Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for October 2018

Rivaroxiban- new evidence that it doesn’t work

My doctor has just called me to say I have to go back on warfarin because there is new evidence that Rivaroxiban is not effective in antiphospholipid Syndrome....

My doctor has just called me to say I have to go back on warfarin because there ...

marion4711

•6 years ago

23 Replies

Feeling defeated after IVF chemical pregnancy

Really feeling bad as my IVF doctor did not practice APS treatment protocol for my 2nd IVF that resulted in chemical pregnancy at 6 weeks. The doctor only...

Really feeling bad as my IVF doctor did not practice APS treatment protocol for ...

BabyWonder

•6 years ago

13 Replies

Dr Scurr on The Daily Mail answers a question regarding infertility

Dr Scurr is very supportive of our charity and attended our launch in London. Here he is on The Daily Mail answering a question from his regular column:...

Dr Scurr is very supportive of our charity and attended our launch in London. H...

MaryF

Administrator•6 years ago

1 Reply

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Donations

Hi. As I have told everyone sometime ago, my son suffered his first stroke at the age of 30 and by the time he was 58 had had 12 in all. He was not diagnosed...

Hi. As I have told everyone sometime ago, my son suffered his first stroke at t...

Zimmer

•6 years ago

8 Replies

Professor Graham Hughes' Monthly Blog - October 2018

https://ghic.world/self-help/blog/october-2018 MaryF

MaryF

Administrator•6 years ago

26 Replies

Need advice

Hi everyone, I'm moving home, and I'm being assessed by local authorities as to my needs, not necessarily now but also my future, but I can't seem to get them...

Hi everyone, I'm moving home, and I'm being assessed by local authorities as to ...

dawnzy

•6 years ago

5 Replies

Research

Hiya where would I find good information for aps as want to get as much info as I can. Thank you

Hiya where would I find good information for aps as want to get as much info as ...

Ash0507

•6 years ago

5 Replies

Can People feel blood clots?

Hi Guys, Long story short, I have had two separate incidents. (3 days apart?). Where I have had a fire like, burning feeling in my veins, only to see a very...

Hi Guys, Long story short, I have had two separate incidents. (3 days apart?). ...

surrenderhealth

•6 years ago

6 Replies

Time release Topamax for migraines!

I have suffered with migraines for over 60 years. Most recently I was getting an average of 15 migraines with aura a month. I also have antiphospholipid...

I have suffered with migraines for over 60 years. Most recently I was getting an...

Sophie1421

•6 years ago

9 Replies

Confused with results!

I am totally confused with these recent results!: Positive DRVVT and SCT in October 2017 with borderline CT result in November 2016. On repeat in January 2018...

I am totally confused with these recent results!: Positive DRVVT and SCT in Oct...

balamuti

•6 years ago

1 Reply

Kay Thackray's new book regarding Sticky Blood

Her new book will be available via our charity website soon, and in the meantime if you do go looking for it on line, make sure you look for the most recent...

Her new book will be available via our charity website soon, and in the meantime...

MaryF

Administrator•6 years ago

10 Replies

Reintroducing myself

Hi all, I’m Sheena, I’ve been a member of this forum since it’s early days and was for a few years an administrator, unfortunately due to health issues, a...

Hi all, I’m Sheena, I’ve been a member of this forum since it’s early days and w...

jessielou

•6 years ago

11 Replies

Involuntary movement-Chorea

Good morning everyone, Last I wrote on here I was experiencing the same concerns that I continue to work through. I have been back at Oregon Health and...

Good morning everyone, Last I wrote on here I was experiencing the same concerns...

beccafullcircle

•6 years ago

14 Replies

Mary F, thank you

I would just like to let you all know what a wonderful help Mary has been with the book launch evening. She really does put others ahead of herself as do all...

I would just like to let you all know what a wonderful help Mary has been with t...

KayPryszlak

•6 years ago

11 Replies

Sticky Blood Explained

So on Friday I attended the book launch , it was an amazing event and very educational with questions from the audience answered by Professor Hughes. I met...

So on Friday I attended the book launch , it was an amazing event and very educa...

TJSTICKYBLOOD

•6 years ago

13 Replies

Topiramate for headaches ??...anyone tried?

I have seen the neurologist recently who says I apparently suffer with 4 different types of headaches! (Typical me! Can’t just be 1!!) Anyway she has...

I have seen the neurologist recently who says I apparently suffer with 4 differe...

Sara_A

•6 years ago

18 Replies

Is there a APS specialist in Northern Indiana?

I have just been diagnosed with Hughes Syndrome specifically anti-catdiolipin antibodies. Does anyone know a APS specialist in Northern Indiana or Southern...

I have just been diagnosed with Hughes Syndrome specifically anti-catdiolipin an...

Ibfrostybrew

•6 years ago

6 Replies

To all UK London Kent people if any

Looking for recommendations of any specialised doctors for aps? My doc doesn't seem to know much or doesn't go into detail when asking questions. I wondered if...

Looking for recommendations of any specialised doctors for aps? My doc doesn't s...

Ash0507

•6 years ago

5 Replies

B12 connection to APS??

I was just wondering if anyone on here is deficient in vitamin B12 and also has APS vitamin B12 affects the neurological system I was diagnosed deficient I...

I was just wondering if anyone on here is deficient in vitamin B12 and also has ...

Clairemom

•6 years ago

10 Replies

I am new to this aps world

I am 38 years old and I had 7 miscarriages. I have just been diagnosed with APS .I struggle to get over the flares up because they are so painful. My migraines...

I am 38 years old and I had 7 miscarriages. I have just been diagnosed with APS ...

Adinina80

•6 years ago

19 Replies

Feeling rough

My inr is 1.2 and I'm feeling no energy severe headache and generally unwell is this normal? My target is 3. I have numbness in my leg is that a part of aps?...

My inr is 1.2 and I'm feeling no energy severe headache and generally unwell is ...

Ash0507

•6 years ago

7 Replies

Be aware of a current phishing scam

Hi have just reported a personal message sent to me, an obvious phishing scam, if any of you get a message like this, asking for money. By the message are 3...

Hi have just reported a personal message sent to me, an obvious phishing scam, i...

MaryF

Administrator•6 years ago

3 Replies

Low positive and then very negative? How/why?

Hello, I tested low positive while not pregnant for lupus anticoagulant and anticardiolipin antibodies. My anticardilopin was 25 and my Activated PPT was 37.8,...

Hello, I tested low positive while not pregnant for lupus anticoagulant and anti...

Natalieyoung323

•6 years ago

8 Replies

Ttc

Hi I'm new here I was diagnosed only two weeks ago after having 4 early misscarrage and 2 eptopic pregnancy over the last two years distressing as it was to go...

Hi I'm new here I was diagnosed only two weeks ago after having 4 early misscarr...

Clairemom

•6 years ago

12 Replies

Newbie

Hi I have antiphospolipid syndrome is this the right group?

Ash0507

•6 years ago

8 Replies

waking up weak not moving

hello, i have been on here before but i have a symptom that scares me. often if i am napping or fall asleep in the car while my husband does an errand/ i...

hello, i have been on here before but i have a symptom that scares me. often i...

grenise

•6 years ago

13 Replies

First post

Hi I have noticed that everyone seems to involved with haemotologists or the other ologist! I have only ever seen a stroke consultant who i cant remember......

Hi I have noticed that everyone seems to involved with haemotologists or the oth...

debiann

•6 years ago

2 Replies

INR IN USA LOWER THAN UK WHY

Diagnosed with APS 2015 Taking Coumidin Feel terrible all the time. No energy Can't concentrate Poor memory Vision issues due to stroke in 2015...

Diagnosed with APS 2015 Taking Coumidin Feel terrible all the time. No e...

Gregstock

•6 years ago

10 Replies

Halo

Hi everyone I’m touching base with you all as have had aps since 2009,after having 3 strokes . I still love living in the fast lane .. but can’t but it’s never...

Hi everyone I’m touching base with you all as have had aps since 2009,after havi...

Monkeymate

•6 years ago

35 Replies

I’m a newbie

Hello everyone I’m new to the group but not new to the condition, just thought I’d say hi 👋🏼

Hello everyone I’m new to the group but not new to the condition, just thought ...

Kikitabs

•6 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2018

Rivaroxiban- new evidence that it doesn’t work

Feeling defeated after IVF chemical pregnancy

Dr Scurr on The Daily Mail answers a question regarding infertility

Donations

Professor Graham Hughes' Monthly Blog - October 2018

Need advice

Research

Can People feel blood clots?

Time release Topamax for migraines!

Confused with results!

Kay Thackray's new book regarding Sticky Blood

Reintroducing myself

Involuntary movement-Chorea

Mary F, thank you

Sticky Blood Explained

Topiramate for headaches ??...anyone tried?

Is there a APS specialist in Northern Indiana?

To all UK London Kent people if any

B12 connection to APS??

I am new to this aps world

Feeling rough

Be aware of a current phishing scam

Low positive and then very negative? How/why?

Ttc

Newbie

waking up weak not moving

First post

INR IN USA LOWER THAN UK WHY

Halo

I’m a newbie

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