Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for June 2013

Exhaustion

Hey Guys, long time no see. I have been working hard, and studying hard. I bearly have the time to write on my blog that despite the lack of feeding for the...

Hey Guys, long time no see. I have been working hard, and studying hard. I bear...

BrazilianBade

•11 years ago

7 Replies

If you are on warfarin what can you take for hayfever

driver56

•11 years ago

4 Replies

Anyone from New Zealand..?

I am interested to know if there are any members from NZ..? I am in Central Otago

I am interested to know if there are any members from NZ..? I am in Central O...

addisonman

•11 years ago

14 Replies

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Should I give up? or keep on dreaming ?

I was diagnosed last 5yrs. Ago with this syndrome,.and I had 3miscarriages already the last pregnancy I have is very painful for me because i had twins an...

I was diagnosed last 5yrs. Ago with this syndrome,.and I had 3miscarriages alrea...

LgrPiz

•11 years ago

20 Replies

Doctor is Useless!!

Hey everyone! So i am 22 years old. My mum and my aunt both have hughes syndrome. I have had all 3 blood tests done all three came back slightly abnormal...

Hey everyone! So i am 22 years old. My mum and my aunt both have hughes syndr...

Jaide_selby

•11 years ago

4 Replies

Pregnancy

Hi there as many of you know I suffered my blood clots after pregnancy and then diognosed with Hughes. I have seen my rheumatologist and he said that he...

Hi there as many of you know I suffered my blood clots after pregnancy and then ...

Charli84

•11 years ago

6 Replies

Only for ladies.....je je about menstruation

Good morning to everyone! I would like to know if it´s due to anticoagulation or Endo or what... Do you have strong bleeding when period?? My periods are...

Good morning to everyone! I would like to know if it´s due to anticoagulation o...

swirl

•11 years ago

9 Replies

I may need to have some injections in my back because of a numb thigh. Does anyone know if its ok to have injections with APS?

Willa

•11 years ago

6 Replies

Appt Dr. D,Cruz

Am so pleased,got phonecall from appointments this morning and I am to see Dr. D,Cruz on 25th July. This is much sooner than I expected and I also was worried...

Am so pleased,got phonecall from appointments this morning and I am to see Dr. D...

donnabrain

•11 years ago

6 Replies

How do i summarize symptoms.

Someone (I think it was Mary) suggested writing symptoms in bullet points. Although I'm always writing things like this at work (teacher), every time I try and...

Someone (I think it was Mary) suggested writing symptoms in bullet points. Altho...

Hidden

•11 years ago

3 Replies

I'm back all ( in body anyways }

I have a temporary place to live now -- i have my dog Casey - i was out of my home with Mary on the 17 th of this month -- it was hard -everything was a...

I have a temporary place to live now -- i have my dog Casey - i was out of my ho...

jetjetjet

•11 years ago

17 Replies

Flying with Fragmin

I'm due to fly to Crete which is a 4 hour flight in a couple of weeks. I currently inject fragmin (dalteparin) daily and will need to take this to Crete with...

I'm due to fly to Crete which is a 4 hour flight in a couple of weeks. I current...

crichardson

•11 years ago

9 Replies

Dr D' cruz

I'm due my appointment in London on Monday, which is very long awated. I'm very nervous but also excited. I'm seeing dr D'cruz. Has anybody else seen this...

I'm due my appointment in London on Monday, which is very long awated. I'm very ...

Charli84

•11 years ago

10 Replies

Help butchered by local dentist

Having been discharged from dental care at Guys Hosp I had to go to local emergency dentist yesterday after 5 days of agony. She took x ray showing massive...

Having been discharged from dental care at Guys Hosp I had to go to local emerge...

Welshexile

•11 years ago

11 Replies

My 6 yr old daughter tested

Just to be proactive my children's pediatrician agreed to test the kids. So we have tested my 14 yr old son and my 6 yr old daughter. My son's tests came back...

Just to be proactive my children's pediatrician agreed to test the kids. So we h...

APSdsntHaveMe

•11 years ago

15 Replies

C.O.P.D

Hi guys I was DX with COPD 4 mths ago it's to long to spell out it's a severe lung disease I am stage 2 and it goes up to stage 4 I was wondering how many...

Hi guys I was DX with COPD 4 mths ago it's to long to spell out it's a severe lu...

taffydaffy

•11 years ago

2 Replies

To all pregnant ladies....

I just wondered how you're all getting on? I'm currently in my 19th week and so far so good. My heparin levels have remained 'perfect' since injecting, I...

I just wondered how you're all getting on? I'm currently in my 19th week and...

Maybells

•11 years ago

12 Replies

white bone patches: update

Thanks to all who replied. I was told today they are osteoarthritis - next aps check up 4 months. Lynn.

Thanks to all who replied. I was told today they are osteoarthritis - next aps c...

stillwaiting

•11 years ago

3 Replies

How many have tested negative on Lupus Anticoagulant but positive on aCL and Anti-B2GP1?

Have seen my new GP this morning, what a lovely lady! She confirmed that my last GP had done the Lupus anticoagulant test which was normal but none of the...

Have seen my new GP this morning, what a lovely lady! She confirmed that my last...

PepperT

•11 years ago

6 Replies

Any men taking plaquenil?

Inevitably I have seen many reviews of ladies taking plaquenil with some good and some not so good results.However are there any men (or does anyone know any...

Inevitably I have seen many reviews of ladies taking plaquenil with some good an...

StevePT

•11 years ago

9 Replies

Yorkshire meetups.

Hi, is anyone still interested in meeting up in Leeds sometime in July? Have recently been meeting with 'chapman' in Scarborough + Bridlington, thought it...

Hi, is anyone still interested in meeting up in Leeds sometime in July? Have rec...

Elfie1

•11 years ago

13 Replies

Private insurance companies

Anyone else noticed that it is getting harder and harder to get them to pay up. I have just spent 20 mins arguing with mine over trying to authorise a visit...

Anyone else noticed that it is getting harder and harder to get them to pay up. ...

panda60

•11 years ago

4 Replies

T.A.C.E procedure, but have APS

Hello, well I underwent 1 of 6 TACE procedures 4 weeks ago and prior to this had an echogram to allow me to undergo the procedure, however the last few minutes...

Hello, well I underwent 1 of 6 TACE procedures 4 weeks ago and prior to this had...

daisy11

•11 years ago

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white bone patches

x rays on my feet have shown white patches on the bones. My feet are very painful but then to be honest I am in pain all over. Has anyone experienced this?...

x rays on my feet have shown white patches on the bones. My feet are very painfu...

stillwaiting

•11 years ago

5 Replies

hello

any1 out there had a non surgical sterilisation suitable 4 those with aps..... any advice most welcome as I on waiting list to see a gynaecologist..???

any1 out there had a non surgical sterilisation suitable 4 those with aps..... a...

rach1081985

•11 years ago

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Hope? Article points to possible Vaccine treatments

http://www.celiac.com/articles/23303/1/Is-Epitope-Specific-Immunotherapy-for-Celiac-Disease-a-Foundation-for-Future-Autoimmune-Vaccines/Page1.html I find...

http://www.celiac.com/articles/23303/1/Is-Epitope-Specific-Immunotherapy-for-Cel...

GinaD

•11 years ago

1 Reply

Summer time...

I understand that summer has arrived in its usual style in the UK with cloudy days and rain. :( So I've posted a photo of one of peacocks to bring a smile to...

I understand that summer has arrived in its usual style in the UK with cloudy da...

InSpain

•11 years ago

3 Replies

Has anyone had TIAs but nothing showed on the MRI scan?

I had 2 TIAs and a scan which showed nothing then I had another I just collapse in a heap.My GP said you should have gone to A and E I have an appointment to...

I had 2 TIAs and a scan which showed nothing then I had another I just collapse...

42Lilac

•11 years ago

76 Replies

split with partner , he said I was a loser with this illness , so sad people don't understand how hard it is to live with this condition .

dutchess

•11 years ago

10 Replies

Feeling rough

Feeling sore and exhausted after my hysteroscopy on Tuesday. I always find that any kind of test/ procedure knocks me out but I guess that's all part of this...

Feeling sore and exhausted after my hysteroscopy on Tuesday. I always find that...

panda60

•11 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2013

Exhaustion

If you are on warfarin what can you take for hayfever

Anyone from New Zealand..?

Should I give up? or keep on dreaming ?

Doctor is Useless!!

Pregnancy

Only for ladies.....je je about menstruation

I may need to have some injections in my back because of a numb thigh. Does anyone know if its ok to have injections with APS?

Appt Dr. D,Cruz

How do i summarize symptoms.

I'm back all ( in body anyways }

Flying with Fragmin

Dr D' cruz

Help butchered by local dentist

My 6 yr old daughter tested

C.O.P.D

To all pregnant ladies....

white bone patches: update

How many have tested negative on Lupus Anticoagulant but positive on aCL and Anti-B2GP1?

Any men taking plaquenil?

Yorkshire meetups.

Private insurance companies

T.A.C.E procedure, but have APS

white bone patches

hello

Hope? Article points to possible Vaccine treatments

Summer time...

Has anyone had TIAs but nothing showed on the MRI scan?

split with partner , he said I was a loser with this illness , so sad people don't understand how hard it is to live with this condition .

Feeling rough

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