Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for August 2018

NattoKinase and APS

Hey Guys, I am at a loss. Warfarin has stopped working for me on a regular dosage. Now I am on 5 tablets of warfarin (25mg) plus 2 aspirins and 2 clexanes a...

Hey Guys, I am at a loss. Warfarin has stopped working for me on a regular dosa...

badegirl

•6 years ago

10 Replies

Never stabilized on INR

Hi to Everyone, I hope you've all had a wonderful day!🌞 I'm keeping track everyday what I eat and I make sure I'm consistent with my K intake and my...

Hi to Everyone, I hope you've all had a wonderful day!🌞 I'm keeping track every...

hihannula

•6 years ago

25 Replies

APS and Pregnancy

Hello! I received some good advice here a few weeks ago after a late miscarriage and now have a bit more info - met with a great reproductive immunologist in...

Hello! I received some good advice here a few weeks ago after a late miscarriage...

Ashlos

•6 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Confused and looking for advice

I am new on this site. I am from Ottawa, Canada. In the past year, i have had a major health crisis that led me to leave my work. A hematologist had in the...

I am new on this site. I am from Ottawa, Canada. In the past year, i have had a...

NatMar

•6 years ago

4 Replies

Plummet INR

I have been on Warfarin for 5 years and my range is 2.5 -3.5 I normally run 3.-3.4. I was putting Vit K foods in my diet 2 days a week and I normally go...

I have been on Warfarin for 5 years and my range is 2.5 -3.5 I normally run 3.-3...

dikacie1234

•6 years ago

6 Replies

Hydroxychloroquine made so sick I had to stop confused why could I take it before & now I can’t

I had plaquenil compounded, pure hydroxychloroquine & rice flour. It made my muscles & nerves work better, but I had numbness & pins & needles in my arms &...

I had plaquenil compounded, pure hydroxychloroquine & rice flour. It made my mus...

designer16

•6 years ago

7 Replies

Need some help here

APS is not widely known here in Canada. My rheumatologist basically told me that until I have a stroke or clot not to worry about it. I have an appointment...

APS is not widely known here in Canada. My rheumatologist basically told me that...

turkeyfalcon

•6 years ago

8 Replies

Blood Test

Can someone please tell me what the 3 blood tests are for APS. I used to know but forgot. My friends daughter and grandaughter have it and she needs to get...

Can someone please tell me what the 3 blood tests are for APS. I used to know b...

Nanny23

•6 years ago

3 Replies

Bank Holiday Week-end

For those of you lucky enough to have time off over this Bank Holiday Week-end, have a lovely time if doing something more unusual or just hanging out with...

For those of you lucky enough to have time off over this Bank Holiday Week-end, ...

MaryF

Administrator•6 years ago

13 Replies

Plavix

My neurologist prescribed Plavix and two aspirins a day my primary doctor told me my blood it’s thinning out too much I’m bruising a lot my primary doctor...

My neurologist prescribed Plavix and two aspirins a day my primary doctor told ...

M65g

•6 years ago

1 Reply

A Happy Ending - story sent to me by Gina D

https://www.huffingtonpost.co.uk/entry/rainbow-baby-photo-ivf-needles_us_5b7c4265e4b0348585fb19c0 MaryF

https://www.huffingtonpost.co.uk/entry/rainbow-baby-photo-ivf-needles_us_5b7c426...

MaryF

Administrator•6 years ago

2 Replies

? Has anyone experienced extra pain when they started plaquenil

Hi, I started taking 100mg of compounded plaquenil. It helps by making my muscles fire up & work, but it also makes my entire body hurt. Has anyone else had...

Hi, I started taking 100mg of compounded plaquenil. It helps by making my muscl...

designer16

•6 years ago

9 Replies

Found this on social media

I think we can all relate to this.... after my hour of physio, plus two hours of skin treatments today, I did feel irritated briefly at the amount of time it...

I think we can all relate to this.... after my hour of physio, plus two hours of...

MaryF

Administrator•6 years ago

6 Replies

Tatoo

Just would like to know is it safe to get a little tatoo,would anyone know.

charlie007

•6 years ago

12 Replies

Antioxidants?

Hiya all. Today I’ve been told of a food supplement that is pure antioxidants and vitamins and no other supplements are needed eg vit D etc. I get totally...

Hiya all. Today I’ve been told of a food supplement that is pure antioxidants an...

Ageingfemale

•6 years ago

2 Replies

Advice on blood test result please

Good evening everyone, some advice if I may please. Diagnosed with APS as well as SLE in 2009. Treatment for APS was 75 mg Aspirin. Unfortunately I have...

Good evening everyone, some advice if I may please. Diagnosed with APS as well...

LupusKaren

•6 years ago

7 Replies

Maybe a random question!

Hiya everyone, hope the slightly cooler weather is making you feel better! This may be a random question but does anyone suffer with boils and or verrucas?...

Hiya everyone, hope the slightly cooler weather is making you feel better! This ...

Ageingfemale

•6 years ago

7 Replies

APS - Aspirin?

Does anyone know if taking aspirin will skew a test for APS? I need to take a 2nd Test in a month or so to confirm diagnosis and worried that it may alter...

Does anyone know if taking aspirin will skew a test for APS? I need to take a 2n...

Ashlos

•6 years ago

2 Replies

Just popping my head in!

As the title says-I'm nearly half way into my holiday and currently in Salzburg. The first week I arrived in Germany was hot as Hades-in the 35+ As I...

As the title says-I'm nearly half way into my holiday and currently in Salzburg....

Ozchick

•6 years ago

10 Replies

Anyone on warfarin with depression?

Hey guys, long time I haven't post anything here. Hope you're fine. So, I was taking Marcoumar and it was working beautifully. However, the pharmaceutical lab...

Hey guys, long time I haven't post anything here. Hope you're fine. So, I was ta...

badegirl

•6 years ago

13 Replies

APS and my Pregnancy. Advice?

Hi there, I’m a newbie and am so happy to have found you guys. We lost our baby girl a few months ago at 22 weeks I tested positive for antiphospholipid...

Hi there, I’m a newbie and am so happy to have found you guys. We lost our baby ...

lkn89

•6 years ago

11 Replies

Has anyone with APS ever had a bad reaction to Contrast Dye and if so what were your symptoms?

I have recently posted the same question on the SLE site but want to find out if anyone with APS has reacted badly or had an allergic reaction to Contrast Dye....

I have recently posted the same question on the SLE site but want to find out if...

leakeadea

•6 years ago

17 Replies

Further to my post re knee op of 3 months ago

Which is here /healthunlocked.com/hughes-syndrome/posts/137951927/im-scheduled-to-have-total-knee-replacement-in-both-knees-at-guys I saw my Aps consultant at...

Which is here /healthunlocked.com/hughes-syndrome/posts/137951927/im-scheduled-t...

Tucson

•6 years ago

8 Replies

Study of Allergy drugs for DVT’s

Saw this today concerning DVT’s and thought I would post it. https://www.medicalnewstoday.com/articles/318787.php

Saw this today concerning DVT’s and thought I would post it. https://www.medical...

dogtail

•6 years ago

15 Replies

Possible APS diagnosis after late miscarriage - Need advice

I tested positive (39) for Anticardiolipin (IGM) on one test. I know I'll need to take another in 12 weeks to have confirmation. I am to see a Hematologist...

I tested positive (39) for Anticardiolipin (IGM) on one test. I know I'll need t...

Ashlos

•6 years ago

6 Replies

Really unsettled by consultant change

After several years of trying I finally found a wonderful consultant - Dr Yousef Karim - at Frimley Park Hospital. He's now left the hospital and I've been...

After several years of trying I finally found a wonderful consultant - Dr Yousef...

phoenix77

•6 years ago

12 Replies

Problems

Why all of A SUDDEN CAN'T I ANSWER ANY POSTS ?? 401 POP'S UP AND SOMETHING WENT WRONG ?? AM I THE ONLY ONE HERE HAVING THIS PROBLEM ??

Why all of A SUDDEN CAN'T I ANSWER ANY POSTS ?? 401 POP'S UP AND SOMETHING W...

jetjetjet

•6 years ago

2 Replies

A tough patient journey - from The Washington Post

https://www.washingtonpost.com/news/parenting/wp/2018/07/31/i-thought-i-was-showing-my-kids-how-tough-i-was-instead-i-almost-died/?noredirect=on&utm_term=.c682a

https://www.washingtonpost.com/news/parenting/wp/2018/07/31/i-thought-i-was-show...

MaryF

Administrator•6 years ago

10 Replies

Looking for a GP with INR equipment in Croydon, Surrey, Uk

Does anyone live in the area and have a recommendation of a good GP with the equipment for INR testing? I'm on lifelong Warfarin for my APS and hoping to find...

Does anyone live in the area and have a recommendation of a good GP with the equ...

Laurafraser119

•6 years ago

5 Replies

Pregnancy

I'm looking for a little support, I was diagnosed with APS after a stillbirth at 28 weeks in FEB 2018. I am a triple positive for the disease and would really...

I'm looking for a little support, I was diagnosed with APS after a stillbirth at...

klr1186

•6 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2018

NattoKinase and APS

Never stabilized on INR

APS and Pregnancy

Confused and looking for advice

Plummet INR

Hydroxychloroquine made so sick I had to stop confused why could I take it before & now I can’t

Need some help here

Blood Test

Bank Holiday Week-end

Plavix

A Happy Ending - story sent to me by Gina D

? Has anyone experienced extra pain when they started plaquenil

Found this on social media

Tatoo

Antioxidants?

Advice on blood test result please

Maybe a random question!

APS - Aspirin?

Just popping my head in!

Anyone on warfarin with depression?

APS and my Pregnancy. Advice?

Has anyone with APS ever had a bad reaction to Contrast Dye and if so what were your symptoms?

Further to my post re knee op of 3 months ago

Study of Allergy drugs for DVT’s

Possible APS diagnosis after late miscarriage - Need advice

Really unsettled by consultant change

Problems

A tough patient journey - from The Washington Post

Looking for a GP with INR equipment in Croydon, Surrey, Uk

Pregnancy

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