Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for August 2011

Alternative medicine

Does anyone know of any natural remedies which could benefit to HS's patients? I asked my rheumatologist once and he almost laughed at me!! Obviously...

Does anyone know of any natural remedies which could benefit to HS's patients? I...

Carla

•13 years ago

4 Replies

Good Luck and Congratulations to Kate on her wedding this Friday (2/09/11) !!!!

Good luck and enjoy the day Kate love paddy and Clan

paddyandlin

•13 years ago

17 Replies

Prof Hughes' blog August 2011

Last day of August. Grey and cold. “The coldest summer for eighteen years” – how we British love our records! Earlier this month, I gave two lectures in...

Last day of August. Grey and cold. “The coldest summer for eighteen years” – h...

Hidden

•13 years ago

2 Replies

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Help

Feeling very low. Had results from another APS test and it's come back negative and now they are saying that my origanal positive tests were only 7 weeks apart...

Feeling very low. Had results from another APS test and it's come back negative ...

Hanna

•13 years ago

7 Replies

Drs think I have pulmonary hypertension ...

I have a whole raft of tests being carried out over next couple of weeks to see if I have pulmonary hypertension. The consultant thinks I do. I know nothin...

I have a whole raft of tests being carried out over next couple of weeks to see ...

travelnut

•13 years ago

3 Replies

In Hospital at mo pleased that a opthalmologist and a doctor seem to support the theory of micro clots!

Hi Guys, since last blog i am currently on day release ;-) from hospital, I got admitted thursday via gp referral, i asked the receptionist at my surgery...

Hi Guys, since last blog i am currently on day release ;-) from hospital, I...

kathyD64

•13 years ago

10 Replies

I'm concerned that plavix wont prevent a re-ocurrance of a clot

I had a stroke in 2006 at the age of 44. this is how I became aware that I had hughes syndrome. After my diagnosis I was put on Coumadin. I began having...

I had a stroke in 2006 at the age of 44. this is how I became aware that I had h...

JOHNN

•13 years ago

3 Replies

Warfarin: love & hate

I've been on Warfarin for the last 6 months and although it makes me feel good I can't stop thinking about what side effects it will give in the future as I...

I've been on Warfarin for the last 6 months and although it makes me feel good I...

Carla

•13 years ago

7 Replies

DLA help please

My DLA is up for renewal soon each time I end up at a Tribunal but always win. I know we all have different syptoms but does anyone have some helpful tips as I...

My DLA is up for renewal soon each time I end up at a Tribunal but always win. I...

TJSTICKYBLOOD

•13 years ago

13 Replies

do you think i may have hughes syndrome?

i are desperate for information i have many of the symptoms of hughes but a recent test has shown that the anti-Cardiolipin lgM was 50 GPLU/ml but has now...

i are desperate for information i have many of the symptoms of hughes but a rece...

alanpaul

•13 years ago

10 Replies

Self management and long-distance travelling

Hello All. I have done a considerable amount of long-distance travelling across several time zones in the last few years and have some very useful tips for...

Hello All. I have done a considerable amount of long-distance travelling acros...

YvonneW

•13 years ago

14 Replies

Potential for a group in East Suffolk

If anybody is interested out there, I would be happy to help start a useful group in the Woodbridge area. Mary

If anybody is interested out there, I would be happy to help start a useful grou...

MaryF

Administrator•13 years ago

6 Replies

Any Hughies in Yorkshire? Fancy a meeting?

I'm near Ilkley

Eliza_E

•13 years ago

4 Replies

Hi is there anyone from the Lanc's area out there, would appreciate contact, suffering at mo!! Hughes, Lupus sle and sjogrens. Jan x

Jan2201

•13 years ago

11 Replies

Creatine kinase elevated on blood tests

Hi I got called back in for repeat of above blood test, apparantly last weeks result very high? I have high cholesterol, 9.6 in may so was started on...

Hi I got called back in for repeat of above blood test, apparantly last weeks r...

jessielou

•13 years ago

6 Replies

Staffordshire meeting!

If I was to become a group leader for my area......who of you all would be able to be able to meet up with me ? It would be at The Stanhope on the Ashby road...

If I was to become a group leader for my area......who of you all would be able ...

Suzypawz

•13 years ago

6 Replies

What a surprise ...

Hi all, I am from Serbia, and living with a diagnosis of APS 8 months. Whatever it is difficult to reach a diagnosis, I had the good fortune to meet a great...

Hi all, I am from Serbia, and living with a diagnosis of APS 8 months. Whateve...

malena

•13 years ago

4 Replies

Travelling.

Went to Tintagel in Cornwall Frday - Sunday. Hubby had a 'Bon Jovi' tribute band gig there on the Saturday. Thought I had already posted this...

Went to Tintagel in Cornwall Frday - Sunday. Hubby had a 'Bon Jovi' tribute...

Suzypawz

•13 years ago

3 Replies

Anticoagulation Education Day

Just a quick heads up about the Education Day being organised by Anticoagulation Europe on 29th September 2011. It's free to enter and there is a section on...

Just a quick heads up about the Education Day being organised by Anticoagulation...

Hidden

•13 years ago

8 Replies

Anyone in the Bromley area interested in meeting up in my Wool shop for a cuppa?

SharontheSheep

•13 years ago

4 Replies

Coagucheck Machine Cost.

Re the question about the price of the Coagucheck Machines. They are in the region of £400. Not cheap, but as I have said previously well worth it for the...

Re the question about the price of the Coagucheck Machines. They are in the regi...

JoyceyMee33

•13 years ago

4 Replies

Disabilities

I was just wanted to ask how many people have a physical disability for example wheelchair user lost of use of arm leg and was it caused by the APS?

I was just wanted to ask how many people have a physical disability for example ...

paddyandlin

•13 years ago

4 Replies

stroke and hughes

Without going into long details I had a stroke 13yrs ago, at 46, but it happened under anaesthetic and the neurolgist I was referred to lied to cover his...

Without going into long details I had a stroke 13yrs ago, at 46, but it happened...

panda60

•13 years ago

4 Replies

About me and APS & thank goodness for opticians!!

Hi i have posted a few times but have not really blog about myself. My name is kathy i live in bristol i am 47 married have a hubby andy, one daughter, rachel,...

Hi i have posted a few times but have not really blog about myself. My name is k...

kathyD64

•13 years ago

4 Replies

Coagucheck Machines.

Hi Stuart D. I started usinging my machine about two years after being diagnosed. When I was told I would be on warfarin for life I thought it would be a...

Hi Stuart D. I started usinging my machine about two years after being diagno...

JoyceyMee33

•13 years ago

1 Reply

Trying to get more information

I was told I had pregnancy Lupus 15 years ago when my daughter was born at 26 weeks and died 2 weeks later, in which time I had a clot on my lung. I've had...

I was told I had pregnancy Lupus 15 years ago when my daughter was born at 26 we...

tracydavies

•13 years ago

12 Replies

Pain in the knees and feet

please since I am new to all this, can someone tell me why sometimes I have trouble walking, and why your knees hurt? have a diagnosis for a year and using 100...

please since I am new to all this, can someone tell me why sometimes I have trou...

malena

•13 years ago

6 Replies

Not the whole truth because I've forgotten most of it!

Okay this is me today, 46, fat, I may have already done one of these and forgotten that I've done it. I have APS, I also have a whole raft of other things that...

Okay this is me today, 46, fat, I may have already done one of these and forgott...

SharontheSheep

•13 years ago

5 Replies

Have you heard that Microvisk raises £2.5m for blood-clot monitor

Sorry this is not a question but information I would like to share. A NORTH Wales company has developed a handheld device to monitor the blood-clotting...

Sorry this is not a question but information I would like to share. A NORTH Wa...

hazel595

•13 years ago

7 Replies

APS: New anticoagulant medicines

Does anyone know what steps are being taken to determine if Dabigatran is a safe warfarin replacement for APS warfarin users? (Or any other alternative...

Does anyone know what steps are being taken to determine if Dabigatran is a safe...

StuartD

•13 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2011

Alternative medicine

Good Luck and Congratulations to Kate on her wedding this Friday (2/09/11) !!!!

Prof Hughes' blog August 2011

Help

Drs think I have pulmonary hypertension ...

In Hospital at mo pleased that a opthalmologist and a doctor seem to support the theory of micro clots!

I'm concerned that plavix wont prevent a re-ocurrance of a clot

Warfarin: love & hate

DLA help please

do you think i may have hughes syndrome?

Self management and long-distance travelling

Potential for a group in East Suffolk

Any Hughies in Yorkshire? Fancy a meeting?

Hi is there anyone from the Lanc's area out there, would appreciate contact, suffering at mo!! Hughes, Lupus sle and sjogrens. Jan x

Creatine kinase elevated on blood tests

Staffordshire meeting!

What a surprise ...

Travelling.

Anticoagulation Education Day

Anyone in the Bromley area interested in meeting up in my Wool shop for a cuppa?

Coagucheck Machine Cost.

Disabilities

stroke and hughes

About me and APS & thank goodness for opticians!!

Coagucheck Machines.

Trying to get more information

Pain in the knees and feet

Not the whole truth because I've forgotten most of it!

Have you heard that Microvisk raises £2.5m for blood-clot monitor

APS: New anticoagulant medicines

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