Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for December 2022

CONGRATULATIONS

This is very good news, involving our member TJSTICKYBLOOD who also helps us with raising awareness at GHIC, and is also involved in writing a book for us...

This is very good news, involving our member TJSTICKYBLOOD who also helps us wi...

Administrator•2 years ago

Cold Agglutinin Disease/Auto-Immune Haemolytic Anaemia coupled with Triple Positive APS

Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve APS along with Cold Agglutinin Disease (COAG). My haematologist says they are...

Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve A...

•2 years ago

Licorice does it effect INR?

Hi there,I was diagnosed around 2 years ago after a PE. The staff at the INR clinic are great, but I have seen no Dr about symptoms. I had a lot of licorice...

Hi there,I was diagnosed around 2 years ago after a PE. The staff at the INR c...

•2 years ago

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high. CRP over 50

hi sorry I haven’t said so before but hope everyone is having a good Christmas, anyway I was tested for this because I was getting a lot of pains in my joints,...

hi sorry I haven’t said so before but hope everyone is having a good Christmas, ...

•2 years ago

MERRY CHRISTMAS TO ALL and A HAPPY NEW YEAR

Have a wonderful Christmas day and a new year

Have a wonderful Christmas day and a new year

•2 years ago

warfarin

Hello GillyA, Glad you are ok and no bleed you will heal takes time for bruising to go down and skin colour to go back to normal. Take Care of yourself .Best...

Hello GillyA, Glad you are ok and no bleed you will heal takes time for bruising...

•2 years ago

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Thyroid problems

Saw the doctor last week for abdominal pain and back pain and she did blood tests Got my results this afternoon one of my liver functions is border line but...

Saw the doctor last week for abdominal pain and back pain and she did blood test...

•2 years ago

covid

Am finally got covid , tested positive last night Yesterday had sore head and felt like a bad cold but lost my sense of smell and taste Taking parcetomal...

Am finally got covid , tested positive last night Yesterday had sore head and ...

•2 years ago

Blog visualised lived experience

Here is my own art work visualising my lives experience of my journey with APS...

Here is my own art work visualising my lives experience of my journey with APS....

•2 years ago

Working with an medical undergraduate .

Please refer to my previous post this work forms part of a special study component called art and pain .

Please refer to my previous post this work forms part of a special study compone...

•2 years ago

Working with an undergraduate medical student .

I work as an Expert Patient with undergraduate medical students at Kings College London One of the students this year produced 2 pieces of art that depict my...

I work as an Expert Patient with undergraduate medical students at Kings College...

•2 years ago

It Never Rains

What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues...

What an absolute few months I've had. Have been on a constant heavy period, wher...

•2 years ago

Hematoma?

I’ve had a pretty tough couple of weeks. I had a really nasty seizure because of my epilepsy, unfortunately while I was walking down concrete steps leaving a...

I’ve had a pretty tough couple of weeks. I had a really nasty seizure because o...

•2 years ago

APS own community ?

I wish APS had its own APS Specific community . Health unblocked is great but no APS . Specifically threads (YET) Only going to a APS book LAUNCH in London ,...

I wish APS had its own APS Specific community . Health unblocked is great but n...

•2 years ago

Update

Hi everyone I’ve taken a long time to update all the kind people who offered me useful advice in September when I posted about my problems with raised...

Hi everyone I’ve taken a long time to update all the kind people who offered m...

•2 years ago

generally fed up

bern to see prof D’Cruz at London Bridge as it looked likely I had sjrogens. He did his usual full checks thought dry lios dry eyes etc was likely to be APS...

bern to see prof D’Cruz at London Bridge as it looked likely I had sjrogens. He ...

•2 years ago

Urgent help needed

I am currently in hospital. I have had severe APS for many years & manage on high dose warfarin. I have colon cancer & need surgery. They took me off warfarin...

I am currently in hospital. I have had severe APS for many years & manage on hig...

•2 years ago

Swollen bile duct

swollen bile duct Whilst undergoing a CT scan on bladder kidney and liver nothing was found. All ok However radiologist contacted the gastro team as he had...

swollen bile duct Whilst undergoing a CT scan on bladder kidney and liver noth...

•2 years ago

Kidneys on way out - dialysis experience anyone?

Hi, Posting for my poor younger brother ravaged by APS over decades. Kidneys are on way out. Transplant is too risky with his current situation with prior...

Hi, Posting for my poor younger brother ravaged by APS over decades. Kidneys a...

•2 years ago

bone,, muscle, nerve pain

I have just found the energy to write this, not sure what what is wrong with me apart from a huge list of the medical history I already know about, the main...

I have just found the energy to write this, not sure what what is wrong with me ...

•2 years ago

PIP - Benefit

why is APS, not recognised as a disability when we could have a clot, stroke, heart of TIAs anytime?

why is APS, not recognised as a disability when we could have a clot, stroke, he...

•2 years ago