Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for March 2017

Where do I go now?

Hi, I have only posted once previously but am now at the end of my tether and feeling really depressed. Have suffered various symptoms for about 30 years. Last...

Hi, I have only posted once previously but am now at the end of my tether and fe...

ladykate

•8 years ago

16 Replies

Can thin blood make day to day life feel hard work??

Firstly i would like to thank u all for the brilliant advise u all gave me when i asked about my inr target being to low....to recap...I have a target of 3 and...

Firstly i would like to thank u all for the brilliant advise u all gave me when ...

gemgemz

•8 years ago

8 Replies

Very tired and no sleep

Helo. I am from Portugal i am 41 and i have a stroke. Doctor think i have APS, after stroke i do not have more migraines for 4 months. Week before i have a...

Helo. I am from Portugal i am 41 and i have a stroke. Doctor think i have APS, a...

skoll1975

•8 years ago

6 Replies

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B12

Morning lovelies , has anyone ever been told they have borderline b12 deficiency, and what happens ? is it the case you need to wait 6-8 weeks to re-test ?...

Morning lovelies , has anyone ever been told they have borderline b12 deficiency...

jilly50

•8 years ago

1 Reply

Haematologist consult.

Had my 6 monthly check up with lovely Haematologist. He was very put out when he found I was in hospital between his visits and none of the doctors looking...

Had my 6 monthly check up with lovely Haematologist. He was very put out when h...

Ozchick

•8 years ago

6 Replies

Unstable INR, Rashing Accompanying Migraines, and Hematologist considering Rituxan or Cytoxan- Reasonable?

*I'm now at 15 mg warfarin 3 times a week and 15mg 4 times a week * target INR is set at 3.5 with Fragmin injections if I fall below 2.5. ( this was set by...

*I'm now at 15 mg warfarin 3 times a week and 15mg 4 times a week * target INR i...

KellyInTexas

Administrator•8 years ago

26 Replies

Rheumatologist Visit

Hi again from the great and sadly specialist empty state of Tennessee. I have my first appointment with a rheumatologist this coming Monday and I have a...

Hi again from the great and sadly specialist empty state of Tennessee. I have m...

Morganslone

•8 years ago

16 Replies

CVID immune deficiency and antithyroglobulin anyibodies

My Immunologist returned my call today concerning the fact my thyroglobulin antibodies are elevated. She, a lovely young lady, told me that since I get 24...

My Immunologist returned my call today concerning the fact my thyroglobulin anti...

ndstephens49

•8 years ago

1 Reply

Black Cohosh for Menopause

Hi has anyone tried Black Cohosh for Menopause? Has it helped and is it ok to use when on Warfarin?

Hi has anyone tried Black Cohosh for Menopause? Has it helped and is it ok to u...

Molly100

•8 years ago

8 Replies

I am having what seems to me to be a New version of TIA's! Any advise or anyone having the same problems

I have been having a different form of what appears to be TIA's. I am absolutely fine then I get acute onset of vertigo and when o say vertigo I mean like...

I have been having a different form of what appears to be TIA's. I am absolutely...

SoulRebel-APS

•8 years ago

18 Replies

Thank you and help

First of all I want to say thank you for all the invaluable information, help and advice you give. Secondly I need your advice. I posted some time ago when...

First of all I want to say thank you for all the invaluable information, help an...

Englewood12

•8 years ago

8 Replies

Positive then negative

Hi been tested for aps 1 test came back positive then the next negitive, I have loads of symptoms, can I still have aps.?

Hi been tested for aps 1 test came back positive then the next negitive, I have...

littlesinger1

•8 years ago

3 Replies

Bridging with clexane for surgery

I have a day procedure coming up next week and I'm meant to bridge with clexane. Stop warfarin 3 days before surgery and start clexane. The doctor didn't say...

I have a day procedure coming up next week and I'm meant to bridge with clexane....

tassie

•8 years ago

7 Replies

Warfarin, INR and anti epileptic medication.

Hello, does anyone have any experiences with INR levels being affected by anti epileptic medication? I am on keppra and lamotragine as well as Coumadin for a...

Hello, does anyone have any experiences with INR levels being affected by anti e...

Mitch72

•8 years ago

2 Replies

Gluten

played around with gluten free lots of times,but always slipping back this Christmas I said right then,let's do this so three months gluten free,one accidental...

played around with gluten free lots of times,but always slipping back this Chris...

donnabrain

•8 years ago

2 Replies

Angiogram anyone?

My doctor seems to have developed a curiousity about my APS. After arterial clot, kidney loss and initial positive aps tests, a year later I am testing...

My doctor seems to have developed a curiousity about my APS. After arterial clot...

Blakerm

•8 years ago

15 Replies

Wondering if this is my problem

I have suffered with unusual migraine with aura for several years, and out of the blue had a small stroke at age 48. Drs were perplexed as BP, cholesterol etc...

I have suffered with unusual migraine with aura for several years, and out of th...

Hidden

•8 years ago

12 Replies

INR soars with antibiotics

Just returned from a stay at the hospital for deverticulitus. They gave me antibiotics of course and a regimen of them once I got home. They did not tell me...

Just returned from a stay at the hospital for deverticulitus. They gave me anti...

jeffreycampbell

•8 years ago

13 Replies

INR and Coumadin dosage

You all with INR Meters: when you get results from your INR Meter, who adjusts your dosage of Coumadin based on meter results? Do you call your doctor's office...

You all with INR Meters: when you get results from your INR Meter, who adjusts y...

ndstephens49

•8 years ago

16 Replies

I'm new here with Schamberg's Purpura

I have been told I have Schamberg's Purpura. I'm 63. It is mainly on my lower legs and comes and goes but never goes away completely. It started on the tops of...

I have been told I have Schamberg's Purpura. I'm 63. It is mainly on my lower le...

Mothersh1p

•8 years ago

4 Replies

Professor Graham Hughes' Monthly Blog March 2017

BLOG March 2017 Introduction This week we welcomed to the London Lupus Centre a visiting group of 10 nurses from Daytona State College, Florida. They have a...

BLOG March 2017 Introduction This week we welcomed to the London Lupus Centre ...

MaryF

Administrator•8 years ago

4 Replies

mrs angry

hi all I need help, had a stroke last year recovered well and luckly I am back at work, I have had trouble with symptom of aps for avery long time but was...

hi all I need help, had a stroke last year recovered well and luckly I am back a...

dan2366

•8 years ago

17 Replies

New and a little scar(r)ed - I have APS and I'm going for an IUI in a little over 3 weeks...

Long story short: I had 14 miscarriages between 2000 and 2006. The 1st 11 were a combo of home tries and IUI's. Then, I did IVF twice, and an FET. Every single...

Long story short: I had 14 miscarriages between 2000 and 2006. The 1st 11 were a...

RosyPeaches23

•8 years ago

21 Replies

Funnel web spider from Australia

They are researching this spider's venom for possible help for disabilities caused by strokes...they think it may help the brain's injury. It is in its very...

They are researching this spider's venom for possible help for disabilities caus...

Wittycjt

•8 years ago

1 Reply

APS-Antiphospholipid Antibody Syndrome/Osteoporosis/BPH.

Yes, Does anyone know of a good Doctor/Doctors for these Conditions. Thanks !!!

mxmxer

•8 years ago

9 Replies

Hughes Doc in Colorado?

Anyone know of a Hughes/APS friendly, knowledgeable or even tolerable doctor in the Colorado Springs, Colorado, USA area? Karin aka Mancoca

Anyone know of a Hughes/APS friendly, knowledgeable or even tolerable doctor in ...

Mancoca

•8 years ago

12 Replies

Hrt from Specialist

Hi I thought I would post the results from seeing the Gyny Consultant. First let me be clear, not for everyone, go see your own specialist etc. So Ive got...

Hi I thought I would post the results from seeing the Gyny Consultant. First let...

Lozzaa

•8 years ago

3 Replies

Maybe paroxetine for menopause

Newly approved, maybe this will work for those of you out there needing something. I believe it helps for hot flashes and sleep. Check it out!...Meaning check...

Newly approved, maybe this will work for those of you out there needing somethin...

Wittycjt

•8 years ago

2 Replies

Seizures, Shaking &/or Intentional Tremors Anyone?

Morning All, Does anyone else struggle with seizure "like" activity, as my docs call it, or nervous system stuff like shaking & stuttering or intentional...

Morning All, Does anyone else struggle with seizure "like" activity, as my docs ...

Mancoca

•8 years ago

11 Replies

Menapause and no sleep

Hi I am at a loss what to do, on warfarin and starting the menapause. The hot sweats and constant migraines I am experiencing are bad & keeping me awake. The...

Hi I am at a loss what to do, on warfarin and starting the menapause. The hot s...

Lind8

•8 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2017

Where do I go now?

Can thin blood make day to day life feel hard work??

Very tired and no sleep

B12

Haematologist consult.

Unstable INR, Rashing Accompanying Migraines, and Hematologist considering Rituxan or Cytoxan- Reasonable?

Rheumatologist Visit

CVID immune deficiency and antithyroglobulin anyibodies

Black Cohosh for Menopause

I am having what seems to me to be a New version of TIA's! Any advise or anyone having the same problems

Thank you and help

Positive then negative

Bridging with clexane for surgery

Warfarin, INR and anti epileptic medication.

Gluten

Angiogram anyone?

Wondering if this is my problem

INR soars with antibiotics

INR and Coumadin dosage

I'm new here with Schamberg's Purpura

Professor Graham Hughes' Monthly Blog March 2017

mrs angry

New and a little scar(r)ed - I have APS and I'm going for an IUI in a little over 3 weeks...

Funnel web spider from Australia

APS-Antiphospholipid Antibody Syndrome/Osteoporosis/BPH.

Hughes Doc in Colorado?

Hrt from Specialist

Maybe paroxetine for menopause

Seizures, Shaking &/or Intentional Tremors Anyone?

Menapause and no sleep

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