Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for June 2015

New medical paper/Hughes Syndrome and Thyroid connection

Borrowed from HSF charity FB site, as many of you will notice, both Lynn and I often suggest to patients that they really check out their Thyroid, as the TSH...

Borrowed from HSF charity FB site, as many of you will notice, both Lynn and I ...

MaryF

Administrator•9 years ago

2 Replies

Heparin

Hi all, to anyone who is having heparin injections, do you find that you have lots of lumps under the skin? I've been using arnica cream but it doesn't really...

Hi all, to anyone who is having heparin injections, do you find that you have lo...

Elfie1

•9 years ago

13 Replies

More tests

Going to the hospital early tomorrow morning for EMG, CT scan and admission to the EM unit (for 3-4 days). Hopefully I'll have answers by the time I go home...

Going to the hospital early tomorrow morning for EMG, CT scan and admission to t...

mylafont

•9 years ago

6 Replies

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Joint pain very bad - time to battle my GP again

Hi all, It's been a long time since I posted on here. Last time it was to talk about my frustration about having to wait for an immunology referral until my...

Hi all, It's been a long time since I posted on here. Last time it was to talk ...

phoenix77

•9 years ago

4 Replies

Possible APS

I don't want to sound stupid but my gp thinks I'm menopausal or imagining things I myself think I may have APS and I'm scared

I don't want to sound stupid but my gp thinks I'm menopausal or imagining things...

Hidden

•9 years ago

3 Replies

Birth Hogg dube syndrome.

Just to add yet another problem just been diagnosed with birthday Hogg dube Syndrome. Sister worried as hereditary she has same spots. It affects kidneys and...

Just to add yet another problem just been diagnosed with birthday Hogg dube Synd...

molly1969

•9 years ago

13 Replies

anti smooth muscle antibody

Anyone know what this is? I received the blood test reports from the rheumatologist but have not yet seen him. The lab sent the results to me as well as to...

Anyone know what this is? I received the blood test reports from the rheumatolo...

mozelle

•9 years ago

15 Replies

Having chest pain

Hi there, have not been on for a while but I read Health Unlocked all the time. Diagnosed with APS in 2007 and on warfarin. Had a stroke in 2006 but have...

Hi there, have not been on for a while but I read Health Unlocked all the time. ...

MaryH

•9 years ago

3 Replies

Hello

Hi everyone. I have not been on here for a while, as back and forwards to hospital appointments. After been discharged from St Thomas's, I have been seeing...

Hi everyone. I have not been on here for a while, as back and forwards to hospit...

bernieembleton

•9 years ago

20 Replies

6 months on...

Well last two weeks seen haematologist & rheumatolagist...still on xarelto for my blood but way below therapeutic range so now daily asprin too. Funny enough I...

Well last two weeks seen haematologist & rheumatolagist...still on xarelto for m...

AngelinaN

•9 years ago

13 Replies

Help/advise

Hope everyone is well. Dont know if anyone can help, i had blood in my urine last week which was dark brown, rang NHS direct arranged appointment with out of...

Hope everyone is well. Dont know if anyone can help, i had blood in my urine la...

teadonna

•9 years ago

5 Replies

To make you smile

I saw this today, and although very frustrating for most of us, this did make me giggle, so decided to share xxx

I saw this today, and although very frustrating for most of us, this did make me...

Sal0712

•9 years ago

36 Replies

Lupron Depot

Hi! Anyone with APS taking the drug Lupron Depot to treat their endometriosis/adenomyosis. I would like to know your personal experience as my obgyn has...

Hi! Anyone with APS taking the drug Lupron Depot to treat their endometriosis/a...

Fire_fly

•9 years ago

6 Replies

Appointment with specalist

Hi Guys, I got my appointment through to see the specialist which is next month. Im not sure what to expect or what will happen. On the letter it asks for a...

Hi Guys, I got my appointment through to see the specialist which is next month...

RebeccaAnn22

•9 years ago

9 Replies

Travel Insurance success!

I thought I'd just let you know that I've found a travel insurance company who have given me an incredibly competitive price for a couple of trips I have...

I thought I'd just let you know that I've found a travel insurance company who h...

merrohawk83

•9 years ago

7 Replies

New here

Hi, I live in the US (Texas) and was diagnosed with APS/Hughes in 2011 after a series of surgeries, bleeding and blood transfusions. Apparently I had a DVT in...

Hi, I live in the US (Texas) and was diagnosed with APS/Hughes in 2011 after a s...

junipers76

•9 years ago

17 Replies

Anyone had any luck with PIP?

Hello everyone, I have recently been turned down for PIP despite being advised I would qualify for it. Had the assessment which was only short and all I was...

Hello everyone, I have recently been turned down for PIP despite being advised ...

Adam_88

•9 years ago

12 Replies

I shall be away from communication for a while

Hi everybody, I shall be away for a few days, however the forum will still be run well, thank you Dave and Lynn, and few of our long term helpers! I do have a...

Hi everybody, I shall be away for a few days, however the forum will still be ru...

MaryF

Administrator•9 years ago

18 Replies

Menstrual cycle

Hello, I have had my period 4 times this month. On the last one, I was so weak and dizzy that I had to stay off work for 2 days, because bleeding is very heavy...

Hello, I have had my period 4 times this month. On the last one, I was so weak a...

SophiaP

•9 years ago

6 Replies

Hughes and Fibromyalgia

Hi I have been just Dx with Hughes and fibro, I dx myself with the fibro yrs ago. I'm a CNA and now an MA in the medical field for about 25yrs. Which makes me...

Hi I have been just Dx with Hughes and fibro, I dx myself with the fibro yrs ago...

conwat

•9 years ago

11 Replies

Patient day notes.

Hello all, Does anybody know if we would be able to view or buy the notes from this years patients day? I've read previous years and found them very...

Hello all, Does anybody know if we would be able to view or buy the notes from ...

Tinythepanda

•9 years ago

2 Replies

Query about rheumatologist

Hi everyone, I have noticed a number of people talking about seeing a rheumatologist and although this seems like a foolish question, I am wondering how a...

Hi everyone, I have noticed a number of people talking about seeing a rheumato...

stickybusiness

•9 years ago

7 Replies

left side of back of head painful off and on

pain on back side of head left side. intermittent, sharp, very brief

macwmphy

•9 years ago

2 Replies

New Jersey & NYC ALS and Lupus People

Who on this wonderful site is from NJ or NYC (hopefully Manhattan)? Someone contacted me from NJ and I accidentally deleted their post before I replied. I'm...

Who on this wonderful site is from NJ or NYC (hopefully Manhattan)? Someone con...

loretta1106

•9 years ago

17 Replies

Professor Graham Hughes' Blog May 2015

May 2015 May was best forgotten as far as the weather was concerned – rain, cold and windy – once again one felt sorry for the tourists huddled on the open...

May 2015 May was best forgotten as far as the weather was concerned – rain, col...

MaryF

Administrator•9 years ago

2 Replies

Weird episodes.

Hey, how is everyone doing? I wanted to ask you guys a question about some weird episodes I've been having lately. I have these periods for up to an hour where...

Hey, how is everyone doing? I wanted to ask you guys a question about some weird...

Hidden

•9 years ago

9 Replies

Can some symptoms be due to inr that day?

Hi all! I apologise if this has been asked before..I have not been on here for a while. I was diagnosed with aps and test positive for lupus a yr ago now...

Hi all! I apologise if this has been asked before..I have not been on here for a...

gemgemz

•9 years ago

8 Replies

APS

Hi I am going to see haematology at hallamshire hospital on 9th July she ment to know all about APS so I may be getting some where iv been in a lot of pain...

Hi I am going to see haematology at hallamshire hospital on 9th July she ment to...

Lesley61

•9 years ago

7 Replies

APS Symptoms

I have a appointment with a Rheumatologist this week. I was diagnosed with APS 2 years ago and am on 4 mg of Coumadin and a ASA 81 mg. My symptoms seem to be...

I have a appointment with a Rheumatologist this week. I was diagnosed with APS 2...

csue2

•9 years ago

14 Replies

Still Clotting

Hi everyone hope you are well. I've just come out of hospital after a sixth PE I also had a stroke in February this dispute the fact that I'm on 80mg Clexane...

Hi everyone hope you are well. I've just come out of hospital after a sixth PE I...

margaretjo

•9 years ago

19 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2015

New medical paper/Hughes Syndrome and Thyroid connection

Heparin

More tests

Joint pain very bad - time to battle my GP again

Possible APS

Birth Hogg dube syndrome.

anti smooth muscle antibody

Having chest pain

Hello

6 months on...

Help/advise

To make you smile

Lupron Depot

Appointment with specalist

Travel Insurance success!

New here

Anyone had any luck with PIP?

I shall be away from communication for a while

Menstrual cycle

Hughes and Fibromyalgia

Patient day notes.

Query about rheumatologist

left side of back of head painful off and on

New Jersey & NYC ALS and Lupus People

Professor Graham Hughes' Blog May 2015

Weird episodes.

Can some symptoms be due to inr that day?

APS

APS Symptoms

Still Clotting

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