Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for January 2017

DRVVT test

I saw that a test a lupus anticoagulant test that IS confirmed to be valid when a patient is on warfarin is the "dilute Russell's viper venom time" (DRVVT)...

I saw that a test a lupus anticoagulant test that IS confirmed to be valid when ...

Blakerm

•7 years ago

10 Replies

Travel Insuranse

Can anyone recommend travel insurance? I've been quoted over £100. for 1 week in Spain for my daughter. I have tried a few recommended on the foundation site...

Can anyone recommend travel insurance? I've been quoted over £100. for 1 week i...

s-mac

•7 years ago

16 Replies

Bruising after kick from horse

I was kicked in the leg by my daughter's horse this morning. I called my GP for advice and I'm now waiting on her to call back. My leg and part of my foot is...

I was kicked in the leg by my daughter's horse this morning. I called my GP for ...

AvsG

•7 years ago

20 Replies

Want to take advantage of all our features? Just log in!

Help please

In 2001 I had a blood test after a miscarriage and was told I had raised antiphosolids I gave myself certoparin everyday of the pregnancy. No further......

In 2001 I had a blood test after a miscarriage and was told I had raised antipho...

7654

•7 years ago

7 Replies

Lupus anticoagulent test

Hello , I told you a few months back my Apls test came back negitive , my hematoligest has now said she wants to check me in six months for lupus &...

Hello , I told you a few months back my Apls test came back negitive , my hemat...

Hidden

•7 years ago

12 Replies

Nervous about fragmin.

Hello everyone. I was just wondering about fragmin. My consultant has asked me to start fragmin 7.500 from positive pregnancy test. As I also have aps. I'm...

Hello everyone. I was just wondering about fragmin. My consultant has asked me t...

Sally27

•7 years ago

4 Replies

Joint pain and leg and muscle cramps

Hello I am 48 And I have aps and lupus .I had a stroke and brain bleed at the age of 46 and had several pes and dvt .I had a steroid shot in December and will...

Hello I am 48 And I have aps and lupus .I had a stroke and brain bleed at the ag...

foodforthought

•7 years ago

4 Replies

Hello Everyone!!

Hope all are well!! I have a question, I was going through some posts & there was a discussion about INR levels. Difference between a finger prick & vein tests...

Hope all are well!! I have a question, I was going through some posts & there wa...

GirlfromTennessee

•7 years ago

7 Replies

Criteria for seronegative APS diagnosis

Is there a clinical / lab definition of seronegative APS or is it a subjective diagnosis? I had an arterial clot that took out kidney around June 2016,...

Is there a clinical / lab definition of seronegative APS or is it a subjective d...

Blakerm

•7 years ago

7 Replies

Wonder and worry

I was diagnosed with Factor V Leiden in 2013 when I received an injury playing softball causing me to have a DVT. I was put on lovenox then on Coumadin. The...

I was diagnosed with Factor V Leiden in 2013 when I received an injury playing s...

PrincessPeach77

•7 years ago

3 Replies

Flying when you suffer from APS.

I was diagnosed with APS twelve years ago after a severe stroke.I am taking Warfarin for life and have my INR checked regularly. All is fine but I have avoided...

I was diagnosed with APS twelve years ago after a severe stroke.I am taking Warf...

jagessar

•7 years ago

6 Replies

Adrenaline rushes?

After being diagnosed with this a few weeks back, I've stuck my head in the sand and ignored it. Now my next appointment with the haematologist is coming up...

After being diagnosed with this a few weeks back, I've stuck my head in the san...

Pink_shrimp

•7 years ago

5 Replies

Follow up on appointment with Rheuatologist on Friday 27 Jan

As promised here is the update from my appointment Friday with my Rheuatologist. She is very good and understands autoimmune diseases. She has referred me as...

As promised here is the update from my appointment Friday with my Rheuatologist....

WendyWoo50

•7 years ago

10 Replies

Advice please🙂

Hi everyone can anyone explain plaswvwhat a weak positive blood test is for antiphospholipid antibodies means, I have it myself and I have a family...

Hi everyone can anyone explain plaswvwhat a weak positive blood test is for anti...

Gilliansimba

•7 years ago

9 Replies

Deja vu

Hi there I am a migraine sufferer with a history of joint pains in the past and unexplained infertility. I had the tests for Hughes syndrome last year and only...

Hi there I am a migraine sufferer with a history of joint pains in the past and ...

Lingiz

•7 years ago

10 Replies

Joint pain

Hi I am normally a very active 42yr old male who cycles and runs 6-8 times a week but on Tuesday morning i woke up and could not move hardly (I did have a rest...

Hi I am normally a very active 42yr old male who cycles and runs 6-8 times a wee...

Coops8000

•7 years ago

4 Replies

Discharged with inr of 1.5

Hello everyone. I was in the hospital Sunday/Monday due to INR to high, 7.1 or so, It caused a serious and unrelenting bloody nose. While n the ER I received...

Hello everyone. I was in the hospital Sunday/Monday due to INR to high, 7.1 or s...

SoulRebel-APS

•7 years ago

4 Replies

Ringing voice sometimes in my ear

Hello everybody I wonder if it is ok to hear a very low ringing voice in my ear sometimes. It was rarely at the begining but now it comes more frequently

Hello everybody I wonder if it is ok to hear a very low ringing voice in my ear...

azahran

•7 years ago

17 Replies

warfarin

I take warfarin due to my heart operation few years ago, the now I have mechanical valve and I take 5mg of warfarin a day everyday I would love to have a...

I take warfarin due to my heart operation few years ago, the now I have mechanic...

Kuba19

•7 years ago

7 Replies

Got out of hospital yesterday. Can anyone tell me the symptoms of a blood clot in a kidney, besides serious pain? Or is that the symptom?

I ended up at the hospital Sunday forba severe bloody nose that would not stop and is of course a symptom of to a inr that is to high. It was 7.5 or so they...

I ended up at the hospital Sunday forba severe bloody nose that would not stop a...

SoulRebel-APS

•7 years ago

7 Replies

Preparing to see my Rheuatologist (Friday 27 January)

I have gained a lot of helpful advice from friends on this site and I thank you all. You have helped me through a few very difficult weeks (horrendous headache...

I have gained a lot of helpful advice from friends on this site and I thank you ...

WendyWoo50

•7 years ago

4 Replies

PBJ and homemade navy bean soup are mine, what are yours?

When I am trying to keep my vit k values low my go tos' are peanut butter and jam/preserves sandwiches, homemade navy bean soup with ham, skim milk and nonfat...

When I am trying to keep my vit k values low my go tos' are peanut butter and ja...

Wittycjt

•7 years ago

22 Replies

Not all fish oils are the same!

As some of you know I have always been symptom free. That is until I got a different brand of fish oil.. then I developed joint/ heart pain. I tried the new...

As some of you know I have always been symptom free. That is until I got a diffe...

Wittycjt

•7 years ago

4 Replies

Taking of supplements

Somewhere along the line I feel sure I have been told to avoid taking over the counter supplements that may interfere with Aspirin and Warfarin. (plus...

Somewhere along the line I feel sure I have been told to avoid taking over the c...

Twadd

•7 years ago

21 Replies

Random itching

Hi everybody Just joined community having been diagnosed last week with Aps I've read about pins and needles in face which I also get but does anybody get...

Hi everybody Just joined community having been diagnosed last week with Aps I've...

Leefow

•7 years ago

18 Replies

Warfrin

Since I've been back to work after Christmas Breack .i can't get my inr on my target of 4 . Been on injections of fragmine every day . The clinic has raised my...

Since I've been back to work after Christmas Breack .i can't get my inr on my ta...

Tim_Thorpe

•7 years ago

8 Replies

Fragmin injections

Hi. I accidentally hit a vein this morning when I was injecting my fragmin and have ended up with the biggest bruise on my leg. I am anxious that I injected...

Hi. I accidentally hit a vein this morning when I was injecting my fragmin and h...

KerryMorrill

•7 years ago

22 Replies

Support groups?

Are there any support groups in Tyne and Wear, north east of England, that I can go to?

Are there any support groups in Tyne and Wear, north east of England, that I can...

Hidden

•7 years ago

7 Replies

Thyroid gland

Hi everyone! I was diagnose of Aps few months ago after a deep vein thrombosis and I am better but not good. My anxiety lives with me . Now, Doctors found that...

Hi everyone! I was diagnose of Aps few months ago after a deep vein thrombosis a...

anaastgal

•7 years ago

9 Replies

Confused about acl results...

Helloo everyone... I have APS since 2010. Recently my doc said to have acl tests. after seeing the results iam a bit confused... Bcoz acl IgG is negative.....

Helloo everyone... I have APS since 2010. Recently my doc said to have acl test...

Sle_remission

•7 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2017

DRVVT test

Travel Insuranse

Bruising after kick from horse

Help please

Lupus anticoagulent test

Nervous about fragmin.

Joint pain and leg and muscle cramps

Hello Everyone!!

Criteria for seronegative APS diagnosis

Wonder and worry

Flying when you suffer from APS.

Adrenaline rushes?

Follow up on appointment with Rheuatologist on Friday 27 Jan

Advice please🙂

Deja vu

Joint pain

Discharged with inr of 1.5

Ringing voice sometimes in my ear

warfarin

Got out of hospital yesterday. Can anyone tell me the symptoms of a blood clot in a kidney, besides serious pain? Or is that the symptom?

Preparing to see my Rheuatologist (Friday 27 January)

PBJ and homemade navy bean soup are mine, what are yours?

Not all fish oils are the same!

Taking of supplements

Random itching

Warfrin

Fragmin injections

Support groups?

Thyroid gland

Confused about acl results...

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive