Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for May 2017

Low platelet levels in pregnancy. When were you advised to stop taking anticoagulants?

Hi all, Just having a read through my maternity notes and noticed as of my last blood test, my platelets were 120 (normal range 140-400) I am due to see an...

Hi all, Just having a read through my maternity notes and noticed as of my last...

Oliversmum

•8 years ago

2 Replies

Professor Graham Hughes' Blog May 017

BLOG – May 2017 Waiting for a taxi to take me back to Basel airport for the short flight home to London. As good a time as any to start writing the May...

BLOG – May 2017 Waiting for a taxi to take me back to Basel airport for the sho...

MaryF

Administrator•8 years ago

12 Replies

Time

Hello my wonderful friends, Well I'm off to see my dermy this afternoon and it's really thanks to him that I'm where I am today. He ordered all the bloods...

Hello my wonderful friends, Well I'm off to see my dermy this afternoon and it's...

Charliebear68

•8 years ago

5 Replies

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My Story, I'm new here!

Hello Everyone! So here's my little story with APS. When I was 10 years old I started to get Raynaud's Syndrome and it was painful at 1st, but I eventually got...

Hello Everyone! So here's my little story with APS. When I was 10 years old I st...

apug1795

•8 years ago

8 Replies

Trouble getting INR Stable

I was on 10mg a day for 5 days & my INR was only 2.2. Then 2 days later it was 3.6. Then they had me do 7.5 mg & 10mg alternating. I started to feel great. INR...

I was on 10mg a day for 5 days & my INR was only 2.2. Then 2 days later it was 3...

designer16

•8 years ago

14 Replies

Raynaud's that doesnt react to the cold?

Just a quick rumination. I was diagnosed with raynaud's about 5 weeks ago, at the same time that my legs started tunring purple, joints clicking and aching...

Just a quick rumination. I was diagnosed with raynaud's about 5 weeks ago, at th...

charlieab

•8 years ago

3 Replies

Self testing with lupus anticoagulant

Hi does anybody successfully self test with all APS. My haematologist said as all 3 tests are always positive that it would not be accurate enough. It would...

Hi does anybody successfully self test with all APS. My haematologist said as a...

Lind8

•8 years ago

24 Replies

Lupos anticoag

Hi everyone So im 30 in the UK last year collapsed in the doctors found to have 23 clots floating around in my lungs i hear you all gasp but yes 23 is shocked...

Hi everyone So im 30 in the UK last year collapsed in the doctors found to have...

Nino699

•8 years ago

6 Replies

Aps newbie

Hi everybody I'm New here I was diagnosed with aps in 2010/2011, I have had 17 misscarriges and lost my daughter in 2005 she died the day after as i had...

Hi everybody I'm New here I was diagnosed with aps in 2010/2011, I have had 17 m...

Totts1983

•8 years ago

38 Replies

Hello all, Sould Rebel here.

Good news is on Tuesday I finally got me new home monitor for my INR living with out it the last two years has been a disaster! Also, I went to the Hospital...

Good news is on Tuesday I finally got me new home monitor for my INR living with...

SoulRebel-APS

•8 years ago

20 Replies

Headaches and APS

Hi, I am 42 and got a confirmation of APS diagnosis about a month ago. They tested after I had a stroke. Luckily there were no lasting symptoms of the stroke...

Hi, I am 42 and got a confirmation of APS diagnosis about a month ago. They te...

Phunter

•8 years ago

24 Replies

Sjogrens Questions

Hi if anyone of my dear comrades has Sjogrens please answer a few questions I have! I have it and along with it dry mouth, mouth sores from dry mouth! Recently...

Hi if anyone of my dear comrades has Sjogrens please answer a few questions I ha...

Debbweb01

•8 years ago

13 Replies

Living with APS

Hi. I'm glad to be a part of this family. It's feels a great place to interact with others that understand what APS is as well as challenges we face. I have...

Hi. I'm glad to be a part of this family. It's feels a great place to interact ...

Evette123

•8 years ago

13 Replies

What varying ages have people been diagnosed at ....

I'm 45 ... Have a possible diagnosis. Of ms hanging over me ..found a link to Hughes syndrome ....given. Me a little. Hope ...last two pregnancies. Ended in...

I'm 45 ... Have a possible diagnosis. Of ms hanging over me ..found a link to ...

goldfinger

•8 years ago

14 Replies

Bleeding disorders alongside APS

Hi I know we all have antiphosoloipid syndrome & all the unusual and horrible things that this brings with it. I just wondered if anyone has ever had a platlet...

Hi I know we all have antiphosoloipid syndrome & all the unusual and horrible th...

Lind8

•8 years ago

12 Replies

Appointment changed twice

After complaining through PALS six months ago I was sent an appointment to see Professor D,Cruz. However,this appointment has now been changed twice. my latest...

After complaining through PALS six months ago I was sent an appointment to see P...

donnabrain

•8 years ago

7 Replies

Thyroid testing

I have APS, my question is important to me as I am completely. Stuck it's about my thyroid, I am seen locally and in London and have negative results for...

I have APS, my question is important to me as I am completely. Stuck it's ab...

traceylou

•8 years ago

2 Replies

Excruciating foot pain Plantar

I have aps and other autoimmune I have recently been diagnosed with plantar in the feet..in awful pain...obviously this is soft tissue...is this common in APS,...

I have aps and other autoimmune I have recently been diagnosed with plantar in t...

traceylou

•8 years ago

5 Replies

New DVT May 21 2017

Unbelievable. I am shocked with the vigor our bodies clot despit our efforts to stop the process. We stopped the exclusive Lovenox regime May 8th. I suspect...

Unbelievable. I am shocked with the vigor our bodies clot despit our efforts to ...

KellyInTexas

Administrator•8 years ago

24 Replies

Discuss with my Haematologist ?

So at last this Wednesday I'm off to see my Haematologist (who doesn't believe in zero negative APS - I have only had one LA positive only). But def have...

So at last this Wednesday I'm off to see my Haematologist (who doesn't believe i...

WendyWoo50

•8 years ago

6 Replies

Foot pain

Husband has a lot of pain in his feet. He can't walk for more the 30 mins without feel pain in his feet. He says feels like his ankles and his arches are being...

Husband has a lot of pain in his feet. He can't walk for more the 30 mins withou...

Saved2010

•8 years ago

2 Replies

Info I got on Xarelto

My Hemotologist told me they're doing studies and we may be able to use Xarelto as blood thinner! Not for advanced people like me, because I had Arterial Clots...

My Hemotologist told me they're doing studies and we may be able to use Xarelto ...

Debbweb01

•8 years ago

12 Replies

Find a cure for APS

my first time posting, please excuse mistakes. my first stroke must have been minor, after a weekend in hospital I felt fine and didn't see any reason to stay...

my first time posting, please excuse mistakes. my first stroke must have been m...

ken42

•8 years ago

26 Replies

An informative read

Thank you for sending it our way InSpain ! https://www.ncbi.nlm.nih.gov/pubmed/28295225 MaryF

Thank you for sending it our way InSpain ! https://www.ncbi.nlm.nih.gov/pubmed/2...

MaryF

Administrator•8 years ago

5 Replies

APS support UK

I phoned APS Support UK today for some info and found the person I spoke to very helpful. So, thanks for that. Also have been watching patient's day videos on...

I phoned APS Support UK today for some info and found the person I spoke to very...

charlieab

•8 years ago

4 Replies

Cut back on Plaquenil?

Has anyone here ever been advised to cut back on Plaquenil dose because of low white blood count and low Neutrophil count? I saw a new Rheumy last week. He...

Has anyone here ever been advised to cut back on Plaquenil dose because of low w...

mylafont

•8 years ago

2 Replies

My Leg This Morning/ Unstable INR

Does any one experience "blanching" white spots with a red dot in the middle with their livido? Not raised/ not a rash. Does not itch. Quite benign. No doctor...

Does any one experience "blanching" white spots with a red dot in the middle wit...

KellyInTexas

Administrator•8 years ago

10 Replies

Desperate please help!

Hi, I have been diagnosed with APS after 2 stillbirth. I've had 6 miscarriages since then. Nothing seems to work. Lovenox or the baby aspirin. Recently, I was...

Hi, I have been diagnosed with APS after 2 stillbirth. I've had 6 miscarriages s...

Eglee21

•8 years ago

25 Replies

What is APS

Hi this is my first post, please will some one explain to me what is APS?

Chrissymargo

•8 years ago

2 Replies

Wooly head, neck pain and nausea

After a stable 12 months, I now have the symptoms listed above. My INR dropped to 1.9 a few weeks ago altho I am now back in range 2.5-3. I do not feel at all...

After a stable 12 months, I now have the symptoms listed above. My INR dropped t...

Twadd

•8 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2017

Low platelet levels in pregnancy. When were you advised to stop taking anticoagulants?

Professor Graham Hughes' Blog May 017

Time

My Story, I'm new here!

Trouble getting INR Stable

Raynaud's that doesnt react to the cold?

Self testing with lupus anticoagulant

Lupos anticoag

Aps newbie

Hello all, Sould Rebel here.

Headaches and APS

Sjogrens Questions

Living with APS

What varying ages have people been diagnosed at ....

Bleeding disorders alongside APS

Appointment changed twice

Thyroid testing

Excruciating foot pain Plantar

New DVT May 21 2017

Discuss with my Haematologist ?

Foot pain

Info I got on Xarelto

Find a cure for APS

An informative read

APS support UK

Cut back on Plaquenil?

My Leg This Morning/ Unstable INR

Desperate please help!

What is APS

Wooly head, neck pain and nausea

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