Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for February 2015

What causes the cognitive issues in APS?

I've read sticky blood can be the cause, lowering oxygen delivery to the brain. Alternatively I've read about white matter lessions on the brain. How common...

I've read sticky blood can be the cause, lowering oxygen delivery to the brain. ...

drob32

•9 years ago

5 Replies

Sudden high pitched whine in right ear.

About a week ago I was lay on the sofa and very suddenly got really sick and dizzy, also had a high pitched whine in my right ear. The dizziness was so bad I...

About a week ago I was lay on the sofa and very suddenly got really sick and diz...

Tomcat

•9 years ago

5 Replies

Need APS doctor in Sutton Coldfield near Birmingham.

My husband has been confirmed as having APS after a 3rd recent stroke. He was evidently confirmed as having the antibodies 6 yrs ago! But info was not...

My husband has been confirmed as having APS after a 3rd recent stroke. He was ev...

Vespa1

•9 years ago

19 Replies

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Foggy head and jaw pain.

As an Hughes Syndrome patient I'm aware of foggy head symptoms which I'm currently experiencing, however this is now joined with upper and lower jaw...

As an Hughes Syndrome patient I'm aware of foggy head symptoms which I'm curren...

JoJo0405

•9 years ago

8 Replies

Muscular pain in arms/shoulders - lupus flare or low INR?

Does anyone else suffer with bad muscular (rather than joints) pain and heaviness In their arms and shoulders?? I've been on warfarin for aps for 6 years and...

Does anyone else suffer with bad muscular (rather than joints) pain and heavines...

frankie100

•9 years ago

13 Replies

Any APS doctors in Maryland/Delaware/Virginia

I was searching for doctors using google, but I wanted to see if anyone knew of any doctors in this area. The closest doctors based on the apsactionnetwork...

I was searching for doctors using google, but I wanted to see if anyone knew of ...

drob32

•9 years ago

13 Replies

MTHFR C677T, MTHFR A1298C and Factor XIII related with lupus anticoagulant?

Hi to all! After my second miscarriage i have done some genetic tests. I have mutate gene MTHFR C677T, MTHFR A1298C and Factor XIII. Doctors said that they...

Hi to all! After my second miscarriage i have done some genetic tests. I have mu...

dea29

•9 years ago

4 Replies

Vit.d

Hi! My vit.d is 14 ng/L and my endocrinologist said that i should drink 3 drops daily of vit.d minimum three months. She said that my deficit of vit.d is...

Hi! My vit.d is 14 ng/L and my endocrinologist said that i should drink 3 drops ...

dea29

•9 years ago

12 Replies

A prof.or dr. Specializing in Hughes syndrome

Does anyone have a prof they see in France or any country in Europe easily accessed by train from London? You see I have to purchase my own medication-Clexane...

Does anyone have a prof they see in France or any country in Europe easily acces...

designer16

•9 years ago

10 Replies

APS antibodies, non typical symptoms

I just had the Cyrex Assay #5 done, which tests for most known autoimmune antibodies. I was negative for everyone of them but tested elevated in APS...

I just had the Cyrex Assay #5 done, which tests for most known autoimmune antibo...

drob32

•9 years ago

16 Replies

costochondritis

have had a virus for the last 8 days,went to Drs yesterday, saw one who I have never seen before as my practise now only does pre bookable about 3 weeks away,...

have had a virus for the last 8 days,went to Drs yesterday, saw one who I have n...

donnabrain

•9 years ago

6 Replies

Can I do an assault course on warfarin?

As a fundraiser the charity I work for are doing a sponsored assault course.... they have assumed I'll be doing it too. Don't want to make a big deal about it,...

As a fundraiser the charity I work for are doing a sponsored assault course.... ...

Lucky67

•9 years ago

7 Replies

APS antibodies

What is the differance between having the APS antibodies and not having the syndrome?

What is the differance between having the APS antibodies and not having the synd...

sleepy3

•9 years ago

1 Reply

TIAs or seizures?

Hi everyone, I was diagnosed with APS with chorea in January and, because of white matter foci, have been started on Warfarin. My INR readings thus far have...

Hi everyone, I was diagnosed with APS with chorea in January and, because of whi...

minnime63

•9 years ago

22 Replies

Anti phospholipid antibodies and cerebellar ataxia

Hi all, whilst investigating my own particular health issues I came across the article below for which I attach a link. I thought it may be of interest to...

Hi all, whilst investigating my own particular health issues I came across the ...

lloydyuk

•9 years ago

1 Reply

Article: doctor on importance Vitamin D in APS patients

"Vitamine D deficiency [2] is common among APS patients and is associated with clinically defined thrombotic events. Hypovitaminosis D [3] probably may have a...

"Vitamine D deficiency [2] is common among APS patients and is associated with c...

Tranquility1

•9 years ago

2 Replies

Tooth problems

Hi all Just want to ask if anyone else with APS suffers with tooth sensitivity and toothache. I have been in pain now for a couple of weeks and have been to...

Hi all Just want to ask if anyone else with APS suffers with tooth sensitivity ...

ledlegs

•9 years ago

9 Replies

Brain fog. Could transfats be a part of the problem

Just seen this http://articles.mercola.com/sites/articles/archive/2014/12/02/trans-fat-harms-memory.aspx

Just seen this http://articles.mercola.com/sites/articles/archive/2014/12/02/tr...

overnighthearingloss

•9 years ago

2 Replies

were in the daily mail again!!!

just a shame that they never go into more detail and just simplify it like its 'just a pregnancy issue'xxx

just a shame that they never go into more detail and just simplify it like its '...

emmaj

•9 years ago

2 Replies

Is scratching related to APS?

Hi! I feel scratching(my legs and lower back) for three months. Is it related with APS(lupus anticoagulant)? Best wishes to all...

Hi! I feel scratching(my legs and lower back) for three months. Is it related wi...

dea29

•9 years ago

18 Replies

A great article from The Daily Mail

http://www.dailymail.co.uk/health/article-2960372/Woman-heartbroken-SEVEN-miscarriages-finally-baby-thanks-stitch-womb-daily-aspirin.html MaryF

http://www.dailymail.co.uk/health/article-2960372/Woman-heartbroken-SEVEN-miscar...

MaryF

Administrator•9 years ago

1 Reply

interesting find

Hi all, new here as although I have had a diagnosis of APS for 8 years I didnt know it also went under the name of Hughes syndrome. it was only when looking if...

Hi all, new here as although I have had a diagnosis of APS for 8 years I didnt k...

barb64

•9 years ago

13 Replies

IgG antibodies, translation please

I have been told my IgG anticardiolipin antibodies are elevated at 26, my beta2glycoprotein and IgG antibodies are also elevated at 19 but DsDNA is negative....

I have been told my IgG anticardiolipin antibodies are elevated at 26, my beta2g...

Twadd

•9 years ago

8 Replies

Recommended food according to my condition(lupus anticoagulant and hypothyreosis)?

Hi to all! I will be grateful if somebody tell me advice about recommended food according to my condition(lupus anticoagulant and hypothyreosis)? At the end of...

Hi to all! I will be grateful if somebody tell me advice about recommended food ...

dea29

•9 years ago

15 Replies

After c section

I would like to announce that my baby girl was born healthy 3 weeks ago and she is so amazing. I am so happy about her but Imy blood tests became worst than it...

I would like to announce that my baby girl was born healthy 3 weeks ago and she ...

Glassart

•9 years ago

5 Replies

Map Your GP

Hi all, It has become apparent through my enquiries that there is a need for a thread which exchanges info about GP's with experience of APS around the country...

Hi all, It has become apparent through my enquiries that there is a need for a t...

NaggingWife

•9 years ago

6 Replies

Muscle Twitches and Hughes ?

Hi, In currently I am not diagnosed with APS, but my Beta-2 Glycoprotein 2 IGM is 28.75 POSITIVE (0-20 is Normal Limit) What I am experiencing is chorea-like...

Hi, In currently I am not diagnosed with APS, but my Beta-2 Glycoprotein 2 IGM i...

Jimalos

•9 years ago

12 Replies

Opinion about my problem

Hi! I`m new on this forum. I`m 29 years old and I`m from Macedonia. I`m glad that there is forum like this where we can read about others experiences. I had 2...

Hi! I`m new on this forum. I`m 29 years old and I`m from Macedonia. I`m glad tha...

dea29

•9 years ago

7 Replies

Anyone know a GP in Salisbury who has APS experience?

We have recently moved to Salisbury, but simultaneously my husband was found to have Lupus Anticoagulant antibodies, following more than one occasion of...

We have recently moved to Salisbury, but simultaneously my husband was found to ...

NaggingWife

•9 years ago

10 Replies

Anyone IgA Deficient with APS? Sarcoidosis APS

My nearly 50 year old husband has just been diagnosed with APS after 2 different bouts of multiple pulmonary emboli and various other unexplained health dramas...

My nearly 50 year old husband has just been diagnosed with APS after 2 different...

NaggingWife

•9 years ago

14 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2015

What causes the cognitive issues in APS?

Sudden high pitched whine in right ear.

Need APS doctor in Sutton Coldfield near Birmingham.

Foggy head and jaw pain.

Muscular pain in arms/shoulders - lupus flare or low INR?

Any APS doctors in Maryland/Delaware/Virginia

MTHFR C677T, MTHFR A1298C and Factor XIII related with lupus anticoagulant?

Vit.d

A prof.or dr. Specializing in Hughes syndrome

APS antibodies, non typical symptoms

costochondritis

Can I do an assault course on warfarin?

APS antibodies

TIAs or seizures?

Anti phospholipid antibodies and cerebellar ataxia

Article: doctor on importance Vitamin D in APS patients

Tooth problems

Brain fog. Could transfats be a part of the problem

were in the daily mail again!!!

Is scratching related to APS?

A great article from The Daily Mail

interesting find

IgG antibodies, translation please

Recommended food according to my condition(lupus anticoagulant and hypothyreosis)?

After c section

Map Your GP

Muscle Twitches and Hughes ?

Opinion about my problem

Anyone know a GP in Salisbury who has APS experience?

Anyone IgA Deficient with APS? Sarcoidosis APS

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