Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for February 2023

FYI-artificial sweetener makes platelets easier to activate and form clots.

ContactAlicia Reale-Cooney216.408.7444Shannon Kelley216.318.8067Media DownloadsImages 0 Videos 1 Audio 0 Text 0Show Media DownloadsNew Cleveland...

ContactAlicia Reale-Cooney216.408.7444Shannon Kelley216.318.8067Media DownloadsI...

•1 year ago

Refusal to continue Warfarin prescription

I’m in the UK. I received a letter yesterday from my GP to say that I would be given no more Warfarin. I checked online and yes, I can reorder my other meds...

I’m in the UK. I received a letter yesterday from my GP to say that I would be ...

•1 year ago

COVID-19 treatment options for those taking Warfarin

Hello. I have not contracted COVID-19, but most others I know have had it, and many treat successfully with Paxlovid. I learned recently that Paxlovid...

Hello. I have not contracted COVID-19, but most others I know have had it, and ...

•1 year ago

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Gallbladder removal and APS I am in this situation

I have been told for 31 years I’m too high risk for any surgery and I need quite a few Now I’ve had many flares with my gallbladder and am currently in...

I have been told for 31 years I’m too high risk for any surgery and I need quite...

•1 year ago

APs and Fatigue

Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page...

Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by ...

•1 year ago

double strand Ana

what’s the difference between double strand and triple. Which one is more severe?

what’s the difference between double strand and triple. Which one is more severe...

•1 year ago

Just told I need a partial Nephrectomy

Hi Friends- I just found out that I have a 4.5 cm mass in my kidney. I saw a specialist that has told me that I will need a partial Nephrectomy. This is...

Hi Friends- I just found out that I have a 4.5 cm mass in my kidney. I saw a s...

•1 year ago

List of books and other pointers

Hello again! I will keep posting list of interesting books and pointers here that I come across. Not all are specific to APS. Negotiating situation like...

Hello again! I will keep posting list of interesting books and pointers here t...

•1 year ago

Catastrophic APS

Please help!! My APS has turned catastrophi catastrophic. It has shut down my adrenal gland & now my kidneys. I started dialysis last week. They have tried...

Please help!! My APS has turned catastrophi catastrophic. It has shut down my ad...

•1 year ago

Been Recently Diagnosed With Having MGUS But Don’t Fully Understand This New Diagnosis

Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemia has Raised To 20 it Was 16 in August Obviously Another Blood Test In 3 Months...

Any Body Heard Of This Diagnosis As Well As An APS Sufferer My paraproteinaemi...

•1 year ago