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Hughes Syndrome APS Forum

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INR & Self Testing posts

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Persistently low INR

For the past 12 weeks or so, I've had a persistenly low INR, ranging from 1.2 to 1.6. (My ideal range, here in the U.S., is 3.0-3.5) . My INR consultant...

For the past 12 weeks or so, I've had a persistenly low INR, ranging from 1.2 to...

henyrjonze

•19 days ago

9 Replies

INR targets

Hi all, purely out of interest mainly can anyone explain on what basis 'our' INR target and range is set please? Mine is 3.5 target (range 3-4), was lower...

Hi all, purely out of interest mainly can anyone explain on what basis 'our' INR...

lloydyuk

•8 years ago

26 Replies

INR HELL.....

Had my inr taken at 6.4 previously 5.6 but its scary how it rises.... recently had op and went through bridging protocol to get Inr to 1ish but just can't get...

Had my inr taken at 6.4 previously 5.6 but its scary how it rises.... recently h...

loppylou68

•8 years ago

11 Replies

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Hughes Syndrome - stomach pain/vomit

Hi, my girlfriend has Hughes Syndrome. We live in Norway and the doctors here dont have much knowledge about her illness. Her INR is very low (1,4) and the...

Hi, my girlfriend has Hughes Syndrome. We live in Norway and the doctors here do...

Noshan

•8 years ago

8 Replies

Headaches

Hi all, I had an aortic valve replacement some 10 years ago and I've been on phenprogamma 3 (German equivalent to Warfarin) and always ok. I self test at home...

Hi all, I had an aortic valve replacement some 10 years ago and I've been on phe...

harrio

•9 years ago

7 Replies

Those on Warfarin... How often is your INR tested? Also, what are the other blood thinning options?

As much knowledge as I've acquired, I am still learning. Common sense tells me my INR should be in range all the time and tested at least multiple times week,...

As much knowledge as I've acquired, I am still learning. Common sense tells me ...

mylafont

•9 years ago

33 Replies

Guys visit

Hi all I had my appointment at Guys, another 18 vials of blood and deemed positive on Igm, betaglycoprotein and For the first time, Lupus Anticoagulant...

Hi all I had my appointment at Guys, another 18 vials of blood and deemed posit...

Fusch

•9 years ago

3 Replies

INR Level Low

I saw several posts that people feel dizzy, fatigue and just plain off when their INR levels are low or high. I told my wife a few days ago I was very fatigued...

I saw several posts that people feel dizzy, fatigue and just plain off when thei...

Hidden

•9 years ago

14 Replies

Help/advise

Hope everyone is well. Dont know if anyone can help, i had blood in my urine last week which was dark brown, rang NHS direct arranged appointment with out of...

Hope everyone is well. Dont know if anyone can help, i had blood in my urine la...

teadonna

•9 years ago

5 Replies

Eating before INR test

Hello I am new to Warafin and currently have a test every week. In the morning. I currently do not eat or drink anything prior (except water). However, I am...

Hello I am new to Warafin and currently have a test every week. In the morning....

ppy1310

•9 years ago

8 Replies

INR...Can you counter something you eat or drink on the same day?

If you eat or drink something you know will raise your INR, can you eat something on the same day that would lower it to cancel out the affects? and can you...

If you eat or drink something you know will raise your INR, can you eat somethin...

mylafont

•9 years ago

24 Replies

Bored with chasing my rheumatologist... Oh and happy new year!

So back on the 4th December I had an appointment with the aforementioned rheumatologist. He agreed that my INR range was too low and probably the cause of my...

So back on the 4th December I had an appointment with the aforementioned rheumat...

jojo-lianne

•9 years ago

3 Replies

INR

DN been taking my bloods again to day cos they got it wrong yesterday so the got it right to day just had a phone call from hospital they sed my INR is bad...

DN been taking my bloods again to day cos they got it wrong yesterday so the got...

Lesley61

•9 years ago

10 Replies

Can low INR cause depression/mood swings/anxiety?

Hi, with the help of my clinic nurse we are nearly on track with getting the correct warfarin dose to get my INR within its target range (2.5-3.5), however my...

Hi, with the help of my clinic nurse we are nearly on track with getting the cor...

Tess43

•9 years ago

17 Replies

INR win!

Hi everyone, After my appointment yesterday with my rhuematologist, I can finally go back to my GP and insist they change my INR range. The consultant is...

Hi everyone, After my appointment yesterday with my rhuematologist, I can fina...

jojo-lianne

•9 years ago

3 Replies

INR and feeling 'Well'

Hi , thought I would just note down for others a little 'episode' that is ongoing at the moment as it has struck me like running into a wall how my blood state...

Hi , thought I would just note down for others a little 'episode' that is ongoin...

CheddarAddict

•9 years ago

6 Replies

Just started warfarin

I've been on warfarin for 2 weeks 3 days and have a target INR of 3 following instructions from Professor Khamashta. I've had three blood tests, the first was...

I've been on warfarin for 2 weeks 3 days and have a target INR of 3 following in...

Tess43

•9 years ago

8 Replies

vaccination against Pneumonia and also Influenza

Hallo everybody, I took both Pneumonia and Flu-jabs. Do you know if the INR has a tendence to go up or down after them. I took them at the same time. Thank...

Hallo everybody, I took both Pneumonia and Flu-jabs. Do you know if the INR has...

Lure2

•9 years ago

11 Replies

APS and Flu Vaccinations

For info of all concerned, may I make you aware of the information that follows, that has just come out in the HSF newsletter today 27th October 2014. Hope it...

For info of all concerned, may I make you aware of the information that follows,...

tim47

•10 years ago

12 Replies

The INR Debate regarding APS

Having looked around a lot of the threads here and documentation surrounding APS, it strikes me that those suffering with APS report that they enjoy a better...

Having looked around a lot of the threads here and documentation surrounding APS...

MeerB

•10 years ago

14 Replies

High warfarin dosage but INR still crashing

Hi all, Has anyone else been in the situation where INR crashes every few days even though warfarin levels are being increased each time? INR is currently 1.1...

Hi all, Has anyone else been in the situation where INR crashes every few days e...

Squeezer

•10 years ago

17 Replies

What is the right range of INR for Hughes

I have been reading on here that so,e doctors recommend an INR between 3-3.5. Where can I get info to show my doctor.

I have been reading on here that so,e doctors recommend an INR between 3-3.5. Wh...

PGNYC

•10 years ago

6 Replies

Self-checking your INR

I have had it triple confirmed that I have APS with some other autoimmune condition (I believe SLE, and it fits). Spoke with my thrombotologist two weeks ago...

I have had it triple confirmed that I have APS with some other autoimmune condit...

Bonnie39

•10 years ago

13 Replies

Warfarin INR - too high but infrequent monitoring

Hi Folk, I'm just getting a little concerned that my local Anticoagulation Clinic is understaffed, under enormous pressure and is perhaps operating a policy...

Hi Folk, I'm just getting a little concerned that my local Anticoagulation Clin...

marco_mustard

•10 years ago

33 Replies

I am on 6 mg of Warfarin a day but take 7 mgs on Tuesdays only for the past three weeks. I noticed that I wake up with a sinus headache

the morning after I take the 7 mg. I thought it was a coincidence but it's consistently the morning after and it lasts through the day. I don't get my blood...

the morning after I take the 7 mg. I thought it was a coincidence but it's cons...

loretta1106

•10 years ago

8 Replies

I have been fighting for my inr level since January. ...it's no wonder below 1.0....on taking shots and pills....no energy..loosingweight

And terrible headache s....avoiding green things....help!

paisleepark70

•10 years ago

2 Replies

Have found this and it is helpful for all warfarin users: http://www.warfarin.cz/downloads/nutescu.pdf

Am trying to understand the herbs that make a difference to my INR and diet.

Heather69

•10 years ago

1 Reply

Warfarin not in range so on it plus Heparin. Joints in hands and wrist, knees and one heel painful - why?

INR has gone below 2 and stayed there for a few weeks now. They keep upping the dose but it is having little impact. This means I have to inject Heparin...

INR has gone below 2 and stayed there for a few weeks now. They keep upping the...

Elaine77c

•10 years ago

6 Replies

Is the GP computer dosing accurate?

I used to self manage before getting pregnant but since I've had my baby I've been getting my inr checked at my gp as it has been a bit up and down. They use a...

I used to self manage before getting pregnant but since I've had my baby I've be...

Lani

•10 years ago

4 Replies

After a recent test my inr came back at 6.88. Only change in my life was the use of codrydamol for general pain relief.

Topdog

•10 years ago

3 Replies

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Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

INR & Self Testing posts

Persistently low INR

INR targets

INR HELL.....

Hughes Syndrome - stomach pain/vomit

Headaches

Those on Warfarin... How often is your INR tested? Also, what are the other blood thinning options?

Guys visit

INR Level Low

Help/advise

Eating before INR test

INR...Can you counter something you eat or drink on the same day?

Bored with chasing my rheumatologist... Oh and happy new year!

INR

Can low INR cause depression/mood swings/anxiety?

INR win!

INR and feeling 'Well'

Just started warfarin

vaccination against Pneumonia and also Influenza

APS and Flu Vaccinations

The INR Debate regarding APS

High warfarin dosage but INR still crashing

What is the right range of INR for Hughes

Self-checking your INR

Warfarin INR - too high but infrequent monitoring

I am on 6 mg of Warfarin a day but take 7 mgs on Tuesdays only for the past three weeks. I noticed that I wake up with a sinus headache

I have been fighting for my inr level since January. ...it's no wonder below 1.0....on taking shots and pills....no energy..loosingweight

Have found this and it is helpful for all warfarin users: http://www.warfarin.cz/downloads/nutescu.pdf

Warfarin not in range so on it plus Heparin. Joints in hands and wrist, knees and one heel painful - why?

Is the GP computer dosing accurate?

After a recent test my inr came back at 6.88. Only change in my life was the use of codrydamol for general pain relief.

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