Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for October 2023

Platelets

Hi could anyone offer some advice please My platelets were slightly raised after a routine blood test 425, I believe the upper normal limit is 400 My Gp...

Hi could anyone offer some advice please My platelets were slightly raised after...

•6 months ago

Kelly from Texas

I read all the posts as I am sure many do But I think you mentioned that you were sensitive to medications? I am an adoptee and have absolutely no medical...

I read all the posts as I am sure many do But I think you mentioned that you w...

•6 months ago

United States APS Doctor Specialist List

I had one thrombosis event (CRVO) in May 2022 and then was diagnosed with APS shortly thereafter. I have only been on aspirin, which was input from an...

I had one thrombosis event (CRVO) in May 2022 and then was diagnosed with APS sh...

•6 months ago

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Alternative to warfarin?

Have any DOAC'S been approved as a safe alternative to warfarin in treating primary APS? I live in the States and will be meeting with a non APS specialist...

Have any DOAC'S been approved as a safe alternative to warfarin in treating prim...

RavenWolfnHoofUSA

•6 months ago

Travel Insurance

Hi I’m in the UK and wondering about different types of insurance. I know that with APS we can’t get life insurance but I just wondered if anyone ever...

Hi I’m in the UK and wondering about different types of insurance. I know that...

•6 months ago

Home again!

My trip overseas was very hot and the river cruise was great-no cooking for nearly a month! The downside is that after I travel home in the giant aluminium...

My trip overseas was very hot and the river cruise was great-no cooking for near...

•6 months ago

Fondaparinox

After a recent visit to a consultant, the option of a move from LMWH to Fondaparinox was raised as an option to reduce risks of bleeding and osteoporosis as I...

After a recent visit to a consultant, the option of a move from LMWH to Fondapar...

•7 months ago

Mild aortic stenosis...is this normal?

A heart mumur was picked up when I was at the a&e back in June. Had an echocardiogram done September. Finally after trying to chase the a&e cardiologist who...

A heart mumur was picked up when I was at the a&e back in June. Had an echocardi...

•7 months ago

Is there a dr at Ninewells who deals with APS?

In Dec 2020 I had what was thought to be a TIA. I mentioned to the stroke nurse that I had tested positive before for lupus anticoagulant and my rheumatologist...

In Dec 2020 I had what was thought to be a TIA. I mentioned to the stroke nurse ...

•7 months ago

Password Problems?

Hi and thank you for your help. I was expecting a link to be sent to me so I could make another password but it isn’t doing that (still) however, I can see...

Hi and thank you for your help. I was expecting a link to be sent to me so I cou...

•7 months ago

biting lip

just wondering if anyone else mananages to bite their in side lip when inr low making it sore Just wondering as my coaguchex machine no longer works and I...

just wondering if anyone else mananages to bite their in side lip when inr low m...

•7 months ago

My Password

Hi I’m trying to make a new password as I’ve forgotten my original one. I have had a link emailed to me to make a new password but there’s nowhere on that link...

Hi I’m trying to make a new password as I’ve forgotten my original one. I have h...

•7 months ago

Healthy gut and APS

hello- new here. My 11 year old daughter was just diagnosed after we rushed her to the hospital when we noticed a swollen, warm right leg. After reading and...

hello- new here. My 11 year old daughter was just diagnosed after we rushed her ...

FiguringThingsOut

•7 months ago

stopping warfarin

Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation...

Hi, I am having a lumbar steroid injection for a slipped disc. the doctor perf...

•7 months ago

Stopping blood thinner for surgery

Hi All, In late July I had either a TIA or a migraine, the doctors are divided on what it was. In the course of the scans and tests, they found an aneurysm...

Hi All, In late July I had either a TIA or a migraine, the doctors are divided o...

•7 months ago

I have APS, Hughes Syndrome

I have APS, and every time I take the test for Covid, it comes up positive. I have so many antibodies in my system because of Lupus, I wonder if I am positive...

I have APS, and every time I take the test for Covid, it comes up positive. I ha...

•7 months ago

covid booster eligibility

Hi This has probably already been answered but I cant find the info. Does anyone know if people with APS are in at risk group and so eligible for the current...

Hi This has probably already been answered but I cant find the info. Does anyon...

•7 months ago

at risk of APS

Hi I haven’t been diagnosed with APS syndrome because the rheumatologist stated that I haven’t had a stroke or miscarriage. Thankfully. However, I do have...

Hi I haven’t been diagnosed with APS syndrome because the rheumatologist stated...

•7 months ago