Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2011

Prof Hughes' June 2011 blog

Although he has retired from the NHS, Professor Graham Hughes still keeps very active and is an avid blogger :) Below is his blog from June 2011: - June...

Although he has retired from the NHS, Professor Graham Hughes still keeps very a...

•13 years ago

Life as it has been for me since I can remember.

My name is Jenn Gallegos. I am trying to find out if it would be worth my time and money to travel in order to see a specialist for Antiphospholiipid Syndrome....

My name is Jenn Gallegos. I am trying to find out if it would be worth my time a...

•13 years ago

Good news but the frustration continues

Today I went to see my very helpful rheumatologist, he thinks I and the children should be referred to St T's for that elusive referral, meanwhile my husband...

Today I went to see my very helpful rheumatologist, he thinks I and the children...

Administrator•13 years ago

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Another push for that elusive referral for myself and children

Having seen the right person privately for a couple of years now, and had my careful family research confirmed, for Hughes Syndrome, albeit seronegative, still...

Having seen the right person privately for a couple of years now, and had my car...

Administrator•13 years ago

Stabilising INR levels.?

Sorry I have another question. I have had 11 blood clots since 2005. Most of them in my abdomen. My INR levels have been all over the place....down as low as...

Sorry I have another question. I have had 11 blood clots since 2005. Most of the...

•13 years ago

Is there a specialist in Western Australia

•13 years ago

How can you receive adequate care, if all avenues are blocked!?

Having moved out of London ten year's ago, two illnesses diagnosed, after the birth of my youngest child, (sjgroens and psoriatic arthropathy),however...

Having moved out of London ten year's ago, two illnesses diagnosed, after the bi...

Administrator•13 years ago

A very difficult decision (children)

Hi again I have thought a lot about whether I should publish this as I am sure it is very controversial but I think it is an important view. So I caveat...

Hi again I have thought a lot about whether I should publish this as I am s...

•13 years ago

Do you know or are you a parent who has APS and do your children have aps?

•13 years ago

Booklets that are informative

Hi all, I am not sure how many people on the group are new to APS/Hughes Syndrome but i know there has been a number of booklets that have been written out...

Hi all, I am not sure how many people on the group are new to APS/Hughes Syndro...

•13 years ago

Most people already know my story.................

Hi, I haven't bothered to even disguise who I am as there are so many references to me on the net that being incognito seemed a bit daft! If anyone hasn't...

Hi, I haven't bothered to even disguise who I am as there are so many references...

•13 years ago

Anyone at the RiE and know who is replacing Dr Horne?

•13 years ago

Under 40 and have had DVT, PE, 6 x TIAs and 1 Stroke

As Kate requested I am happy to share my story. When I was in my mid-20s and on Marvelon contraceptive pill, I flew home from Barcelona and developed a...

As Kate requested I am happy to share my story. When I was in my mid-20s and o...

•13 years ago

Goodness me, I may have 'stage fright'

Goodness me, I may have 'stage fright' I am in my forties, and have muddled along bringing up children, helping with the family business and fending off...

Goodness me, I may have 'stage fright' I am in my forties, and have muddled alo...

Administrator•13 years ago

I'm Gemma and this is my story!

I have been a member of the Hughes Syndrome Foundation since I was first diagnosed with Hughes Syndrome and do consider myself one of the lucky ones, not to...

I have been a member of the Hughes Syndrome Foundation since I was first diagnos...

•13 years ago

Interesting Reading and Alternative Ideas

Hi As you may or may not have read - I have had a fairly traumatic time in tha last few years and recently I have started doing and reading some things...

Hi As you may or may not have read - I have had a fairly traumatic time i...

•13 years ago

Fertility and Hughes Syndrome

Hi my name is Hanna. Our journey starts with me meeting a wonderful man who had a vasectomy 8 years before meeting me. He is 12 years my senior. After...

Hi my name is Hanna. Our journey starts with me meeting a wonderful man ...

•13 years ago

What's in a name?

No doubt many of you will have been confused by the bewildering array of names for Hughes Syndrome ... Currently, buzzing around are: the antiphospholipid...

No doubt many of you will have been confused by the bewildering array of names f...

•13 years ago

Hughes Syndrome - Learning and support through information sharing

A very worthwhile meeting yesterday to explore information sharing, which I feel will become very valuable and supportive for current and future users. As a...

A very worthwhile meeting yesterday to explore information sharing, which I feel...

Administrator•13 years ago