Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for October 2012

APS, Clexane Injections and Flying Long-Haul

All, taking two long haul flights tomorrow for work (total travel time w/conections 20 hours). INR is finally at 2.7 (struggled for a month and a half to get...

All, taking two long haul flights tomorrow for work (total travel time w/conecti...

1818hst

•12 years ago

11 Replies

aps hospital

hello!! can any one tell me how do i find the closest hospital that has a aps specialist, as mine realy dont know much more than my gp, (which is not a lot ,...

hello!! can any one tell me how do i find the closest hospital that has a aps sp...

daftdog

•12 years ago

8 Replies

vitamin k

hi has anyone had a reaction to vitamin k . last thursday went for my inr check at the clinic my inr was 11.1 which is unusual for me its always be low so they...

hi has anyone had a reaction to vitamin k . last thursday went for my inr check ...

shell64

•12 years ago

13 Replies

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Inr ?? What it all means.

Hi. I have an appointment at Walton to see my consultant who was the one who sent my tests off to a APS specialist but what he hasn't explained to me yet is...

Hi. I have an appointment at Walton to see my consultant who was the one who sen...

Missdaisy

•12 years ago

2 Replies

Restless Leg Syndrome.

I know a few of you have mentioned before about restless legs? Here was one post in the question section only back in Oct':...

I know a few of you have mentioned before about restless legs? Here was one ...

Suzypawz

•12 years ago

9 Replies

Dyslexia.....any connection?

I have been wondering for a while wether APS & Dyslexia has any connection? I've had problems with my words & concentrating long before any other signs...

I have been wondering for a while wether APS & Dyslexia has any connection? ...

Suzypawz

•12 years ago

11 Replies

Newbie!

Hi, I am new to this community and just wanted to say hello. I recently found out I had APS (Hughes syndrome) as a result of tests done following 3 m/c, and...

Hi, I am new to this community and just wanted to say hello. I recently found ou...

apsgirl

•12 years ago

12 Replies

Cholesterol and Weetabix

Just had my last cholesterol test result which had dropped to 4.7 from 5.2 GP was very pleased. The only change I have made is to change breakfast cereal to...

Just had my last cholesterol test result which had dropped to 4.7 from 5.2 GP w...

anje

•12 years ago

4 Replies

advice needed, a little scared and feeling like I am fighting this all on my own, I am turning into a sickly boring person on the new drug?

so why am I in pain with the leg which has had two d.v.t.s this year a different colour to my other leg, I am ment to be getting excited as I am going on my...

so why am I in pain with the leg which has had two d.v.t.s this year a different...

miley

•12 years ago

6 Replies

If you care please sign up to http://epetitions.direct.gov.uk/petitions/20968 we need 100k signatures urgently!. Please pass on :)

Please Govenment stop the massive programme. of piecemeal change until you review the impact of changes,taken together,on disabled and other vulnerable people...

Please Govenment stop the massive programme. of piecemeal change until you revi...

AndrewTheCarer

•12 years ago

3 Replies

Facebook link.

Here is a link to the post I did to let you know about the facebook page I started for any of you that didn't see it or are new :) Please pass this on to as...

Here is a link to the post I did to let you know about the facebook page I start...

Suzypawz

•12 years ago

1 Reply

any one know of a good welfare benefits solicitor that has worked for them , thanks

daftdog

•12 years ago

3 Replies

Exercise.

We are often asked about exercise & do we benifit from it at all or does it/would it make us worse?........ My answer is: I'm one of the ones...

We are often asked about exercise & do we benifit from it at all or does it/woul...

Suzypawz

•12 years ago

9 Replies

Document explaining symptoms of APS

Hi, I wonder if someone can please help me. I remember seeing a document somewhere that explained APS and the symptoms, designed to help you family,...

Hi, I wonder if someone can please help me. I remember seeing a document som...

RiaP

•12 years ago

2 Replies

INR very low to very high

hi i have just come back from my INR check my range is between 2-3 but its always been low at 1.5 so im on 19 mg of warfarin a day .but for the last 2 weeks...

hi i have just come back from my INR check my range is between 2-3 but its alwa...

shell64

•12 years ago

Be the first to reply

APS positive since 2008 & SLE & Discoid Lupus. In DIscoid Flare now. Still no treatment 4 Hughes - most debilitating of all. Am I alone ?

Hughes can be traced back to 5 miscarriages (20+ weeks) & stillbirth @ 32 weeks approx. Blessed with girl before & boy prior to a Hysterectony at 27. This was...

Hughes can be traced back to 5 miscarriages (20+ weeks) & stillbirth @ 32 weeks ...

fiona734

•12 years ago

14 Replies

Email notifications are currently not working:

There have been no email notifications since around midnight last night - hang on in there, if you are finding the site difficult or have not had a response...

There have been no email notifications since around midnight last night - hang o...

MaryF

Administrator•12 years ago

5 Replies

Article on The Telegraph this morning!

http://www.telegraph.co.uk/health/healthnews/9630434/Aspirin-could-prevent-thousands-of-miscarriages-leading-doctor.html Mary F

http://www.telegraph.co.uk/health/healthnews/9630434/Aspirin-could-prevent-thous...

MaryF

Administrator•12 years ago

12 Replies

exercise - a good or a bad thing???????

Does anybody know if exercising is good or bad with pain issues? Ive just taken up tai chi as i find anything else like yoga or pilates aggrevates the pain as...

Does anybody know if exercising is good or bad with pain issues? Ive just taken ...

emmaj

•12 years ago

8 Replies

Newbie wondering where I can give you more info?

Thanks so much for your input/answers. I don't even know what INR is/means? You have asked for more info about my APS which I'll gladly provide...where and...

Thanks so much for your input/answers. I don't even know what INR is/means? Yo...

pinkcollar

•12 years ago

4 Replies

I don't know whether to laugh or cry!

Some of you may remember that I posted a blog a couple of months ago re my agony of waiting to hear if I was to be awarded ESA or not. I had my medical on the...

Some of you may remember that I posted a blog a couple of months ago re my agony...

InSpain

•12 years ago

6 Replies

Help can I safely give lupus, APS suferer standard enteric asprin (one perday?)75mg untill seen @ StThomas's or local hospt.,GP not helpful!

6years+.Lupus treated never APS, Had many headaches+memory probs. Now mini fits + worse, lost vocal cohearance today during night as at 6am. May have got cold?...

6years+.Lupus treated never APS, Had many headaches+memory probs. Now mini fits ...

AndrewTheCarer

•12 years ago

4 Replies

INR Readings

All, do you find that the INR reading obtained from a lab tesst is comparable to the reading obtained from Roche's portable test kit? Or, is there a...

All, do you find that the INR reading obtained from a lab tesst is comparable to...

1818hst

•12 years ago

2 Replies

Hi, can anyone tell me if with this condition they suffer from muscle twitches particulary in the legs/calves and feet. Thanks

Missdaisy

•12 years ago

9 Replies

Mycophenalate

Hi Is anyone on mycophenalate and had problems with severe itching on face and neck and not so bad on the body. This is also accompanied by sores been on...

Hi Is anyone on mycophenalate and had problems with severe itching on face and...

Diane50

•12 years ago

3 Replies

Newbie with question

I am delighted to find this group and wondered if the majority of folks are on warfarin/other blood thinners? I am awaiting open-heart surgery, so am taking...

I am delighted to find this group and wondered if the majority of folks are on w...

pinkcollar

•12 years ago

6 Replies

Just read this very sad article on the daily mail.

http://www.dailymail.co.uk/health/article-2221858/Personal-shopper-desperate-mother-dies-IVF-treatment--weeks-pregnant.html

http://www.dailymail.co.uk/health/article-2221858/Personal-shopper-desperate-mot...

jennybee

•12 years ago

9 Replies

How long does it take for foods to affect your INR?

I have figured out that it takes 2-3 days for my body to respond to an increase in Coumadin, but I'm wondering how long it takes for foods to affect your INR....

I have figured out that it takes 2-3 days for my body to respond to an increase ...

iwantsimple

•12 years ago

4 Replies

Chest pain

Hi guys! Was just wondering what your experience with chest pain is. I have made quite a few trips to A&E with terrible crushing chest pain, nausea and...

Hi guys! Was just wondering what your experience with chest pain is. I have m...

Sophia

•12 years ago

9 Replies

Presumed lupus and thyroid swollen

Hey guys... I've been to my rheumatologist at the hospital and guess what? After a thorough assessment and appraisal on my blood test, he's came to the...

Hey guys... I've been to my rheumatologist at the hospital and guess what? After...

BrazilianBade

•12 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2012

APS, Clexane Injections and Flying Long-Haul

aps hospital

vitamin k

Inr ?? What it all means.

Restless Leg Syndrome.

Dyslexia.....any connection?

Newbie!

Cholesterol and Weetabix

advice needed, a little scared and feeling like I am fighting this all on my own, I am turning into a sickly boring person on the new drug?

If you care please sign up to http://epetitions.direct.gov.uk/petitions/20968 we need 100k signatures urgently!. Please pass on :)

Facebook link.

any one know of a good welfare benefits solicitor that has worked for them , thanks

Exercise.

Document explaining symptoms of APS

INR very low to very high

APS positive since 2008 & SLE & Discoid Lupus. In DIscoid Flare now. Still no treatment 4 Hughes - most debilitating of all. Am I alone ?

Email notifications are currently not working:

Article on The Telegraph this morning!

exercise - a good or a bad thing???????

Newbie wondering where I can give you more info?

I don't know whether to laugh or cry!

Help can I safely give lupus, APS suferer standard enteric asprin (one perday?)75mg untill seen @ StThomas's or local hospt.,GP not helpful!

INR Readings

Hi, can anyone tell me if with this condition they suffer from muscle twitches particulary in the legs/calves and feet. Thanks

Mycophenalate

Newbie with question

Just read this very sad article on the daily mail.

How long does it take for foods to affect your INR?

Chest pain

Presumed lupus and thyroid swollen

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