Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,353 members • 10,541 posts

All posts for September 2012

Pain in knee joints

Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees,...

Hi all, I have APS, and severe lung disease, however, twice now, both times afte...

Lesley_D

•12 years ago

7 Replies

Is there anyone from Australia who is using this site?

jeffrey

•12 years ago

9 Replies

Has anyone try Pradaxa in replacement to Warfarin? Is Pradaxa applicable to APS? What are the side effect?

mails678

•12 years ago

5 Replies

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Haemotologist....

Hi all :-) just wondering how other people get on when going to see a Haemo who doesn't know much about APS...when seeing the Haemo i told him as well as other...

Hi all :-) just wondering how other people get on when going to see a Haemo who ...

kmac42

•12 years ago

19 Replies

Does anybody get these symptoms even when anticoagulated?

Hi all - since before the last documented stroke last oct I have continued eye pain that is unbearable on some days,even after commencing warfarin. My eyes...

Hi all - since before the last documented stroke last oct I have continued eye p...

emmaj

•12 years ago

11 Replies

IVF for infertility

Does anyone know if this procedure is safe for us with APS/ Hughes? I'll be talking to a Dr., but curious if anyone has any experience? Thank you!! H

Does anyone know if this procedure is safe for us with APS/ Hughes? I'll be tal...

Hilariew930

•12 years ago

4 Replies

I have had a infusion of a new drug(RITUXIMAB)has anyone had this drug?if so did it make a difference?also any bad side effects?

popshaw21

•12 years ago

9 Replies

Citations?

I am sorry I have not always followed and noted the Hughes Syndrome papers referenced on this site. My new internist is intrigued by my assertion that APS is...

I am sorry I have not always followed and noted the Hughes Syndrome papers refer...

GinaD

•12 years ago

4 Replies

Recent Neurological investigations and Lumbar?????Ahhhhhh!

Just had in writing regarding recent Lumbar results, I am more confused now than ever??? Does anyone have this in common??? Their CFS shows matched...

Just had in writing regarding recent Lumbar results, I am more confused now than...

traceylou

•12 years ago

5 Replies

Getting some answers soon.....I hope!

I feel nothing will help me!! I have as a lot of you know problems with my stomach, eating & had gall bladder out over the last few years.................

I feel nothing will help me!! I have as a lot of you know problems with my ...

Suzypawz

•12 years ago

16 Replies

Last chance to complete survey on physical activity, exercise and APS...

I just wanted to say a big thank you to all of you who have already completed the Physical Activity, Exercise and APS survey. We have had a great response and...

I just wanted to say a big thank you to all of you who have already completed th...

travelnut

•12 years ago

2 Replies

hughes syndrome

hi all first blog my daughter has been told she has HS and is really finding it hard to cope has lots of chest pain and very tired she is finding it hard to go...

hi all first blog my daughter has been told she has HS and is really finding it ...

mcbeth

•12 years ago

12 Replies

I need some help fellow bloggers!

I am being referred to St Thomas but have just found out I will still need to pay for the treatment. Can anyone offer some light on this and prices etc or does...

I am being referred to St Thomas but have just found out I will still need to pa...

MJLS

•12 years ago

3 Replies

Consultant appointment

I seen my new rheum 29th may 2012 and everthing seemed ok, he knew about APS and had trained under my old consultant. I left the appointment with new tablets...

I seen my new rheum 29th may 2012 and everthing seemed ok, he knew about APS and...

sharonap

•12 years ago

4 Replies

Big Thanks to MaryF AND Kate. Finally a referral to St Thomas'!!!!

Hi all - I have finally had an agreed referral to St Thomas' by my Neurologist!! I have a feeling He just wants rid of me to be honest - and in his own words...

Hi all - I have finally had an agreed referral to St Thomas' by my Neurologist!!...

emmaj

•12 years ago

11 Replies

Uncontrollable trembling/shaking?

Hi everyone, I was wondering does anyone have periods of uncontrollable trembling/shaking? If so, do you know what causes it?

Hi everyone, I was wondering does anyone have periods of uncontrollable tremblin...

InSpain

•12 years ago

24 Replies

Article in local paper - thank you Stella :)

Hi All FYI - Stella Brabants has managed to get a really comprehensive article in her local paper as well as managing to promote her art event which is in...

Hi All FYI - Stella Brabants has managed to get a really comprehensive articl...

Hidden

•12 years ago

4 Replies

Fed up with being in pain

Sorry about moaning no where else to turn. My family is getting fed up of me with all my ailments. My wife says, you don't understand me. She doesn't...

Sorry about moaning no where else to turn. My family is getting fed up of me ...

Stannington-lad

•12 years ago

8 Replies

Pain reliefe with APS - use of Pill meds non-effective - in acute pain.Level 8-10 pain level

Does anyone know or ever had an issues with pain managment, with IV meds being the only way to get pain down to a managment level. If so - is there any...

Does anyone know or ever had an issues with pain managment, with IV meds being t...

Skyllark

•12 years ago

4 Replies

Appeal for APS specialists in the UK (sorry - rest of the world will follow at a later date!)

Hi. My name is Yvonne Wren and I've recently been employed in the post of admin support worker for the Hughes Syndrome Foundation. I'm trying to compile...

Hi. My name is Yvonne Wren and I've recently been employed in the post of admin ...

YvonneW

•12 years ago

26 Replies

Argh why is nothing ever simple.... Pregnancy number 9....

Hi Everyone... This isn't particularly APS related but needed a vent lol.... Sooo, as some of you know we have had a dodgy history with being pregnant and...

Hi Everyone... This isn't particularly APS related but needed a vent lol.... So...

kateb81

•12 years ago

7 Replies

inr fluctuations and headaches

Did my weekly test on Friday and inr was 3.8 which it has been around for a couple of months. Today I woke up with a thumper of a headache and so tested for...

Did my weekly test on Friday and inr was 3.8 which it has been around for a coup...

panda60

•12 years ago

5 Replies

The weather changes give horrible pains

The weather changes give horrible pains in my joints. Do any of you suffer from this? I had difficulty getting up this morning, loads of pains in my knees

The weather changes give horrible pains in my joints. Do any of you suffer from ...

Danimgw

•12 years ago

10 Replies

As requested - and to give a smile

Hi Mary, Following the weekend and your request for a certain button, please find your wish granted and attached - have a lovely and healthy week :)...

Hi Mary, Following the weekend and your request for a certain button, please ...

Lesley_D

•12 years ago

7 Replies

Does anyone get headaches?

Hi all, just wondering does anyone get headaches? I have getting headaches and feeling dizzy the past 3 months with heavy menstrual cycle sometimes twice in...

Hi all, just wondering does anyone get headaches? I have getting headaches and f...

tAigers

•12 years ago

14 Replies

Looks like I got a bad cold but I feel sooo horrible.

Hello my friends. As of yesterday I seem to have gotten a bad cold but I feel horrible. The reason I am concerned is that I rarely get a cold. Last cold may...

Hello my friends. As of yesterday I seem to have gotten a bad cold but I feel ...

miamigirl

•12 years ago

6 Replies

Temperatures

Hi all. Does anyone else out there have raised temperatures with Hughes? I regularly have temperature readings of 37.5 and above. Just wondered if it is just...

Hi all. Does anyone else out there have raised temperatures with Hughes? I regu...

Sal0712

•12 years ago

5 Replies

Does anyone get a sore stomach?

I often get a sore stomach. Sometimes it is mild, sometimes a bit stronger and even put me in hospital for a few hours once! There is no ulcer or anything...

I often get a sore stomach. Sometimes it is mild, sometimes a bit stronger and ...

ciaronsmum

•12 years ago

14 Replies

side effects of hughes syndrome

is Hughes syndrome connected to other diseases, or will I get more as I grow older?

is Hughes syndrome connected to other diseases, or will I get more as I grow old...

dalalf

•12 years ago

9 Replies

Nerve conduction tests?

Recently underwent nerve conduction tests on my right arm only, even though I did say it was my arms feet and legs and hands. Was told now that it is not...

Recently underwent nerve conduction tests on my right arm only, even though I di...

traceylou

•12 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2012

Pain in knee joints

Is there anyone from Australia who is using this site?

Has anyone try Pradaxa in replacement to Warfarin? Is Pradaxa applicable to APS? What are the side effect?

Haemotologist....

Does anybody get these symptoms even when anticoagulated?

IVF for infertility

I have had a infusion of a new drug(RITUXIMAB)has anyone had this drug?if so did it make a difference?also any bad side effects?

Citations?

Recent Neurological investigations and Lumbar?????Ahhhhhh!

Getting some answers soon.....I hope!

Last chance to complete survey on physical activity, exercise and APS...

hughes syndrome

I need some help fellow bloggers!

Consultant appointment

Big Thanks to MaryF AND Kate. Finally a referral to St Thomas'!!!!

Uncontrollable trembling/shaking?

Article in local paper - thank you Stella :)

Fed up with being in pain

Pain reliefe with APS - use of Pill meds non-effective - in acute pain.Level 8-10 pain level

Appeal for APS specialists in the UK (sorry - rest of the world will follow at a later date!)

Argh why is nothing ever simple.... Pregnancy number 9....

inr fluctuations and headaches

The weather changes give horrible pains

As requested - and to give a smile

Does anyone get headaches?

Looks like I got a bad cold but I feel sooo horrible.

Temperatures

Does anyone get a sore stomach?

side effects of hughes syndrome

Nerve conduction tests?

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