Well my "new" neuro had me go through yet another 24 hour EEG because of my seizure symptoms. I wasn't sure why b/c I had been through about 5 different types of EEGs already by other neuros only to be told they were normal. Guess what? This one showed a few "sharp waves" during the times I indicated in my diary that I was having symptoms. Apparently this is can happen in someone without seizures. I was so surprised that she said this, b/c if I'm having seizure symptoms w/sharp waves, wouldn't this mean I more than likely have a form of epilepsy. She said she didn't want to put me on epilepsy meds b/c they cause many side effects. I then asked her if I should have a PET scan (which can apparently also diagnose seizures and why you may be having them - blood flow to brain, tissue damage, etc). She asked me why I asked her about a PET scan, and I told her. She said she wouldn't be able to do that b/c in a word she wouldn't be able to justify a reason for one. But, that I could seek a 2nd opinion from an epilepsy specialist - she recommended 2 people I had already seen. She seemed surprised that I already saw them - I thought I told her that in an earlier appt. I am desperately seeking to find someone to help me figure this out and not a dr. to pass me off to someone else. I've seen 4 neuros before her. I truly believe this is not just a symptom of the APS, so my search continues. I would appreciate any ideas you may have. Happy New Year to you all!
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