Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for August 2012

Had my memory test

Saw the neuro pyschologist yesterday and he tested my visual and auditory memory skills. Apparently they range from low average to average and thankfully...

Saw the neuro pyschologist yesterday and he tested my visual and auditory memory...

panda60

•12 years ago

1 Reply

feeling of weakness in the foot/ankle

Among the rich palatte of pains and sensations I have been contending with since my pelvic pain odyssey began has been a feeling that my left ankle is about to...

Among the rich palatte of pains and sensations I have been contending with since...

GinaD

•12 years ago

9 Replies

TIa or migraine Tia diagnosed at ST and local hospital over a year ago

Well having been admitted due to vomiting blood, I have been in hospital for 5 days and the result - they don't know. Well having bad headaches, feeling fuzzy...

Well having been admitted due to vomiting blood, I have been in hospital for 5 d...

daisy11

•12 years ago

3 Replies

Want to take advantage of all our features? Just log in!

PLEASE HELP! Anyone in the United States won social security disability? Any pointers would be helpful! My twin sister needs help!

My twin sister Heather, who used to post on this site is 32 yrs old and was diagnosed with APS in 2007 after a massive PE and clots in her lungs that cost her...

My twin sister Heather, who used to post on this site is 32 yrs old and was diag...

EMT434

•12 years ago

19 Replies

Do migraines really improve if INR reaches between 3 - 3.5 ?

Hello everyone, I have had a major stroke 6 yrs ago and was diagnosed with APS back then, I am having trouble coping with migraines, my INR is at 2 at my last...

Hello everyone, I have had a major stroke 6 yrs ago and was diagnosed with APS ...

kelgem

•12 years ago

18 Replies

Can anyone describe the feeling of the beginning of a leg (mid calf) clot?

One morning last month I was rudely awakened by a severe left calf leg cramp. The kind where it turns hard as a basketball and you don't know whether its best...

One morning last month I was rudely awakened by a severe left calf leg cramp. Th...

CanaryDiamond10

•12 years ago

13 Replies

Prof Hughes' August blog

The Olympics arrived in London. The weather held and the organisation worked like clockwork. One of the most successful aspects for me was the clever...

The Olympics arrived in London. The weather held and the organisation worked li...

Hidden

•12 years ago

10 Replies

INR levels up again

I went to the clinic yesterday as my INR had shot up again to 4.9 and it should be in the 3-4 range. They took bloods and told me to take less Warfarin, I...

I went to the clinic yesterday as my INR had shot up again to 4.9 and it should ...

harrio

•12 years ago

10 Replies

I have Hughes Syndrome???

Hello! I commented that I am new to the forum, I was diagnosed with Hughes Syndrome four years ago. I have not had symptoms of thrombosis, abortions, etc.. My...

Hello! I commented that I am new to the forum, I was diagnosed with Hughes Syndr...

ANALIA

•12 years ago

6 Replies

Does anyone else have May-Thurner Syndrome?

Whilse I was in St Tomas' it was suggested that I might have May Thurner Syndrome as well as APS which would go some way to explaining my blood clots. Anyone...

Whilse I was in St Tomas' it was suggested that I might have May Thurner Syndrom...

Glitterwitch

•12 years ago

11 Replies

Do we have to look sick to be sick??!!??

Yesterday I saw a cardiologist for the first time. Am having some other problems not related to APS and he was going through my entire health history. He...

Yesterday I saw a cardiologist for the first time. Am having some other problem...

Leigha

•12 years ago

19 Replies

Hi there,A tiny amount of help with these petitions please.

Hello So many people appear to have thyroid problems mixed in with their autoimmune problems. Please take that small amount of time to sign these. Your...

Hello So many people appear to have thyroid problems mixed in with their auto...

MaryF

Administrator•12 years ago

8 Replies

I found this website....

www.flarewatch.com It appears to be a website to log in and track flare symptoms so that you can generate a report and bring to your doctor and also maybe...

www.flarewatch.com It appears to be a website to log in and track flare sympt...

Hidden

•12 years ago

5 Replies

Hyperthyroidism, does anyone have this? I have been ordered for ultrasound to rule out cancer. HELP!!!!

77tiger05

•12 years ago

8 Replies

Am I sick.......

Am i sick...well that would depend in what you mean by sick wouldnt it? I am not SICK as i am not voiting, well not today anyway lols, am i ill then? well...

Am i sick...well that would depend in what you mean by sick wouldnt it? I am ...

lollierai

•12 years ago

6 Replies

Now what?

August 27, 2012. Today, I was diagnosed with Antiphospholipid Syndrome. I'll never forget this day. I'm at a complete loss as to what to do. Should I be...

August 27, 2012. Today, I was diagnosed with Antiphospholipid Syndrome. I'll nev...

aid1117

•12 years ago

29 Replies

Home From Hospital

You may remember I went into St Thomas' last monday as the new stent had been "compromised". Well, it appears that the end of the stent (roughly behind my...

You may remember I went into St Thomas' last monday as the new stent had been "c...

Glitterwitch

•12 years ago

11 Replies

hi all....after finding out i can no longer take warfarin due to side effects.....i wondered if anyone is interested in a coagucheck machine

the nurse at tommies said some people would like to self test at home so to ask if anyone needs one as they are quite expensive...i have only used it twice so...

the nurse at tommies said some people would like to self test at home so to ask ...

natirish

•12 years ago

7 Replies

Can antibiotic eye drops affect your INR?

I managed to get corneal ulcers in both eyes a couple of weeks ago. The eye doctor thought it was due to wearing contact lenses and having very dry eyes. I was...

I managed to get corneal ulcers in both eyes a couple of weeks ago. The eye doct...

travelnut

•12 years ago

5 Replies

Is it me or is there no such thing as thinner blood?

I have been told time after time that this thins your blood and will help with issues etc. But can they/us stop treating people like children. You INR tells...

I have been told time after time that this thins your blood and will help with i...

DanMorris

•12 years ago

24 Replies

I have APS and RA..How long before plaquenil starts working?

I was just wondering how long before it starts to help. I have been on it for 6 months and nothing has changed. I still am in a lot of joint pain. Do you have...

I was just wondering how long before it starts to help. I have been on it for 6 ...

3boys

•12 years ago

13 Replies

INR levels

Hi, does direct sunshine increase my INR levles?

harrio

•12 years ago

9 Replies

Does anyone else have APS with Lupus antibodies & Polycythemia?

My husband was diagnosed with APS in 2007, but nothing was said about Lupus antibodies. I guess the two go together from what we have learned now. Anyway, a...

My husband was diagnosed with APS in 2007, but nothing was said about Lupus anti...

sbncmo

•12 years ago

4 Replies

anyone been through the same

i had high anticardiopolin levels in 2007, started having grand mal seizures for 2 years, took me off asprin in 2010, then started having complex partial...

i had high anticardiopolin levels in 2007, started having grand mal seizures for...

muzza

•12 years ago

5 Replies

has anyone else been told they have epilepsy then been diagnosed with aps

muzza

•12 years ago

7 Replies

Caroline where are you?

Yesterday I, PLuto 5 had a message from Caroline (52?).I couldnt open it yesterday but today I can and it has gone?now it is not working!

Yesterday I, PLuto 5 had a message from Caroline (52?).I couldnt open it yester...

pluto5

•12 years ago

2 Replies

Saw the rheumy at Duke yesterday . . .

. . . and she thinks that my hip pain is probably orthopedic in nature. So, I'm heading back down there in a couple of weeks to see an orthopedist. As far as...

. . . and she thinks that my hip pain is probably orthopedic in nature. So, I'm...

GinaD

•12 years ago

14 Replies

Rant!

I'm on about day 5 of a very annoying headache just above my left eye. It started as a "pinch", as if someone was squeezing a bit of my brain and its turned...

I'm on about day 5 of a very annoying headache just above my left eye. It starte...

Tannyah

•12 years ago

32 Replies

Purple blotch on palm

I just noticed a purple blotch on palm, I though it was ink or pinched my skin, it doesn't hurt not swollen, should I take a baby aspirin and go to the GP?

I just noticed a purple blotch on palm, I though it was ink or pinched my skin, ...

Hope73

•12 years ago

4 Replies

Does Lipnotin cure Antiphospholipid syndrome (APS)

Hi everyone, I have a friend in Sri Lanka who is suffering from Anti-phospholipid syndrome. she is 38 years old and has one child. She said one day...

Hi everyone, I have a friend in Sri Lanka who is suffering from Anti-phosph...

elona

•12 years ago

19 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2012

Had my memory test

feeling of weakness in the foot/ankle

TIa or migraine Tia diagnosed at ST and local hospital over a year ago

PLEASE HELP! Anyone in the United States won social security disability? Any pointers would be helpful! My twin sister needs help!

Do migraines really improve if INR reaches between 3 - 3.5 ?

Can anyone describe the feeling of the beginning of a leg (mid calf) clot?

Prof Hughes' August blog

INR levels up again

I have Hughes Syndrome???

Does anyone else have May-Thurner Syndrome?

Do we have to look sick to be sick??!!??

Hi there,A tiny amount of help with these petitions please.

I found this website....

Hyperthyroidism, does anyone have this? I have been ordered for ultrasound to rule out cancer. HELP!!!!

Am I sick.......

Now what?

Home From Hospital

hi all....after finding out i can no longer take warfarin due to side effects.....i wondered if anyone is interested in a coagucheck machine

Can antibiotic eye drops affect your INR?

Is it me or is there no such thing as thinner blood?

I have APS and RA..How long before plaquenil starts working?

INR levels

Does anyone else have APS with Lupus antibodies & Polycythemia?

anyone been through the same

has anyone else been told they have epilepsy then been diagnosed with aps

Caroline where are you?

Saw the rheumy at Duke yesterday . . .

Rant!

Purple blotch on palm

Does Lipnotin cure Antiphospholipid syndrome (APS)

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