Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive anticardiolipin antibodies previously - but I went to St Thomas' at last and i have showed positive, My IGM levels have consistently showed as elevated and the doctor I saw has confirmed that I have always tested positive and never should have had the struggles and the problems with consultants that ive faced. He also seems to think that a genetic trait in my family of early onset dementia could in fact be caused by Hughes rather than a gene. Confirmed also by the fact that my mother was never actually given a post mortem and the reason for the dementia was poor blood supply to the brain on cat scan. This has relieved me no end,and I feel so much more positive for my future and that of my childrens. The doctor I saw is such an amazing man, with such passion for his work I really dont know how I can ever thank him. Emotions were very high and im only just coming back down to earth I think, im so glad I went and fought for so long to be heard for the sake of my family - all the best for the new year xxxxxxxxxxxxxx
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