Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for November 2018

Buying a coagucheck

Hi all. Lost passwords etc so not been on here. I'm still on weekly vein draws. 3 years now. Found a different gp in my practice who has dine the free gp...

Hi all. Lost passwords etc so not been on here. I'm still on weekly vein draws. ...

Cinn987

•5 years ago

12 Replies

the ball is rolling.

I saw my GP today, she is happy to write to the consultant although she is doubtful that he will agree to test me again as the results 5 years ago were...

I saw my GP today, she is happy to write to the consultant although she is doubt...

pinkyandperky

•5 years ago

14 Replies

Lower back pain that might be caused by pelvic problems?

I have had some bothersome lower back pain accompanied with a pocket of localized swelling. After weeks of nursing it, I went to a PCP who said he’s never seen...

I have had some bothersome lower back pain accompanied with a pocket of localize...

Wellnessa

•5 years ago

4 Replies

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A magazine article from Australia

https://www.mamamia.com.au/what-is-antiphospholipid-syndrome/ MaryF

MaryF

Administrator•5 years ago

4 Replies

Anyone had a high Anti-CCP result? Skin problems?

I am not yet diagnosed with APS but one of my consultants has queried whether it might be the cause of a DVT diagnosed in August. When I see him again next...

I am not yet diagnosed with APS but one of my consultants has queried whether it...

OwensMum

•5 years ago

7 Replies

Some very good news:

Professor Graham Hughes receives this prestigious award:...

MaryF

Administrator•5 years ago

6 Replies

Happy birthday Prof

It’s that time of year again!! Don’t forget someone special has a birthday on 26th November! Professor Graham Hughes 💙 💙💙💙💙💙💙💙💙💙💙💙 I’m just...

It’s that time of year again!! Don’t forget someone special has a birthday on 2...

SuzanneJ

•5 years ago

4 Replies

Hereditary?

Hello, this is my first time posting. I was diagnosed with APS two years ago after a DVT. I was told by the hematologist it was not hereditary. My daughter who...

Hello, this is my first time posting. I was diagnosed with APS two years ago aft...

chrissybella

•5 years ago

11 Replies

Waking throughout the night with pins and needles or numb limbs

. . Is this a symptom of APS? Any thoughts/ experiences much appreciated x

zoedavies1

•5 years ago

15 Replies

Hiya .Is anybody on amitriptyline for migraine.

Hiya I need some help with advice about the amitriptyline .they gave me for my migraine and I don't know what to do about it because I know this drug is an...

Hiya I need some help with advice about the amitriptyline .they gave me for my m...

Adinina80

•5 years ago

19 Replies

What can I do??

I don’t know if anyone has been following my problem regarding my Hand/Arm. After 2yrs from the start of the problem with my arm and to see the anaesthetist...

I don’t know if anyone has been following my problem regarding my Hand/Arm. Afte...

Teanna

•5 years ago

15 Replies

Do I have autoimmunity?

I’ve just found out I have the biological criteria for APS on two antibodies. I have a blood test in 3 months to confirm. I had mono, psoriasis and a...

I’ve just found out I have the biological criteria for APS on two antibodies. I ...

Ama_blt

•5 years ago

1 Reply

Flying with APS

Has anyone experienced problems with APS while flying.

Ibfrostybrew

•5 years ago

9 Replies

APS info please

Hi there, I have had 3 miscarriages a premature baby a dvt and suffer with Phlebitis. I am always tired and my muscles are stiff and full of knots. I was...

Hi there, I have had 3 miscarriages a premature baby a dvt and suffer with Phleb...

pinkyandperky

•5 years ago

9 Replies

Question for those not on anti coagulants

hi, I saw the APS specialist today who is retesting me for APS but believes i might have Serro negative APS. He was talking about the different medications and...

hi, I saw the APS specialist today who is retesting me for APS but believes i mi...

Skatingonthinice

•5 years ago

12 Replies

Vitamin K

Hi I'm 33 yrs old and I live in the US and recently underwent tests for multiple miscarriages. I have one healthy little girl who will be 3 in January and had...

Hi I'm 33 yrs old and I live in the US and recently underwent tests for multiple...

Amanda1111

•5 years ago

8 Replies

Diagnosed with APS in 1998/99, on coumadin since 1996

I got a blood clot when I was 19. Doctors didn't know why, and put me on coumadin for 3 months. The symptoms improved, but then after the 3 months of treatment...

I got a blood clot when I was 19. Doctors didn't know why, and put me on coumadi...

craftymom77

•5 years ago

3 Replies

Blood clot

Sat here feeling rubbish awaiting blood results tomorrow, Dr thinking blood clot but I say highly unlikely as on warfarin and clopidogrel . This is a week old...

Sat here feeling rubbish awaiting blood results tomorrow, Dr thinking blood clot...

amy1808

•5 years ago

23 Replies

Good morning I have APS since 2007, I had two stokes. I also have lupus. I think my Lupus cause my stroke, Is normal have headaches a lot.

Headaches!!

sperling

•5 years ago

8 Replies

APS and leg pain

Anyone with intense leg pains?

ic23pt

•5 years ago

7 Replies

Flu Jab

Have any APS people had any reaction after having the flu jab this year?

Dot69

•6 years ago

17 Replies

Just more problems

Hi all well the last couple of months i have been having loss of mobility turns my head to the left . Even after my monthly back shots and them concentrating...

Hi all well the last couple of months i have been having loss of mobility turns ...

jetjetjet

•6 years ago

11 Replies

APS!

Hey Everyone! It's been a while since I've posted but I wanted to share something with you all. I have created a blog about my adventures of travelling and...

Hey Everyone! It's been a while since I've posted but I wanted to share somethin...

bethw

•6 years ago

22 Replies

HELP PLEASE

Hi all I’m after some advice please. Here’s my story.. I am now 45 years old and basically I had 3 normal pregnancies/normal births between 1995-2001. In 2013...

Hi all I’m after some advice please. Here’s my story.. I am now 45 years old and...

LSTP2018

•6 years ago

19 Replies

Geographical tongue

Hi just been diagnosed with geographical/fissure tongue - does anyone with APS have this?

Hi just been diagnosed with geographical/fissure tongue - does anyone with APS h...

NicBay

•6 years ago

24 Replies

Apixaban and surgery

A year ago I slipped on wet grass whilst trying to get my daughters dog back into our house! Unfortunately I broke my left humerus, and also managed to...

A year ago I slipped on wet grass whilst trying to get my daughters dog back int...

mariamoo1

•6 years ago

21 Replies

changing to warfarin.

Good morning, I need some advice/opinions, I am 51, had a stroke last year and have been on clopidogrel for the last 15 months and have been told that i need...

Good morning, I need some advice/opinions, I am 51, had a stroke last year and h...

sawman

•6 years ago

10 Replies

anyone near Indiana

new to all of this, are there any other APs patients, maybe in or near indiana?

new to all of this, are there any other APs patients, maybe in or near indiana?...

Molliesmom

•6 years ago

7 Replies

Trying to get a diagnosis

Hi, I am 19 and in May of this year suffered what’s believed to be a silent stroke. I then collapsed with slurred speech and the inability to move my right...

Hi, I am 19 and in May of this year suffered what’s believed to be a silent stro...

Skatingonthinice

•6 years ago

56 Replies

First heamatology appt

Just wondering if anyone has any knowledge or experience? I'm a 22 y/o female I've have a DVT and an unprovoked bi-lateral PE within the past year. I also...

Just wondering if anyone has any knowledge or experience? I'm a 22 y/o female I'...

Lorraine08

•6 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2018

Buying a coagucheck

the ball is rolling.

Lower back pain that might be caused by pelvic problems?

A magazine article from Australia

Anyone had a high Anti-CCP result? Skin problems?

Some very good news:

Happy birthday Prof

Hereditary?

Waking throughout the night with pins and needles or numb limbs

Hiya .Is anybody on amitriptyline for migraine.

What can I do??

Do I have autoimmunity?

Flying with APS

APS info please

Question for those not on anti coagulants

Vitamin K

Diagnosed with APS in 1998/99, on coumadin since 1996

Blood clot

Good morning I have APS since 2007, I had two stokes. I also have lupus. I think my Lupus cause my stroke, Is normal have headaches a lot.

APS and leg pain

Flu Jab

Just more problems

APS!

HELP PLEASE

Geographical tongue

Apixaban and surgery

changing to warfarin.

anyone near Indiana

Trying to get a diagnosis

First heamatology appt

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