Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for September 2021

Pfyzer issues with CAPS

has anyone had any clots since taking Pfizer?

has anyone had any clots since taking Pfizer?

•3 years ago

Warfarin

Does warfarin interfere with accurate testing for APS?

Does warfarin interfere with accurate testing for APS?

•3 years ago

THE next GHIC Q&A Session this Thursday

Please put your comments underneath the actual Facebook Post, not on here: It is live on Facebook, however can be also watched later. Facebook link at the...

Please put your comments underneath the actual Facebook Post, not on here: It i...

Administrator•3 years ago

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Warfarin - managing daily dose has become challenging

Diagnosed with APS some 9 years ago, put on Warfarin and self test with target INR 3.0 to 4.0 (ideally 3.5). Have been on 8mg / 9mg daily until earlier this...

Diagnosed with APS some 9 years ago, put on Warfarin and self test with target I...

•3 years ago

HELP!!!

My brother apart from his low platelet issues, has developed acute kidney injury this week and is admitted. Baseline creatinine of 0.90 20 days ago has shot...

My brother apart from his low platelet issues, has developed acute kidney injur...

•3 years ago

Hydroxychloroquinine any alternatives?

I have had to stop my hydroxychloroquinine due to the drastic increase in my psoriasis on my face. But now getting the joint and muscle pain back along with...

I have had to stop my hydroxychloroquinine due to the drastic increase in my pso...

•3 years ago

Warfarin….. again.

What is everyone’s INR level. I’ve been told that mines should be 2.5. But I’ve noticed that some people’s are 3-4. So I’m worried that mines is too low!!

What is everyone’s INR level. I’ve been told that mines should be 2.5. But I’ve ...

•3 years ago

Experimental immunotherapy treatment cures girl with autoimmune disease

Article includes a link to the New England Journal of Medicine...

Article includes a link to the New England Journal of Medicine...

•3 years ago

Brain fog

How does everyone deal with the forgetfulness. I get frustrated at times. Not sure about almost everything at times. Leave the house, 30 seconds later going...

How does everyone deal with the forgetfulness. I get frustrated at times. Not su...

•3 years ago

Warfarin

On day 3 of warfarin now. Day 1 was 5ml. Day 3/4. 10ml. Got hospital tomorrow for INR Check. But the worrying thing is, the warfarin nurse, totally miss read...

On day 3 of warfarin now. Day 1 was 5ml. Day 3/4. 10ml. Got hospital tomorrow fo...

•3 years ago

Statin for APS, but I am at a healthy weight and have great cholesterol levels?

Are any of you on a statin? If so, what was the reason given? Is this a regular medication for APS? I have a bmi of 22%, and my cholesterol is normal (great...

Are any of you on a statin? If so, what was the reason given? Is this a regul...

•3 years ago

platelets

I have low platelets what does this mean?

I have low platelets what does this mean?

•3 years ago

A novice question

Hi everyone, Forgive my ignorance on the matter but google is really not the best learning tool. I've been told I have APS after three tests (one was negative,...

Hi everyone, Forgive my ignorance on the matter but google is really not the bes...

•3 years ago

Joint Pain

When recently speaking to my Haematologist, she said that joint pain is not associated with APS. Has anyone else been told this? Rheumatology accept that it is...

When recently speaking to my Haematologist, she said that joint pain is not asso...

•3 years ago

The 3rd booster vaccination

Wanted to share that I got the 3rd Pfizer vaccination/booster. So far no evident side effects. Stay safe 🙏🏻

Wanted to share that I got the 3rd Pfizer vaccination/booster. So far no evident...

•3 years ago

Starting Warfarin in 7 days time. Taking aspirin just now. When should I stop the aspirin? I know I need a proper INR reading.

•3 years ago

EMG

EMG - Both arms done yesterday Weds. 9-1-21. up to 4 power to make test work on a 1-5 scale of power . . Bruises in palms of hands from needles ....

EMG - Both arms done yesterday Weds. 9-1-21. up to 4 power to make test ...

•3 years ago

Followup to my post 8 months back, sudden jaundice and hemolytic anemia

I had posted 8 months back about sudden onset of jaundice and hemolytic anemia. So my brother was tested with ANA and complement factors for SLE and was...

I had posted 8 months back about sudden onset of jaundice and hemolytic anemia. ...

•3 years ago

I’m in the exact situation as you are. You say all the things I have going through my head .

I had a lupus anticoagulant test same as you and they space it out as You said every 3 months . I have had a huge clot in my subclavian which was so big it had...

I had a lupus anticoagulant test same as you and they space it out as You said e...

•3 years ago