomorrow for a trip to London to the memory clinic. 2nd. time I've been,...

Suzypawz

•13 years ago

16 Replies

APS AND HIGH BLOOD PRESSURE

Hello Well for the last few days, I have had really bad headache which is throbbing and then goes into my ears, and lymp nodes, even bending causes pain....

Hello Well for the last few days, I have had really bad headache which is thr...

daisy11

•13 years ago

7 Replies

Monthly London support group meeting

This month's meeting is being held as usual at the AMT coffee shop at St Thomas' Hospital on this Thursday 20th October. The support group is run voluntarily...

This month's meeting is being held as usual at the AMT coffee shop at St Thomas'...

Hidden

•13 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2011

Advice on Cold Medicines?

APS You Tube

Halloween (Just a bit of Fun)

INR

Antiphospholipid Syndrome or Sneddon Syndrome

Waking up with joints hurting?

Memory problems

Plaquenil at last!!!!

Inr & flu jab....part 2!

Hi Everyone, and a few questions...

Welcome New members and a bit of support from you members.

St Thomas hospital appointments

Bit of rant... sorry

Inr & flu jab.

Constant back and leg pain - a symptom of APS?

Switching from Tinzaparin to Fondaparinux

Concerned

Can you have Hughes Syndrome AND factor XI deficiency?

How many in your family have APS and/or other autoimmune issues?

Update, Good news on plaquenil!!!! :-) :-)

Negative Anticardiolipin but told I have APS

MIGRAINE TYPE HEADACHE - pounding, pressure

Yet another hospital appt-really stressed!

My own experiences, treatment regime and results (this is a long one)

Issues with eyes

Can anyone tell me if APS is hereditary. I was diagnosed and would like to know if my daughter could have it.

I

Memory clinic in London.

APS AND HIGH BLOOD PRESSURE

Monthly London support group meeting

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