Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for July 2017

Leg sweats

Hello Just recently I have developed beads of sweats running down my leg, from the Shin/calf area. Can anyone shed some light on this?. I have been told that...

Hello Just recently I have developed beads of sweats running down my leg, from t...

LesJames

•8 years ago

6 Replies

Has anyone with memory issues had a neuropsychological evaluation done?

My new neurologist referred me for a neuropsychological evaluation. I've had this test done before and it took about 8 hours. The last time I had it done the...

My new neurologist referred me for a neuropsychological evaluation. I've had th...

Jean_12

•8 years ago

16 Replies

Why aren't my legs working properly?

At a TIA emergency appointment recently (thankfully I had not had a TIA) as part of the examination the doctor tested my reflexes. In my arms they were fine...

At a TIA emergency appointment recently (thankfully I had not had a TIA) as part...

WendyWoo50

•8 years ago

24 Replies

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My head is squezzing together

I jumped off a tower into water 7 days ago and tried to stay under water for as long as possible. Straight after when i came up my head was squezzing together....

I jumped off a tower into water 7 days ago and tried to stay under water for as ...

Hidden

•8 years ago

2 Replies

Spontaneous metatarsal fractures

I haven't written in a long time. I have APS and Factor V Leiden, both diagnosed 4 years ago after a history of DVT's in my legs. Also diagnosed 2 years ago...

I haven't written in a long time. I have APS and Factor V Leiden, both diagnose...

mozelle

•8 years ago

11 Replies

APS Specialists in New York City and Raleigh,NC

I am looking for APS Specialists in New York City (Manhattan) where I live. My daughter now lives in APex, NC near Cary and Raleigh and I visit there often....

I am looking for APS Specialists in New York City (Manhattan) where I live. My d...

loretta1106

•8 years ago

25 Replies

Survey for nominations

This Survey should include more than one nominee as different people here fit into one of the four categories . so i feel that we should be able to do FOUR...

This Survey should include more than one nominee as different people here fit ...

jetjetjet

•8 years ago

3 Replies

Lost, Scared, Confused but Optimistic

Hello everyone, I am new to the site. I have had two near death experiences with pulmonary embolisms. I have tested positive for the lupus anticoagulants. At...

Hello everyone, I am new to the site. I have had two near death experiences with...

scaredbutblessed

•8 years ago

11 Replies

Self testing INR in the United States-Has anyone had any luck getting self testing machines that are covered by Medicare

I live in NYC-Manhattan and have had intravenous INR testing and now quick stick testing. I was on vacation (two hours from home in New Jersey) and...

I live in NYC-Manhattan and have had intravenous INR testing and now quick stick...

loretta1106

•8 years ago

14 Replies

I've got really sharp stabbing like pain in my head

I woke up at 1am with pain in my left hand side of my head and it going down into my neck and like the back of my eye the pain gets so bad it makes me...

I woke up at 1am with pain in my left hand side of my head and it going down int...

Don22

•8 years ago

1 Reply

A long awaited welcome to the world to baby Isabel

Hello all, So this little lovely was born at 11.30pm on Sunday 23rd exactly 40 weeks. Thank you all so much for your kind words of support, encouragement and...

Hello all, So this little lovely was born at 11.30pm on Sunday 23rd exactly 40 ...

Oliversmum

•8 years ago

25 Replies

New to APS - Trying to Get Pregnant

I have a somewhat unique story as to how my diagnosis came to be... I had a DVT in 2015 and went through 6 months of anticoagulation therapy. Even though I was...

I have a somewhat unique story as to how my diagnosis came to be... I had a DVT ...

JessicAZ

•8 years ago

39 Replies

dreaming and the onset of autoimmune conditions

Just in case anyone is on researchgate and is interested, here is a report I recently wrote about teh onset of my autoimmune conditions. Though at the time,...

Just in case anyone is on researchgate and is interested, here is a report I rec...

charlieab

•8 years ago

13 Replies

Problems with blood test

3 time my doc done test and every time it coagulated this time i had 3 blood test done at doctors then had to go straight to hospital to have another blood...

3 time my doc done test and every time it coagulated this time i had 3 blood tes...

Littlelegs1958

•8 years ago

1 Reply

Chances of endometrial cancer at 30 yrs old

Hi All, Feeling tormented for past few days. i have APS since 2013. been on daily dosage of warfarin since then. since my teens i have had polycystic ovary...

Hi All, Feeling tormented for past few days. i have APS since 2013. been on dail...

Aps4Life

•8 years ago

20 Replies

Anticardiolipins false positive

Hello everyone, I had been tested for APS after pre eclampsia and death of my son. No history of miscarriage. The first test done 15 days after my c section...

Hello everyone, I had been tested for APS after pre eclampsia and death of my so...

Theomom

•8 years ago

4 Replies

Accupuncture? Yay or nay?

I was curious if anyone with APS gets acupuncture treatments. One of my doctors told me not to but I was wondering if any of you do and if you've found it...

I was curious if anyone with APS gets acupuncture treatments. One of my doctors ...

Holley

•8 years ago

12 Replies

Is it common to need an increase in Coumadin ( Warfarin) during an APS " Flare?"

My family and I are still trying to figure this Syndrome out with regards to how it is affecting my particular body, and I'm thinking there must be some...

My family and I are still trying to figure this Syndrome out with regards to how...

KellyInTexas

Administrator•8 years ago

48 Replies

Morning 😊

What is CRP? I know C reactive protine , I googled it and it comes up about heart? My Rheumatologist didn't seem impressed with mine at 11.1 but didn't explain...

What is CRP? I know C reactive protine , I googled it and it comes up about hear...

Anyac81

•8 years ago

4 Replies

Anxiety

Just FYI I am on warfarin my INR is 3.9 and I self check, I need this terrible feelings gone!!

Just FYI I am on warfarin my INR is 3.9 and I self check, I need this terrible f...

edgewater100

•8 years ago

13 Replies

Anxiety

Does any one deal with Anxieties and depression, not sure what it is, APS or Lupus but been getting these episodes since diagnosis 4 years ago!! Can't take...

Does any one deal with Anxieties and depression, not sure what it is, APS or Lup...

edgewater100

•8 years ago

5 Replies

Does my wife have sticky blood syndrome

When my wife was in her teens she had ulcerative colitis and had her large bowl removed and a bag, later she had the reversal to remove the bag, still has no...

When my wife was in her teens she had ulcerative colitis and had her large bowl ...

Jammychap

•8 years ago

7 Replies

Tingling/pins and needles in fingers, arms and back, grip weakness

Hi, My partner is an avid gym user 5 days a week, for many years, eats clean and healthy and experiences a strange tingling sensation like pins and needles in...

Hi, My partner is an avid gym user 5 days a week, for many years, eats clean and...

k2018

•8 years ago

2 Replies

Confused

Hi all im 37 female newly diagnosed with aps only on asprin. Will prob start plaquniel next coming weeks. I need to find a dr in ny that knows how to treat...

Hi all im 37 female newly diagnosed with aps only on asprin. Will prob start pla...

Robertsmom

•8 years ago

19 Replies

Update to Colonoscopy- Not Good

Colonoscopy showed 2 masses at end of rectum that were biopsied and doctor thinks are cancerous. Bleeding resulted in ambulance ride to PIEDMONT HOSPITAL and...

Colonoscopy showed 2 masses at end of rectum that were biopsied and doctor thin...

Jamaica1951

•8 years ago

18 Replies

Thank you to all who replied to my last post!!

Update of my daughter, AnnMarie. After approx. 15 hours or so of being in A Fib, All our Prayers worked. The Dr said if he couldn't get her into a normal Sinus...

Update of my daughter, AnnMarie. After approx. 15 hours or so of being in A Fib,...

dar58

•8 years ago

11 Replies

Another baby update

Here I am 32 weeks into another hopefully successful pregnancy. I had a growth scan a few days ago and the baby is an estimated above average size and weight...

Here I am 32 weeks into another hopefully successful pregnancy. I had a growth s...

Hopingforababy

•8 years ago

8 Replies

update and vent

Just got copy of letter that consultant sent to doctor. Wants APS antibody tests done again, as seems to think symptons could well indicate APS. But (more...

Just got copy of letter that consultant sent to doctor. Wants APS antibody test...

charlieab

•8 years ago

13 Replies

Just diagnosed and pregnant (again)

Hey everyone! I'm 30 and just have been diagnosed with Hughes Syndrome. I had a stroke 5 years ago and 2 pregnancies that didn't go well. I am thinking about...

Hey everyone! I'm 30 and just have been diagnosed with Hughes Syndrome. I had a ...

INCR

•8 years ago

9 Replies

Holiday insurance

Can anybody recommend where I get a good deal but good holiday insurace and what it cost for people on warafrin

Can anybody recommend where I get a good deal but good holiday insurace and what...

amy1808

•8 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2017

Leg sweats

Has anyone with memory issues had a neuropsychological evaluation done?

Why aren't my legs working properly?

My head is squezzing together

Spontaneous metatarsal fractures

APS Specialists in New York City and Raleigh,NC

Survey for nominations

Lost, Scared, Confused but Optimistic

Self testing INR in the United States-Has anyone had any luck getting self testing machines that are covered by Medicare

I've got really sharp stabbing like pain in my head

A long awaited welcome to the world to baby Isabel

New to APS - Trying to Get Pregnant

dreaming and the onset of autoimmune conditions

Problems with blood test

Chances of endometrial cancer at 30 yrs old

Anticardiolipins false positive

Accupuncture? Yay or nay?

Is it common to need an increase in Coumadin ( Warfarin) during an APS " Flare?"

Morning 😊

Anxiety

Anxiety

Does my wife have sticky blood syndrome

Tingling/pins and needles in fingers, arms and back, grip weakness

Confused

Update to Colonoscopy- Not Good

Thank you to all who replied to my last post!!

Another baby update

update and vent

Just diagnosed and pregnant (again)

Holiday insurance

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