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Hughes Syndrome APS Forum

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Thrombocytopenia?

I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with...

I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of th...

Coppernob

•11 months ago

5 Replies

INR very different at poc vs venous

recently had aps diagnosis after stroke. Trying to get my inr to 3.5. Dosage keeps going up weekly but my inr has dropped! Diet exactly same week on week....

recently had aps diagnosis after stroke. Trying to get my inr to 3.5. Dosage ...

Sand1985

•2 years ago

14 Replies

Recently diagnosed with Primary APS

Do not know how long I have had this. I did have a few early miscarriages in the first 2 months of my pregnancies. Almost miscarried my oldest son in the...

Do not know how long I have had this. I did have a few early miscarriages in th...

kbmis003

•8 years ago

11 Replies

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PE and APS on Warfarin

So I am 27 and I had bilateral PE in 2013. At the time I was on combination birth control, had driven four hours one-way and back (so 8 hours) and taken a trip...

So I am 27 and I had bilateral PE in 2013. At the time I was on combination birt...

bnestes

•8 years ago

3 Replies

What does the Lupus Nurse do at guys and St Thomas ..? I have been given appointment with her instead of specialist..? I don't have Lupus?!

I requested an earlier than June follow up appointment with my specialist to be given an appointment with the Lupus Nurse....I don't have Lupus...i am primary...

I requested an earlier than June follow up appointment with my specialist to be ...

loppylou68

•8 years ago

2 Replies

Great holiday but now so cold

Just had 2 weeks in Madeira and was super.Was afraid to fly with being on warfarin but was. OK.no APS problems and my RA+Fibromyalgia was mild.managed to do...

Just had 2 weeks in Madeira and was super.Was afraid to fly with being on warfar...

Fra22-57

•8 years ago

2 Replies

Herts or Essex Rheumy?

Hi all, just wondering if anyone could recommend a good rheumatologist in the Hertfordshire, Essex or North London areas? I have connective tissue disease and...

Hi all, just wondering if anyone could recommend a good rheumatologist in the He...

mochamum

•8 years ago

3 Replies

Aps and pregnancy

Hey I'm new to this I have Hughes and have suffered 9 miscarriages well here I am again I'm currently 7 wks and have never been so scared I went Dr today and...

Hey I'm new to this I have Hughes and have suffered 9 miscarriages well here I a...

Chellebean

•8 years ago

6 Replies

Still no dx

I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other...

I've been seeing a rheumatologist for about 4 months, after my General Dr. Refer...

mariannagowens

•8 years ago

4 Replies

Lecithin and APLS

Hi, Does anybody know if it's ok (or even beneficial) for a Hughes Syndrome sufferer to take powdered Lecithin/supplements? Lecithin is supposedly an aid to...

Hi, Does anybody know if it's ok (or even beneficial) for a Hughes Syndrome suf...

Clotia

•8 years ago

26 Replies

Amorous fugax

How serious is amourous fugax when caused by sticky blood should I go to A&E if I get it ??

How serious is amourous fugax when caused by sticky blood should I go to A&E if ...

Tim_Thorpe

•8 years ago

5 Replies

Inr crashed why ?

My target Inr is 4 Was 4.7 but crashed down to 2.7 in 11 days why does this happen ?? Lucky my blood was 4.7 at the start if it had been on the lower edge of...

My target Inr is 4 Was 4.7 but crashed down to 2.7 in 11 days why does this hap...

Tim_Thorpe

•8 years ago

8 Replies

Just had a fall

Just some advice please.with having APS and other auto immune diseases am concerned. This morning I had a fall and hurt my left arm which is very painful thou...

Just some advice please.with having APS and other auto immune diseases am concer...

Fra22-57

•8 years ago

25 Replies

Proffessor Khamashta

Does anyone know if he will be returning?

donnabrain

•8 years ago

3 Replies

Diagnosed 2 years ago after 3 miscarriages, pregnant again and terrified!

I'm panicking at what should be a happy time as I called my doctor recently to get shots for going long haul and he didn't know what I was talking about- I...

I'm panicking at what should be a happy time as I called my doctor recently to g...

Avydoo

•8 years ago

11 Replies

Specialist appointment achieved!

So pleased to at last of received or date for seeing one of your suggested specialists. Now worried about asking the right questions as there are so many. Any...

So pleased to at last of received or date for seeing one of your suggested speci...

Vespa1

•8 years ago

4 Replies

Any advice would be much appreciated!

Hi all, this is my first post ever to any type of forum. I was diagnosed with APS in July 2015, sort of by accident. My primary physician was VERY thorough...

Hi all, this is my first post ever to any type of forum. I was diagnosed with A...

JessNY

•8 years ago

25 Replies

Neurologist Vs. Hematologist

Any help I can get with this would be great! I have heard a lot on here about finding an APS Specialist but what kind of Dr would be an APS Specialist?! I have...

Any help I can get with this would be great! I have heard a lot on here about fi...

candicer

•8 years ago

12 Replies

Is it possible to only test positive for APS in pregnancy?

I tested positive for APS on the first blood test, this was whilst I was pregnant. The pregnancy resulted in another miscarriage and I then had a second blood...

I tested positive for APS on the first blood test, this was whilst I was pregnan...

Esmes2013

•8 years ago

6 Replies

APS on Plavix...should I switch to Coumdin

Good Day Everyone. I have been diagnosed with APS for a while now (cannot remember exact date). I have had many issues. I have had several strokes and...

Good Day Everyone. I have been diagnosed with APS for a while now (cannot remem...

LauraKlumpp

•8 years ago

11 Replies

hemorrhoid surgery

has anyone had this surgery since having APS? how risky is it and how long to heal, I also have lupus and am on methotrexate

has anyone had this surgery since having APS? how risky is it and how long to he...

edgewater100

•8 years ago

6 Replies

Aps

I just wanted to know if you all are on blood thinner? I have aps and had a pulmonary embolism, I'm not on medication.

I just wanted to know if you all are on blood thinner? I have aps and had a pulm...

murphylotte

•8 years ago

15 Replies

Which specialist should we insist on seeing?

We are going to the doctors to insist we see a specialist with regards to my husbands APS. Evidently he saw one in 2007! If we did we were certainly not made...

We are going to the doctors to insist we see a specialist with regards to my hus...

Vespa1

•8 years ago

11 Replies

APS groups

Hi, does anyone know of a support group in the midlands? This would be so wonderful Yours hopefully kath

Hi, does anyone know of a support group in the midlands? This would be so wonder...

Vespa1

•8 years ago

2 Replies

Terry1968

How to treat stomach cramps from Hughes syndrome x

terry1968

•8 years ago

3 Replies

Numbness/Tingling and involuntary spasms?

Hi, I was diagnosed with APS nearly four years ago following seven consecutive early miscarriages. I've since gone on to have two children (taking both aspirin...

Hi, I was diagnosed with APS nearly four years ago following seven consecutive e...

ecwyllie

•9 years ago

2 Replies

Just seen Professor Cruz with a result I think ?

Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I no longer have APS. Prof D'Cruz looked at all my blood work and history and...

Hi there have just seen prof D'Cruz after last month being sold by Dr Sangle I n...

jessie68

•9 years ago

10 Replies

Rheumatologist in Kent, UK

Hi I have just looked on the the HS website and see that there are several rheumatologists listed for the Kent area - I am going to see my GP tomorrow to asked...

Hi I have just looked on the the HS website and see that there are several rheum...

NicBay

•9 years ago

7 Replies

So many questions

I am in New Jersey USA and I feel like there are no experts here in this confusing aps syndrome. I have a hemotologist and a rheumatologist who I feel are...

I am in New Jersey USA and I feel like there are no experts here in this confusi...

Apriljm76

•9 years ago

19 Replies

Flu Shot?

If you have Hughes Syndrom/APS Should you get the flu shot or will this possibly mess with your already out of wack immune system?

If you have Hughes Syndrom/APS Should you get the flu shot or will this possibly...

LauraKlumpp

•9 years ago

23 Replies

Write a post or ask a question

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

APS Specialists posts

Thrombocytopenia?

INR very different at poc vs venous

Recently diagnosed with Primary APS

PE and APS on Warfarin

What does the Lupus Nurse do at guys and St Thomas ..? I have been given appointment with her instead of specialist..? I don't have Lupus?!

Great holiday but now so cold

Herts or Essex Rheumy?

Aps and pregnancy

Still no dx

Lecithin and APLS

Amorous fugax

Inr crashed why ?

Just had a fall

Proffessor Khamashta

Diagnosed 2 years ago after 3 miscarriages, pregnant again and terrified!

Specialist appointment achieved!

Any advice would be much appreciated!

Neurologist Vs. Hematologist

Is it possible to only test positive for APS in pregnancy?

APS on Plavix...should I switch to Coumdin

hemorrhoid surgery

Aps

Which specialist should we insist on seeing?

APS groups

Terry1968

Numbness/Tingling and involuntary spasms?

Just seen Professor Cruz with a result I think ?

Rheumatologist in Kent, UK

So many questions

Flu Shot?

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