Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2020

Ongoing investigations

Just as an update to you all and a brief recap following my cognitive issues and memory loss Professor D’Cruz diagnosed cerebral APS based upon symptoms and...

Just as an update to you all and a brief recap following my cognitive issues and...

Greenmil3

•4 years ago

7 Replies

Neuropathy Now...

Hi all, it's been a bit since I've been on the forum. Longing for any possible insight that any of you may hold. Doctor's diagnosed me w/APS in 2013, have...

Hi all, it's been a bit since I've been on the forum. Longing for any possible ...

beccafullcircle

•4 years ago

20 Replies

Genetic test results

Hey guys I didnt know how to edit my last post so I write a bit again 🤭😂 I wrote last about my genetic testing, results came in and my GP Said i was ready to...

Hey guys I didnt know how to edit my last post so I write a bit again 🤭😂 I wro...

Anna1511

•4 years ago

7 Replies

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Is it a clot or just something weird?

I just read a post from Dar! I wasn’t going to post this, but thought I would now. In my good and only leg, I had a pain in my mid thigh. The pain is going...

I just read a post from Dar! I wasn’t going to post this, but thought I would no...

Debbweb01

•4 years ago

1 Reply

Accu right INR testing machine and strips

Does anyone use the accu right INR testing products? Can an accu right test strip be effectively used on a CoaguCheck xs machine? The test strips for coagu...

Does anyone use the accu right INR testing products? Can an accu right test stri...

SoulRebel-APS

•4 years ago

3 Replies

APS, searching for specialist Ontario, Ottawa, Canada

I did a post a couple of years ago detailing a wide range of symptoms and positive and recurrent blood test results for antiphospholipid and anticardiolipin....

I did a post a couple of years ago detailing a wide range of symptoms and positi...

NatMar

•4 years ago

2 Replies

Lupus anticoagulant positive but I don’t have aps

Hi everyone my specialist states lupus anticoagulant came positive but technically I don’t have the ApS what is this mean

Hi everyone my specialist states lupus anticoagulant came positive but technical...

Slove12

•4 years ago

16 Replies

Missed diagnosis

Recently had a stay in hospital where it was said migraine type headaches were the cause of my husbands definite increased left side weakness and increased...

Recently had a stay in hospital where it was said migraine type headaches were ...

Vespa1

•4 years ago

7 Replies

Successful open heart surgery 12 weeks ago now blood clots on the right kidney

HI guys Just to tell you about my experiences in the 1st month of the year 2020. This is more or less to let people with SLE and APS know what can happen. I...

HI guys Just to tell you about my experiences in the 1st month of the year 2020....

LindaMorrell

•4 years ago

29 Replies

Low Platelets

Is having Low Platelets Normal for APS Patients? Mine is reading 126k/ul & the norm is 140-400k/ul. Also my Lymphocytes are 8.60 & norm are 18-40 How do...

Is having Low Platelets Normal for APS Patients? Mine is reading 126k/ul & the n...

GirlfromTennessee

•4 years ago

13 Replies

Pain in arm after cannula

Two weeks ago I had a colonoscopy & a nurse placed a cannula in my elbow crease for the sedative. I don’t know why she didn’t put it in my hand like everyone...

Two weeks ago I had a colonoscopy & a nurse placed a cannula in my elbow crease...

Janeh1960

•4 years ago

15 Replies

Self testing

When getting a self testing device, is there any exceptions to where you get them free or does everyone have to pay now? I only work 2 days and my wage pays...

When getting a self testing device, is there any exceptions to where you get the...

Sal0712

•4 years ago

9 Replies

Help for my daughter

Help for my daughter My daughter has recently been diagnosed with colitis and previously with hydradentis supperitiva ( spelling may be wrong) does anyone know...

Help for my daughter My daughter has recently been diagnosed with colitis and pr...

shakes

•4 years ago

8 Replies

Itching

I sometimes get periods of severe itching that is very random and occurs throughout my body. When it happens, I’ll take a Claritin allergy pill and Whether fr...

I sometimes get periods of severe itching that is very random and occurs through...

loretta1106

•4 years ago

6 Replies

Itchy and very tender scalp

Does anybody who has MS or APS suffer with an itchy and extremely tender scalp? Mine has been ongoing for a long time. I have no redness, scabs etc and scratch...

Does anybody who has MS or APS suffer with an itchy and extremely tender scalp? ...

Stereolover

•4 years ago

29 Replies

Horrible Day Pt 2

I’m sure you will all be pleased to know I am home from hospital, if a little battered and bruised. Why do docs insist on sticking needles into you?! Still...

I’m sure you will all be pleased to know I am home from hospital, if a little ba...

judes

•4 years ago

7 Replies

APS and wholes in heart

I ask this question every once n while to see if anyone new has the problem. Not long after I was diagnosed with APS I was also diagnosed with a PFO & an ASD....

I ask this question every once n while to see if anyone new has the problem. Not...

SoulRebel-APS

•4 years ago

4 Replies

New to this syndrome and trying to learn

Quick question... I am a 36 yr old white female and mother of 2. I have temporal lobe epilepsy, RH negative blood and was recently diagnosed with APS. Anyone...

Quick question... I am a 36 yr old white female and mother of 2. I have temporal...

Cjmsm331

•4 years ago

11 Replies

London appointment

Hi there, i have a date to go to London in February. What exactly happens at these appointments is it a chat like with my specialist at home or do i have CT...

Hi there, i have a date to go to London in February. What exactly happens at th...

pinkyandperky

•4 years ago

3 Replies

Calcium supplementation and warfarin

Hi Everyone and Happy New Year. I’d like to know if it is wise to take a calcium supplement if on warfarin. I ask because warfarin causes calcified tissues...

Hi Everyone and Happy New Year. I’d like to know if it is wise to take a calcium...

hihannula

•4 years ago

15 Replies

The next GHIC charity event

I have had many messages on various forums, social media outlets regarding up and coming events, this one is the next one, aimed at medical staff, I know a...

I have had many messages on various forums, social media outlets regarding up an...

MaryF

Administrator•4 years ago

4 Replies

INR testing Australia

It seems to be sometime since the messages on INR tests in Australia. I wonder if there is any up to date info on tests in Sydney and east coast as far as...

It seems to be sometime since the messages on INR tests in Australia. I wonder i...

JJLZH

•4 years ago

7 Replies

UTI and antibiotic

Currently have an UTI that family physician is prescribing Macrobid 2 x a day for 5 days. Wondering if anyone has taken this for an UTI and how it affected...

Currently have an UTI that family physician is prescribing Macrobid 2 x a day fo...

dogtail

•4 years ago

9 Replies

Horrible Day

For the past couple of days I’ve had sleepless nights not that it worries me I’ve been an erratic sleeper for years. This morning up at 4.30am, no lights on...

For the past couple of days I’ve had sleepless nights not that it worries me I’v...

judes

•4 years ago

13 Replies

INR Probs

Hope everyone enjoyed New Years!!! My Blood has stayed pretty stable for the last 4 Years ... Thursday it was showing 5.0 INR. The thing is I felt WONDERFUL...

Hope everyone enjoyed New Years!!! My Blood has stayed pretty stable for the las...

GirlfromTennessee

•4 years ago

14 Replies

Huffington Post Article : Living With a Chronic Illness Written by an MD

https://themighty.com/2017/02/doctor-with-chronic-illness-things-to-know/ Most of us will likely relate to this article. Many struggle from from time to time...

https://themighty.com/2017/02/doctor-with-chronic-illness-things-to-know/ Most ...

KellyInTexas

Administrator•4 years ago

7 Replies

Trying for baby with APS

Hey guys.. I have had two miscarriages in 2019, one at 11 weeks and another at 7 weeks. After paying for it to be sent away came back baby did not have any...

Hey guys.. I have had two miscarriages in 2019, one at 11 weeks and another at...

JojoWash

•4 years ago

23 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2020

Ongoing investigations

Neuropathy Now...

Genetic test results

Is it a clot or just something weird?

Accu right INR testing machine and strips

APS, searching for specialist Ontario, Ottawa, Canada

Lupus anticoagulant positive but I don’t have aps

Missed diagnosis

Successful open heart surgery 12 weeks ago now blood clots on the right kidney

Low Platelets

Pain in arm after cannula

Self testing

Help for my daughter

Itching

Itchy and very tender scalp

Horrible Day Pt 2

APS and wholes in heart

New to this syndrome and trying to learn

London appointment

Calcium supplementation and warfarin

The next GHIC charity event

INR testing Australia

UTI and antibiotic

Horrible Day

INR Probs

Huffington Post Article : Living With a Chronic Illness Written by an MD

Trying for baby with APS

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