Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2016

Help needed

Hi I havent posted for a while but I do read the posts. I am in need of any suggestions that may help me with my problem. Basically I have aps osteoarthritis...

Hi I havent posted for a while but I do read the posts. I am in need of any sugg...

margaretjo

•8 years ago

5 Replies

Skin discouloration

Hi all, can I ask if anyone who is taking medication e.g.. plaquenil ,tinzaparin ,has experienced skin discoloration when Waring jewellery. My SOS bracelet is...

Hi all, can I ask if anyone who is taking medication e.g.. plaquenil ,tinzapari...

Elfie1

•8 years ago

6 Replies

The more infomation we get to know about APS (Stickyblood), would benefit someone else's question. So please join in, the more the merrier.

I have already put up this post before I actually saw this link. I'm an APS sufferer, have thrombosis, I've had many DVT's & PE's. I know that APS is genetic,...

I have already put up this post before I actually saw this link. I'm an APS suf...

Firefoxie007

•8 years ago

90 Replies

Want to take advantage of all our features? Just log in!

What range is the Beta 2's and Cardiolipids do people have?

I am just curious about numbers is all. Since reading all the posts and seeing different conditions, I was just wondering what role the numbers play in...

I am just curious about numbers is all. Since reading all the posts and seeing d...

JanetL

•8 years ago

8 Replies

ALLERGIES AND APS

I've noticed that many APS patients have allergies to meds and other things! It seems to b very common with APS patient! I'm wondering why? Is allergies...

I've noticed that many APS patients have allergies to meds and other things! It ...

Debbweb01

•8 years ago

6 Replies

Update on MRI's

Hi I had MRI of knee and throat and decided I couldn't afford to go back to DICS to get result! Don't think they liked that and wouldn't get on phone to talk...

Hi I had MRI of knee and throat and decided I couldn't afford to go back to DICS...

Debbweb01

•8 years ago

11 Replies

Lupus unit

had annual review today saw a different Dr he did introduce himself,but I can't recall his name,but I hope I get him again he has started me on......

had annual review today saw a different Dr he did introduce himself,but I can't ...

donnabrain

•8 years ago

4 Replies

Can anyone advise me how test results for Beta 2 Glycoprotein 1 Antibodies IgG (and IgM) are normally reported?

Hi, I would be grateful if anyone can tell me how test results for Beta 2 Glycoprotein 1 Antibodies IgG and IgM are normally reported. I had a Beta 2...

Hi, I would be grateful if anyone can tell me how test results for Beta 2 Glycop...

Spicer21

•8 years ago

13 Replies

Aps and fatigue

Hi ive aps ,type1 diabetes ,addisons disease and vasculitis gca pmr.Ive been told by all consultants that fatigue is part of autoimmune illnesses.Anyone have...

Hi ive aps ,type1 diabetes ,addisons disease and vasculitis gca pmr.Ive been tol...

whitleybayfc

•8 years ago

18 Replies

Got some tests results back...

Looks like I don't have APS based on these test results. Also dr said they were normal, but still wanted to run them. Here goes, may have missed one...nurse...

Looks like I don't have APS based on these test results. Also dr said they were...

annabettina

•8 years ago

15 Replies

Yorkshire specialists

Can anyone recommend an aps specialist in Yorkshire . Been to one I Harrogate but he don't specialise in aps . There's one in leeds but he only sees...

Can anyone recommend an aps specialist in Yorkshire . Been to one I Harrogate...

stargazer5761

•8 years ago

12 Replies

Stomach issues with APS?

Does anyone on here have stomach issues digestive issues with APS? I have severe constipation blood in stools bloating nausea and gas. Pain in upper right...

Does anyone on here have stomach issues digestive issues with APS? I have severe...

Nanny23

•8 years ago

47 Replies

Do haematologists know much about APS? Am poss being referred to one pre cholecystectomy. Tested pos for APS Abs, but test needs repeating.

Hi, I am on a NHS waiting list for gallbladder surgery as I have a large gallstone that's causing me pain. (I am in the UK.) At a recent consultation at my...

Hi, I am on a NHS waiting list for gallbladder surgery as I have a large gallsto...

Spicer21

•8 years ago

28 Replies

Sticky Blood

Since when has this community been called the Sticky Blood-Hughes Syndrome community. I know I have been absent for a while but really?? If anything calling...

Since when has this community been called the Sticky Blood-Hughes Syndrome commu...

Elaine77c

•8 years ago

15 Replies

Food tastes weird.

So i have noticed, that since i have been ELIQUIS 5MG twice a day for sticky blood, my taste budds have changed. This is very strange toningt i had a salad,...

So i have noticed, that since i have been ELIQUIS 5MG twice a day for sticky blo...

Pittstop

•8 years ago

8 Replies

Fundraiser

Hi everyone My son, Greg, is participating in the Prudential Ride London Surrey 100 mile cycle event next Sunday. He will be raising money for the Hughes...

Hi everyone My son, Greg, is participating in the Prudential Ride London Surrey ...

stillwaiting

•8 years ago

3 Replies

Swapping from rivaoxaban to warfarin

Has anyone swapped from rivaoxaban to warfarin and if so why . I have been on rivaloxaban for nearly 2 years but I just wonder if I would feel better on...

Has anyone swapped from rivaoxaban to warfarin and if so why . I have been on r...

stargazer5761

•8 years ago

7 Replies

Another young life wasted as Doctors don't recognise the signs of clots

http://www.bbc.co.uk/news/uk-england-shropshire-36871390?ocid=socialflow_twitter&ns_mchannel=social&ns_campaign=bbcnews&ns_source=twitter

http://www.bbc.co.uk/news/uk-england-shropshire-36871390?ocid=socialflow_twitter...

Kittybaker

•8 years ago

11 Replies

Finally got a diagnosis of Antiphospholipid syndrome.

Hello. So I had my long awaited for appointment with Dr Vanessa Martlew at the Royal Liverpool hospital on Wednesday. She was fabulous. She's so knowledgeable...

Hello. So I had my long awaited for appointment with Dr Vanessa Martlew at the ...

Billie-Jo79

•8 years ago

13 Replies

How can someone with APS got diagnosed with MS

I was at the clinic today, she is excellent in her field especially APS. I've been on Fragmin x 2 10.000 units for a year. (But put back on waferin after a...

I was at the clinic today, she is excellent in her field especially APS. I've be...

Firefoxie007

•8 years ago

24 Replies

High Anti-beta2-glycoprotein-1 test results - advice needed.

Hi, I've just had Hughes Screening blood tests done via Medichecks. Everything was within range normal except for BETA-2-GLYCOPROT 1 ABS: IGG and...

Hi, I've just had Hughes Screening blood tests done via Medichecks. Everything ...

Spicer21

•8 years ago

5 Replies

About doctor Jill Schofield.

Here is a message I got from a member on the APS Facebook group I belong to. It explains what happened to Dr. Schofield. Thank you for the add. My daughter is...

Here is a message I got from a member on the APS Facebook group I belong to. It ...

Hidden

•8 years ago

32 Replies

Calcium

Hi has calcium levels anything to do with APS , had a routine health check at my Dr and he phoned me yesterday saying calcium below normal level . I eat well...

Hi has calcium levels anything to do with APS , had a routine health check at my...

amy1808

•8 years ago

6 Replies

Low Dose Naltrexone/LDN?

Hello! Haven't posted in a while and have been having ups and downs. I live in California and have state medical healthcare/HMO. I pay out of pocket for a...

Hello! Haven't posted in a while and have been having ups and downs. I live in C...

ehc918

•8 years ago

7 Replies

An incredibly useful paper, via Thyroid UK, an incredibly hard working charity, making a real difference

http://www.thyroiduk.org.uk/tuk/TUK_PDFs/diagnosis_and_treatment_of_hypothyroidism_issue_1.pdf MaryF

http://www.thyroiduk.org.uk/tuk/TUK_PDFs/diagnosis_and_treatment_of_hypothyroidi...

MaryF

Administrator•8 years ago

7 Replies

After a hysterectomy Instead of HRT what alternatives are there for us with APS?!

I'm having a full hysterectomy this week and have started day 2 of the bridging protocol. Besides being apprehensive about the whole thing, I am worried that...

I'm having a full hysterectomy this week and have started day 2 of the bridging ...

loppylou68

•8 years ago

40 Replies

Flying with aps

We are about to make a short hall flight to jersey from england. This is to celebrate or ruby wedding. We have not flown since my husband had a stroke 2 weeks...

We are about to make a short hall flight to jersey from england. This is to cele...

Vespa1

•8 years ago

12 Replies

I AM NOT SERONEGATIVE!

So it has taken me 3 ½ years and nearly 2000 miles to finally be diagnosed and treated, despite going the best hospitals in NYC. I went to see Dr. Jill...

So it has taken me 3 ½ years and nearly 2000 miles to finally be diagnosed and t...

AnnNY

•8 years ago

21 Replies

Sticky blood

Hi all, I am 51yrs old female, and was told i have lupus anticoagulant ( sticky blood ). Dr had me ln plavix 75mg a day, but i had a blood clot in right lung,...

Hi all, I am 51yrs old female, and was told i have lupus anticoagulant ( sticky...

Pittstop

•8 years ago

27 Replies

Numb soles

I have felt numbness or tingling in soles for few days. Has anyone experienced this with APS or could it be something else?

I have felt numbness or tingling in soles for few days. Has anyone experienced t...

Leenalina

•8 years ago

18 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2016

Help needed

Skin discouloration

The more infomation we get to know about APS (Stickyblood), would benefit someone else's question. So please join in, the more the merrier.

What range is the Beta 2's and Cardiolipids do people have?

ALLERGIES AND APS

Update on MRI's

Lupus unit

Can anyone advise me how test results for Beta 2 Glycoprotein 1 Antibodies IgG (and IgM) are normally reported?

Aps and fatigue

Got some tests results back...

Yorkshire specialists

Stomach issues with APS?

Do haematologists know much about APS? Am poss being referred to one pre cholecystectomy. Tested pos for APS Abs, but test needs repeating.

Sticky Blood

Food tastes weird.

Fundraiser

Swapping from rivaoxaban to warfarin

Another young life wasted as Doctors don't recognise the signs of clots

Finally got a diagnosis of Antiphospholipid syndrome.

How can someone with APS got diagnosed with MS

High Anti-beta2-glycoprotein-1 test results - advice needed.

About doctor Jill Schofield.

Calcium

Low Dose Naltrexone/LDN?

An incredibly useful paper, via Thyroid UK, an incredibly hard working charity, making a real difference

After a hysterectomy Instead of HRT what alternatives are there for us with APS?!

Flying with aps

I AM NOT SERONEGATIVE!

Sticky blood

Numb soles

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive