Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,484 members•10,661 posts

All posts for June 2012

Back at Square One...

Just thought I'd do a quick post as a semi follow up to my January St Thomas' maladies (apparently despite being very symptomatic and having had 2 positive...

Just thought I'd do a quick post as a semi follow up to my January St Thomas' ma...

Andy_A

•13 years ago

5 Replies

Pathology results for my latest angel.

Well everyone, i have today managed to get hold of a copy of my baby Joshua pathology results exactly 2 months to the date of when i gave birth to him.....

Well everyone, i have today managed to get hold of a copy of my baby Joshua path...

kateb81

•13 years ago

5 Replies

Do I have Hughes syndrome/ APS?

So I have written to my consultant asking him to consider whether I have Hughes syndrome, as I appear to fit the bill in terms of the symptoms / test results...

So I have written to my consultant asking him to consider whether I have Hughes ...

SusieMac

•13 years ago

6 Replies

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First visit to St Thomas'

I had my first appointment at the APS clinic at St Thomas' yesterday. What a relief to speak to a Doctor who not only understands what I am telling him but...

I had my first appointment at the APS clinic at St Thomas' yesterday. What a rel...

Glitterwitch

•13 years ago

4 Replies

The importance of lists!!!

Why did I forget to make a list of things to discuss wth my GP when I saw her yesterday!!!!!! Since my brain problems which I have previously spoken about in...

Why did I forget to make a list of things to discuss wth my GP when I saw her ye...

janekins

•13 years ago

2 Replies

APS only causes late miscarriages?

Thank you all for your support and advice. I regret I wasn't strong enough to take it. I am outraged at my Hemo but maybe I am just looking for someone to...

Thank you all for your support and advice. I regret I wasn't strong enough to ta...

SassyOne

•13 years ago

17 Replies

ears - it feels they are blocked

Well my INR have been all over the place and as feeling woozy today checked INR and it is 2.7 which is quite low for me and then I have a feeling of blocked...

Well my INR have been all over the place and as feeling woozy today checked INR ...

daisy11

•13 years ago

4 Replies

Just been diagnosed with an ulcer on my cornea, is this common for APS sufferers or completly unrelated?

AllyB68

•13 years ago

5 Replies

My story so far - Migrating from Incapacity to ESA

On Feb 6th this year, 2012 I went for my medical assessment. The journey took more than 2 hours to get there. (Guidelines state that no more that 90 minutes is...

On Feb 6th this year, 2012 I went for my medical assessment. The journey took mo...

InSpain

•13 years ago

6 Replies

I hate the NHS!

I'm so frustrated. I'm trying so hard for someone to say yes you have APS but no-one seems to listen. They have taken bloods, scanned me, examined me and...

I'm so frustrated. I'm trying so hard for someone to say yes you have APS but no...

MJLS

•13 years ago

6 Replies

A very interesting development coming out of BMA conference:

Here you go folks:...

MaryF

Administrator•13 years ago

7 Replies

Blood Clots - Are you at risk?

http://www.bbc.co.uk/news/health-18595843 Please see the attached link for latest NICE information.

http://www.bbc.co.uk/news/health-18595843 Please see the attached link for la...

Shutah

•13 years ago

1 Reply

A oncologist doing the job of a hematologist?

My husband saw a cardiologist a few weeks ago & during the visit, he recommended that my husband see a hematologist for his APS since he hasn't seen one...

My husband saw a cardiologist a few weeks ago & during the visit, he recommended...

sbncmo

•13 years ago

7 Replies

Someone please help me!! Just got off phone with a neurologist who has ran every test under the moon because of my slurred speech and

left side weakness tell me after a blood test confirmed, I have APS. That I do not have APS because I have a unremarable MRI.Somebody please help me...

left side weakness tell me after a blood test confirmed, I have APS. That I do n...

MALINGER1

•13 years ago

20 Replies

TIAs

Feeling even more dopey and muddled than usual and exhausted. INR ok so it's probably the fibro, but wondered - Is it possible to have TIAs if you're on...

Feeling even more dopey and muddled than usual and exhausted. INR ok so it's pro...

panda60

•13 years ago

5 Replies

If you have muscle and joint pain, what works for you???

Just lately, unbearable muscle and joint pain; roving around my body...not only kills but makes me sooo tired...seeing the rheumatologist Dr. Hughes told me to...

Just lately, unbearable muscle and joint pain; roving around my body...not only ...

siveinvan

•13 years ago

23 Replies

Article:

http://www.guardian.co.uk/society/2012/jun/22/disabled-people-hit-hard-cuts Mary F

http://www.guardian.co.uk/society/2012/jun/22/disabled-people-hit-hard-cuts M...

MaryF

Administrator•13 years ago

3 Replies

New website case studies

Hi All I know a lot of our charity's members are already media volunteers - thank you to our 120 brave people :) We will be launching a new website this...

Hi All I know a lot of our charity's members are already media volunteers - t...

Hidden

•13 years ago

12 Replies

THANK YOU ALL !!!!!!!!!!!!!!!!

THANK YOU, THANK YOU,THANK YOU ALLLLLLLLLLLLL!!!!!!!!!!!!!! I came across this site by accident as I couldn't sleep last night/early morning so as I have my...

THANK YOU, THANK YOU,THANK YOU ALLLLLLLLLLLLL!!!!!!!!!!!!!! I came across this ...

BrownChocolate

•13 years ago

9 Replies

Cataraccts

Well I had a cataracct removal 6 weeks ago, but quite truthfully instead of getting better, my right eye is more blurry also on ocassions I have this black...

Well I had a cataracct removal 6 weeks ago, but quite truthfully instead of gett...

daisy11

•13 years ago

4 Replies

NEUROLOGIST

The last time I saw a Neurologist was last year and a year on I have not seen anyone in Neurology - what is the norm for people with APS, TIA etc - and seeing...

The last time I saw a Neurologist was last year and a year on I have not seen an...

daisy11

•13 years ago

16 Replies

HOW CAN CARRY A LIST OF ALL MY MEDICINE AND ALLERGY WITH ME.

Can anyone help me? I take 28 tablets a day and I need to find a way to make a list of all my medication, doses and allergies and carry it with me at all...

Can anyone help me? I take 28 tablets a day and I need to find a way to make a ...

BrownChocolate

•13 years ago

14 Replies

Things can only get better!!!!!!!!!!!!!!

Where shall I start? (at the beginning) It has been two weeks and I am STILL not sleeping properly. Not sleeping until 4 or 5am and waking at 1pm Maybe I...

Where shall I start? (at the beginning) It has been two weeks and I am STILL no...

BrownChocolate

•13 years ago

8 Replies

I finally got my husband an appointment to see a hematologist.

My husband had to see a cardiologist a couple weeks ago because his blood pressure had been 195/108 & both numbers consistently remained over 100 for 5 days...

My husband had to see a cardiologist a couple weeks ago because his blood pressu...

sbncmo

•13 years ago

6 Replies

Has anybody else with APS also have a Vitamin D deficiency?

MaryH

•13 years ago

19 Replies

Virtigo

Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so dizzy when I bend or turn my head I loose my hearing and sight feel very sick...

Hi all Just been DX with BPPV = Benign Paroxysmal Positional Vertigo I get so ...

taffydaffy

•13 years ago

6 Replies

Silly? Extravagant? or Profoundly simple?

So . . . the opthamologist who guessed I had APS BEFORE I had strokes and had asked my GP to test me for cardiolipin antibodies (my GP threw his written...

So . . . the opthamologist who guessed I had APS BEFORE I had strokes and had a...

GinaD

•13 years ago

7 Replies

Keeping blasted stockings up! HELP

OK all fellow Hughes Survivors.......after a lovely 10yr break I've now got to wear the dreaded stockings again.....now having gained plenty of steroid weight...

OK all fellow Hughes Survivors.......after a lovely 10yr break I've now got to w...

Welshexile

•13 years ago

20 Replies

May help ~?

Hi Trying to do my bit although small. I have delivered informaton on Hughes syndrome, found on the Hughes syndrome foundation web site I took it to the...

Hi Trying to do my bit although small. I have delivered informaton on Hughes sy...

daisyd

•13 years ago

6 Replies

Hellp syndrome

Has anyone else had Hellp syndrome during their pregnancy, not sure what it all stands for but it effectsthe liver, nearly killed me, just wondered if it was...

Has anyone else had Hellp syndrome during their pregnancy, not sure what it al...

daisyd

•13 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2012

Back at Square One...

Pathology results for my latest angel.

Do I have Hughes syndrome/ APS?

First visit to St Thomas'

The importance of lists!!!

APS only causes late miscarriages?

ears - it feels they are blocked

Just been diagnosed with an ulcer on my cornea, is this common for APS sufferers or completly unrelated?

My story so far - Migrating from Incapacity to ESA

I hate the NHS!

A very interesting development coming out of BMA conference:

Blood Clots - Are you at risk?

A oncologist doing the job of a hematologist?

Someone please help me!! Just got off phone with a neurologist who has ran every test under the moon because of my slurred speech and

TIAs

If you have muscle and joint pain, what works for you???

Article:

New website case studies

THANK YOU ALL !!!!!!!!!!!!!!!!

Cataraccts

NEUROLOGIST

HOW CAN CARRY A LIST OF ALL MY MEDICINE AND ALLERGY WITH ME.

Things can only get better!!!!!!!!!!!!!!

I finally got my husband an appointment to see a hematologist.

Has anybody else with APS also have a Vitamin D deficiency?

Virtigo

Silly? Extravagant? or Profoundly simple?

Keeping blasted stockings up! HELP

May help ~?

Hellp syndrome

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