Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for October 2017

Triple Positive/Warfarin

Hi, I am confused and wanted to see if anyone who is triple positive without a clot is on blood thinners. My short story is I had double vision/VI Nerve Palsy...

Hi, I am confused and wanted to see if anyone who is triple positive without a c...

rottiro

•7 years ago

58 Replies

Different INR readings from Finger pick and lab.

I had a pin sized cut that I must have washed the scab of when washed my hands it bleed for a good 25 minuets, it is litterally smaller then the tip of a pen I...

I had a pin sized cut that I must have washed the scab of when washed my hands i...

SoulRebel-APS

•7 years ago

30 Replies

MAY-THURNER

Heard this term looked into it may....may help someone out there , had never heard of it..

Heard this term looked into it may....may help someone out there , had never hea...

ronnt

•7 years ago

4 Replies

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“Vibrating” feeling in my head?

For the last two months or so I’ve had this strange vibrating feeling, as if my brain is bouncing around. It comes multiple times a day, and it doesn’t get...

For the last two months or so I’ve had this strange vibrating feeling, as if my ...

Brittyann

•7 years ago

6 Replies

Warin and over counter flu meds

My mom has the flu while on blood thinner. Are she able to use the over counter flue Ned with her medical history

My mom has the flu while on blood thinner. Are she able to use the over counter ...

HagenD320

•7 years ago

5 Replies

Few more trials

This might be of interest to those a bit cautious of trialling NOAC's. The full link is here http://www.bmj.com/content/359/bmj.j4323 but I'm nt sure if...

This might be of interest to those a bit cautious of trialling NOAC's. The full...

Ozchick

•7 years ago

6 Replies

APS flare ups

Never really knew about these - I get really bad headaches which can last 3 days. I am just coming out of a flare up - this one was quite bad in that the pain...

Never really knew about these - I get really bad headaches which can last 3 days...

Caroline0528

•7 years ago

17 Replies

Can APS come and go, like having lupus flair ups?

Between 2005 and 2008 I had multiple PEs, multiple DVTs and multiple TIAs, in fact I've just discovered that the TIAs I had in 2007 were more than just TIAs as...

Between 2005 and 2008 I had multiple PEs, multiple DVTs and multiple TIAs, in fa...

leakeadea

•7 years ago

11 Replies

Information on BHRT pellets

I am curious who is on, or has been on in the past, the hormone replacement therapy in pellet form. Living in the United States as I do, it is getting almost...

I am curious who is on, or has been on in the past, the hormone replacement ther...

rettalee55

•7 years ago

3 Replies

Was made aware of this article recently..might be of interest?

https://www.medicalnewstoday.com/articles/181700.php

lloydyuk

•7 years ago

15 Replies

Vit D

Hi I have been told by GP my vitiam D is very low even after taking daily supplements for over a year and a boost for 7 weeks first test was 33 and now after...

Hi I have been told by GP my vitiam D is very low even after taking daily supple...

rlupus

•7 years ago

16 Replies

Crazy turn of events...

Hello everyone! I had multiple strokes in Feb/March 2017... After lots of labs and tests and in and out of the hospital due to cva's. After finding out about...

Hello everyone! I had multiple strokes in Feb/March 2017... After lots of labs a...

Rylan21

•7 years ago

26 Replies

What causes severe stomach pain? Upper right quadrant under right breast?

Hi I am APS anti cardolipin positive on low dose aspirin. I have terrible stomach issues and don't know the root cause. In May had a large duodenal ulcer. It...

Hi I am APS anti cardolipin positive on low dose aspirin. I have terrible stomac...

Nanny23

•7 years ago

20 Replies

Anyone only have issues on 1 side of their body?

A little background.. I tested positive for the antibodies after being tested for miscarriages. With the help of blood thinners I was blessed with 2 boys but...

A little background.. I tested positive for the antibodies after being tested fo...

StickyStacy

•7 years ago

28 Replies

Bleeding of the brain

Thanks for all your replied. Actually Im still confined at the hospital. Since I still have bleed in the brain my neurologist and hematologist put me 4 bags of...

Thanks for all your replied. Actually Im still confined at the hospital. Since I...

mails678

•7 years ago

5 Replies

Gabapentin & Pregabilin

At a recent appointment with The Pain Clinic consultant in UCL (London Hospital) it was suggested I tried these drugs (not together!) When it is mentioned on...

At a recent appointment with The Pain Clinic consultant in UCL (London Hospital)...

WendyWoo50

•7 years ago

13 Replies

Bleeding of brain

I have severe pain in my head for a week and Ctscan shows i have bleed. Can I still continue to take my Coumadin? My inr now is 2.70 after adjusted from Inr 6....

I have severe pain in my head for a week and Ctscan shows i have bleed. Can I st...

mails678

•7 years ago

8 Replies

Psoriatic Arthropathy

This is one of my diseases, so I found this interesting....

MaryF

Administrator•7 years ago

4 Replies

An article written for a local organisation encouraging people to be more active including those with disabilities.

http://www.wesport.org.uk/how-sport-saved-my-life/

lloydyuk

•7 years ago

20 Replies

Vitamin D and antiphospholipid syndrome: A retrospective cohort study and meta-analysis

I just read the article titled above. Could it really be this simple? As a child I was severely anemic. The Gamma Globulin shots were supposed to build up...

I just read the article titled above. Could it really be this simple? As a chi...

Patatie50

•7 years ago

4 Replies

Help!

Hey guys, So I got diagnosed with APS and UTCD at the beginning of August and was immediately put on a regimen of Plaquenil and Aspirin. Since then I have...

Hey guys, So I got diagnosed with APS and UTCD at the beginning of August and wa...

shannonburne97

•7 years ago

12 Replies

No Answers; clock running out before I see latest doctor regarding prolonged, successful 18-year Coumadin use for clot to brain

I've written before, trying to find answers. I've had years of strange symptoms following a bout with Myocarditis and CHF. After successful treatment and a...

I've written before, trying to find answers. I've had years of strange symptoms ...

Patatie50

•7 years ago

14 Replies

APs and May Thurner Syndrome

I have APS and was recently diagnosed with May Thurner Syndrome (MTS). Anyone else? Am also looking for research that may show a link between the two.

I have APS and was recently diagnosed with May Thurner Syndrome (MTS). Anyone e...

Grammy_B

•7 years ago

1 Reply

Hydroxychloroquine

New report regarding hydroxychloroquine. I have been on this for over 10 years, originally prescribed for sjrogrens but now learning also good for APS & Lupus...

New report regarding hydroxychloroquine. I have been on this for over 10 years, ...

HollyHeski

Administrator•7 years ago

11 Replies

Due to have operation but really scared

Hello I was diagnosed more than one year ago with dvt but I'm due to have operation today my dvt doctor said that it's alright to go for it but I'm really...

Hello I was diagnosed more than one year ago with dvt but I'm due to have operat...

julenka1988

•7 years ago

8 Replies

APS study with vitimin D

Report regarding link between APS & VIT D http://www.semarthritisrheumatism.com/article/S0049-0172(17)30631-5/fulltext?rss=yes&mobileUi=0

Report regarding link between APS & VIT D http://www.semarthritisrheumatism.com/...

HollyHeski

Administrator•7 years ago

11 Replies

Why !

My INR has been stable at 3.8/3.9 for a month spot on target. I've felt so much better too. It's been a relief not to be bogged down by terrible headaches,...

My INR has been stable at 3.8/3.9 for a month spot on target. I've felt so much ...

WendyWoo50

•7 years ago

23 Replies

Did anyone see the Good DR.

Did anyone see The good DR. Last night , this is the first time i have seen APS mentioned on a main character in a series . Well she was the wass one of...

Did anyone see The good DR. Last night , this is the first time i have seen AP...

jetjetjet

•7 years ago

28 Replies

From Two years ago, but still a great piece from Dr Chris Steele on ITV This Morning

A feature on Miscarriage: http://www.itv.com/thismorning/health/karen-atherton-dr-chris-saved-my-life-and-created-another Mary F

A feature on Miscarriage: http://www.itv.com/thismorning/health/karen-atherton-...

MaryF

Administrator•7 years ago

1 Reply

Any advice on living with post DVT Varicose Veins?

Following further DVTs in my left leg in 2012, I was eventually diagnosed with APS and have been on Warfarin ever since with an INR target of 3.5 (range 3.0 to...

Following further DVTs in my left leg in 2012, I was eventually diagnosed with A...

JPMcGee75

•7 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2017

Triple Positive/Warfarin

Different INR readings from Finger pick and lab.

MAY-THURNER

“Vibrating” feeling in my head?

Warin and over counter flu meds

Few more trials

APS flare ups

Can APS come and go, like having lupus flair ups?

Information on BHRT pellets

Was made aware of this article recently..might be of interest?

Vit D

Crazy turn of events...

What causes severe stomach pain? Upper right quadrant under right breast?

Anyone only have issues on 1 side of their body?

Bleeding of the brain

Gabapentin & Pregabilin

Bleeding of brain

Psoriatic Arthropathy

An article written for a local organisation encouraging people to be more active including those with disabilities.

Vitamin D and antiphospholipid syndrome: A retrospective cohort study and meta-analysis

Help!

No Answers; clock running out before I see latest doctor regarding prolonged, successful 18-year Coumadin use for clot to brain

APs and May Thurner Syndrome

Hydroxychloroquine

Due to have operation but really scared

APS study with vitimin D

Why !

Did anyone see the Good DR.

From Two years ago, but still a great piece from Dr Chris Steele on ITV This Morning

Any advice on living with post DVT Varicose Veins?

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