Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2018

Stopped anticoagulants after 16 years

I have been APL positive (I believe all 3 of the factors) since 2002. At least, that's when they found it. I have white matter lesions on my brain from the...

I have been APL positive (I believe all 3 of the factors) since 2002. At least, ...

Jlbwise

•6 years ago

9 Replies

Cause of thrombophlebitis

I got home from work and as I stepped out of the car, all of a sudden an excruciating pain ran down from behind my left knee to my calve. I thought I must have...

I got home from work and as I stepped out of the car, all of a sudden an excruci...

Hidden

•6 years ago

10 Replies

Beta2glycoproteins antibody results

14 years ago when I was first diagnosed with APS, I was told I was positive for the A antibody. A New York doctor who specialized in APS told me positive A was...

14 years ago when I was first diagnosed with APS, I was told I was positive for ...

NanaPam

•6 years ago

8 Replies

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Superficial vein blood clot

Last night went to the ER due to a large bump on the back of my knee, turned to out be a superficial vein blood clot, my INR was3.7, Doctor at ER acted like no...

Last night went to the ER due to a large bump on the back of my knee, turned to ...

edgewater100

•6 years ago

8 Replies

poss leg ulcer

I have had a sore on my leg which started as a blister which popped and i covered with a 5 x 5 plaster which just got soaking wet and slid down my leg. I was...

I have had a sore on my leg which started as a blister which popped and i covere...

teadonna

•6 years ago

6 Replies

Off in couple of days.

The path of health never runs smooth! I had to go back to Hospital a week or so ago to get the K-wire out. This is normally a quick pull with a pair of...

The path of health never runs smooth! I had to go back to Hospital a week or so...

Ozchick

•6 years ago

4 Replies

Advice and feedback for a relative re Ischemic Toes

It would be great to have some feedback re Ischemic Toes, if members have had that, what happened, which doctors in the UK were useful, how it was treated etc...

It would be great to have some feedback re Ischemic Toes, if members have had th...

MaryF

Administrator•6 years ago

3 Replies

GoCardless

There may be others like me, usual poor memory, who check their online banking and see a debit for £20 just saying GoCardless and a date (I bank with First...

There may be others like me, usual poor memory, who check their online banking a...

tim47

•6 years ago

3 Replies

Aps tests equivocal

Hey has anyone else had the APS tests come back equivocal ? I’ve had 3 tests so far one of them showed positive for lupus anticoagulant and the rest equivocal...

Hey has anyone else had the APS tests come back equivocal ? I’ve had 3 tests so ...

Vj1990

•6 years ago

4 Replies

Off camping - back soon.

Hi guys I will not be on here so much over the next week or so as I am off camping at a music event, complete with a supply of wet baseball caps, (stops me...

Hi guys I will not be on here so much over the next week or so as I am off camp...

MaryF

Administrator•6 years ago

7 Replies

More coaguchek test strip news

After all the concerns about the test strips and the discrepancies I had with codes 309 and 311, I was understandably very anxious about going abroad when I...

After all the concerns about the test strips and the discrepancies I had with co...

janekins

•6 years ago

11 Replies

Beta2 glycoproteins antibody positivity alone plus recurrent miscarriages

Hi there, I’m wondering if anyone out there has beta2 glycoproteins antibody ALONE being positive plus recurrent miscarriages but has NO history of...

Hi there, I’m wondering if anyone out there has beta2 glycoproteins antibody A...

wlnz

•6 years ago

17 Replies

Sharp quick pain on left middle side of head

A few days ago, I started getting these sharp...what feels more like a throbbing pain on the left middle side of my head. It comes and goes away in what feels...

A few days ago, I started getting these sharp...what feels more like a throbbing...

C154242

•6 years ago

5 Replies

APS Specialist List

I can no longer find this list. Could someone direct me to the correct website. Thank you

I can no longer find this list. Could someone direct me to the correct website. ...

Zamalek

•6 years ago

1 Reply

Looking for research on Chorea and APS Please

Hello everyone, thank you for the ongoing support all of you provide for us all here on the forum. Just got back from the OHSU in Portland Oregon. The...

Hello everyone, thank you for the ongoing support all of you provide for us all ...

beccafullcircle

•6 years ago

10 Replies

Problems with Coaguchek

I spoke to the lady on the Coaguchek helpline this morning about the discrepancies between the machine readings compared to venous sample readings. Although a...

I spoke to the lady on the Coaguchek helpline this morning about the discrepanci...

Jumper99

•6 years ago

20 Replies

Hydroxychloroquine

Reaching out for help advise, I have been having issues with some unexplained brain stuff for about over a year now, the symptoms I have been having are a...

Reaching out for help advise, I have been having issues with some unexplained br...

edgewater100

•6 years ago

11 Replies

Flying with Coaguchek Machine

Hi - I am flying for the first time in 8 years shortly and want to take my Coaguchek machine with just in case I want or need to test whilst abroad. Does...

Hi - I am flying for the first time in 8 years shortly and want to take my Coagu...

StuartD

•6 years ago

4 Replies

Specialists in U.S.

Is there a list someone can point me to? If not, can you recommend someone in Southern California or Phoenix, AZ?

Is there a list someone can point me to? If not, can you recommend someone in So...

jcgc

•6 years ago

14 Replies

Antiphospholipid Syndrome / Hughe’s Syndrome

I have APLS. They found it after I had a miscarriage and a blood clot behind my right knee. Since then, I have been on Lovenox injections, and will be on them...

I have APLS. They found it after I had a miscarriage and a blood clot behind my ...

Mrsromeiko22

•6 years ago

4 Replies

Warfarin and Spine Surgery

Three years ago I had multiple PE's while on low dose of warfarin (INR was found to be only 1.0) I was on the warfarin for previous DVT's. I was then...

Three years ago I had multiple PE's while on low dose of warfarin (INR was ...

traveloasis

•6 years ago

5 Replies

Another new study

This time - Clopidogrel and Aspirin in Acute Ischemic Stroke and High-Risk TIA. Pinched from Prof B Hunt's twitter:...

This time - Clopidogrel and Aspirin in Acute Ischemic Stroke and High-Risk TIA. ...

MaryF

Administrator•6 years ago

6 Replies

Are any one aware of connection between APS/Hughes and Barretts Oesophagus, also possible influence on fatty liver disease

I previously inquired about the endoscopy procedure and APS patients on anticoagulants on the risks of bleeding. Thank you very much for all the positive...

I previously inquired about the endoscopy procedure and APS patients on anticoag...

pamchris

•6 years ago

5 Replies

Coping with the conditions on a daily basis.

I have struggled for a long time been able to do everyday activities. It's been much harder lately has we have just moved, but for the better. I have to have...

I have struggled for a long time been able to do everyday activities. It's been ...

bernieembleton

•6 years ago

10 Replies

Fuchs Dystrophy

Hi Does anyone know if 'Fuchs Dystrophy' is anything to do with the immune system and APS? I went to have an eye test and was told that something at the back...

Hi Does anyone know if 'Fuchs Dystrophy' is anything to do with the immune syste...

Molly100

•6 years ago

7 Replies

Coagucheck test strips

Any one having trouble with test strips should report it to there gp and hospital plus please go on nhs yellow card web page where you can report directly to...

Any one having trouble with test strips should report it to there gp and hospita...

Tim_Thorpe

•6 years ago

A few words of inspiration

I thought it would be nice to share some inspirational words I wrote, with you all. Sometimes we get so absorbed in our poor health we don't see what we......

I thought it would be nice to share some inspirational words I wrote, with you a...

WendyWoo50

•6 years ago

23 Replies

Coaguchek strips

Following on from the discussions about irregular coaguchek readings, I wanted to ask if anyone else thinks the strips look narrower than they used to be? I...

Following on from the discussions about irregular coaguchek readings, I wanted t...

janekins

•6 years ago

8 Replies

Does Riveroxoban cause itching?

Hi all, Hope all are enjoying this weather? But I think for most of us with APS and a lot more illnesses causes problems. I won’t bore you with all my...

Hi all, Hope all are enjoying this weather? But I think for most of us with APS ...

Teanna

•6 years ago

11 Replies

Coagucheck self test strips

Roche have told be email not to use there machine if I have antiphosolipid symdrome they denied that there is any problems with batches of test strips and seem...

Roche have told be email not to use there machine if I have antiphosolipid symdr...

Tim_Thorpe

•6 years ago

31 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2018

Stopped anticoagulants after 16 years

Cause of thrombophlebitis

Beta2glycoproteins antibody results

Superficial vein blood clot

poss leg ulcer

Off in couple of days.

Advice and feedback for a relative re Ischemic Toes

GoCardless

Aps tests equivocal

Off camping - back soon.

More coaguchek test strip news

Beta2 glycoproteins antibody positivity alone plus recurrent miscarriages

Sharp quick pain on left middle side of head

APS Specialist List

Looking for research on Chorea and APS Please

Problems with Coaguchek

Hydroxychloroquine

Flying with Coaguchek Machine

Specialists in U.S.

Antiphospholipid Syndrome / Hughe’s Syndrome

Warfarin and Spine Surgery

Another new study

Are any one aware of connection between APS/Hughes and Barretts Oesophagus, also possible influence on fatty liver disease

Coping with the conditions on a daily basis.

Fuchs Dystrophy

Coagucheck test strips

A few words of inspiration

Coaguchek strips

Does Riveroxoban cause itching?

Coagucheck self test strips

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