Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2019

How do I ask gp

How do I get Gp investigate further regarding my suspected sjorgens I came back negative rheumatoid factor blood test

How do I get Gp investigate further regarding my suspected sjorgens I came back ...

rach1081985

•5 years ago

21 Replies

Hosp pt3

Good morning Well, still in hosp but the end is in sight, hoping to be home on Friday. The pneumonia I had has just about cleared up after what seems a...

Good morning Well, still in hosp but the end is in sight, hoping to be home on ...

judes

•5 years ago

8 Replies

Knee Injections went well

Well after all the things i have had done recently - C spine area x rays -- lower back L-3 thru L-5 --- leg x ray's groin to ankle -- leg ultra sounds...

Well after all the things i have had done recently - C spine area x rays -- l...

jetjetjet

•5 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Feeling down

According test results I don't have sjorgens... So what next clear symptoms are there... Any advice please

According test results I don't have sjorgens... So what next clear symptoms are ...

rach1081985

•5 years ago

7 Replies

Black Coash

Hi, I’m annoyingly getting some pre menopausal symptoms, particularly at night when I get suddenly and ragingly hot. I have been in contact with St Thomas’s...

Hi, I’m annoyingly getting some pre menopausal symptoms, particularly at night w...

Suejane

•5 years ago

4 Replies

Coumadin verses Warfarin?

We have had a nurse tell us she used to be on warfarin and switched over to name brand Coumadin and has much better results keeping a stable INR. Have any of...

We have had a nurse tell us she used to be on warfarin and switched over to name...

grammy4him

•5 years ago

10 Replies

Good nrws

Been to b gp regarding sjogrens and tests done and refer rheumatology... Results next Thursday.. Feeling positive as Dr understood about link my symptoms and...

Been to b gp regarding sjogrens and tests done and refer rheumatology... Results...

rach1081985

•5 years ago

12 Replies

New to APS

Hello! I am new here and also new to the possibility of APS. I had an unprovoked DVT behind my knee in March and was put on Xeralto. Had anticoagulation...

Hello! I am new here and also new to the possibility of APS. I had an unprovok...

Drgnfly

•5 years ago

17 Replies

PAIN RELIEF AND APS

I was just wondering how many people with APS such as myself who takes large amounts of warfarin, have been advised that they are limited with any pain relief...

I was just wondering how many people with APS such as myself who takes large amo...

Jetticat

•5 years ago

30 Replies

INR levels and emotions do very strong emotions have an affect on Ur blood INR

Soul Rebel here, hope everyone is doing ok 👍🏻 Just wondering if anyone has noticed a connection between intense, prolonged emotional stress, such as the...

Soul Rebel here, hope everyone is doing ok 👍🏻 Just wondering if anyone has no...

SoulRebel-APS

•5 years ago

13 Replies

Concussion and sinus hemorrhage

Beginning of March I slid down my driveway after a bad snow and ice storm here in New Jersey and landed across the road on my head and lost Consciousness for...

Beginning of March I slid down my driveway after a bad snow and ice storm here i...

mozelle

•5 years ago

17 Replies

Hughes Syndrome and menstruation

Just looking for some reassurance regarding APS, warfarin and menstruation. I suffered a stroke in February and tested positive for APS in April, I started...

Just looking for some reassurance regarding APS, warfarin and menstruation. I su...

issybellefox

•5 years ago

14 Replies

Professor Graham Hughes' Monthly Blog - July 2019

https://ghic.world/blog/july-2019 MaryF

MaryF

Administrator•5 years ago

7 Replies

Rheumatologist for APS

My latest update on my battle to see Prof D’Cruz. The GP I used to be with phoned me Friday (I think) and I had a good moan that I wasn’t automatically being...

My latest update on my battle to see Prof D’Cruz. The GP I used to be with phon...

Stereolover

•5 years ago

16 Replies

Stupid question

How u say sjogrens

rach1081985

•5 years ago

18 Replies

I don’t bleed???

Hello my friends! I’m on Plavix and 100 mg of Lovenox! I don’t bleed when I get cut or give my shot! Does that mean my Blood too thick??? Do I need higher...

Hello my friends! I’m on Plavix and 100 mg of Lovenox! I don’t bleed when I get ...

Debbweb01

•5 years ago

25 Replies

Sjogrens syndrome?

Anybody have sjogrens ???? I suspect I have as have follow symptoms itchy eyes seem rub alot, constantly tired recurring thrush pains unexplained rash on bk of...

Anybody have sjogrens ???? I suspect I have as have follow symptoms itchy eyes s...

rach1081985

•5 years ago

14 Replies

Today from LUPUS.ORG - I believe any advances in Lupus research will help find a cure or better treatments for APS

https://www.lupus.org/news/international-lupus-community-reaches-firstever-agreement-on-barriers-to-research-drug-development-care-and-access

https://www.lupus.org/news/international-lupus-community-reaches-firstever-agree...

Piscesdreamer

•5 years ago

6 Replies

Restless lega

Anyone suffer restless legs at night wa could b should I b worry. So tired but can't sleep with it

Anyone suffer restless legs at night wa could b should I b worry. So tired but...

rach1081985

•5 years ago

41 Replies

Need a little humor?

My husband shared this image with me on Facebook. I thought some of you could relate. Laughter is the best medicine.

My husband shared this image with me on Facebook. I thought some of you could re...

Holley

•5 years ago

16 Replies

Tingling in finger tips

I was diagnosed with APS in 1992 when I had a stroke. Fortunately, I had suffered no side effects from the stroke. I have recently had my aorta valve...

I was diagnosed with APS in 1992 when I had a stroke. Fortunately, I had suffer...

msins

•5 years ago

7 Replies

Hoping for a little clarification

I was diagnosed with obstetric APS (no previous thrombosis events) in 2017, but just focussed on getting my baby here safely. Since delivery (successfully) it...

I was diagnosed with obstetric APS (no previous thrombosis events) in 2017, but ...

JustLa

•5 years ago

10 Replies

Aps positive - answers on a post card. :-) Only Joking

1) How long can a clot be present with out dispersing or moving ? 2) Can or has anyone had a surface clot in the abdomen that can be felt by touch ? 3)...

1) How long can a clot be present with out dispersing or moving ? 2) Can or ha...

Jillymo

•5 years ago

20 Replies

Hosp Pt 2

An update for you all I’m still in hosp, and struggling to get on top of pneumonia, docs are about to start the 4th different antibiotic (2ndIV) and remain on...

An update for you all I’m still in hosp, and struggling to get on top of pneumo...

judes

•5 years ago

20 Replies

APs positive - pain in groin anybody ?

I have developed a pain high up in my groin - I mentioned it to my rheumy who proceeded to measure my thighs, she also looked for discolouration. She...

I have developed a pain high up in my groin - I mentioned it to my rheumy who pr...

Jillymo

•5 years ago

65 Replies

Splinter mark?

My recent splinter mark - because of APS I was told.

Stereolover

•5 years ago

13 Replies

CBD and/or THC

How many use CBD and or THC to help with the symptoms of APS?

Skyllark

•5 years ago

13 Replies

Black vertical little lines on nail beds

Just thought I would ask if anyone gets these? They don't hurt, or was cause by trauma or from black pen. Just notice 2 more? Been getting them in last 6...

Just thought I would ask if anyone gets these? They don't hurt, or was cause by ...

wgsuzy

•5 years ago

20 Replies

eye problems

I keep seeing large floaters and yesterday I feel asleep in a chair and as I woke up I saw a baby bird landing on the cupboard, when we looked there was...

I keep seeing large floaters and yesterday I feel asleep in a chair and as I wok...

MaryH

•5 years ago

13 Replies

Hospital again

I’m a little fed up keep coming into hosp with the same prob, have pneumonia again, the strain on my heart is not good. Not sure how long it’s going to last....

I’m a little fed up keep coming into hosp with the same prob, have pneumonia aga...

judes

•5 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2019

How do I ask gp

Hosp pt3

Knee Injections went well

Feeling down

Black Coash

Coumadin verses Warfarin?

Good nrws

New to APS

PAIN RELIEF AND APS

INR levels and emotions do very strong emotions have an affect on Ur blood INR

Concussion and sinus hemorrhage

Hughes Syndrome and menstruation

Professor Graham Hughes' Monthly Blog - July 2019

Rheumatologist for APS

Stupid question

I don’t bleed???

Sjogrens syndrome?

Today from LUPUS.ORG - I believe any advances in Lupus research will help find a cure or better treatments for APS

Restless lega

Need a little humor?

Tingling in finger tips

Hoping for a little clarification

Aps positive - answers on a post card. :-) Only Joking

Hosp Pt 2

APs positive - pain in groin anybody ?

Splinter mark?

CBD and/or THC

Black vertical little lines on nail beds

eye problems

Hospital again

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive