Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for July 2020

New COVID 19 vaccine

When & if the vaccine happens will APS patients be at risk taking it??? That’s what I wanted to ask Prof Hughes but my father in law died & I missed the Q & A....

When & if the vaccine happens will APS patients be at risk taking it??? That’s w...

designer16

•4 years ago

4 Replies

Vitamin D helps us fight Covid-19, major study finds

Israeli population-based study supports research showing that vitamin D supplements could help people avoid serious respiratory effects of Covid-19. By...

Israeli population-based study supports research showing that vitamin D suppleme...

lupus-support1

Administrator•4 years ago

1 Reply

APS snd pregnancy

My daughter Who has tested positive for aps was pregnant On daily heparin injections. But sadly 3 days ago the bsby had no heartbeat and now she has to...

My daughter Who has tested positive for aps was pregnant On daily heparin inj...

teresahunter

•4 years ago

13 Replies

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Antiphosholipid syndrome, lifelong anti coagulation. Now being stopped.

Hi, I wrote here a couple of weeks back, saying Guys Haem team want me off anticoagulants after 12 months prior telling me they will not ever take me off them...

Hi, I wrote here a couple of weeks back, saying Guys Haem team want me off anti...

Ally7

•4 years ago

7 Replies

aps neurologist yorkshire?

Hi can anyone recommend a neurologist in Leeds who understands APS please? I am under a haematologist already and rheumatologist but they want me to se a...

Hi can anyone recommend a neurologist in Leeds who understands APS please? I am...

Ally7

•4 years ago

5 Replies

Trying to get to grips with APS

I’m sorry to be a huge pain but I am on several other HU Forums, not because I do or don’t want to be but because I’ve just learned of yet another diagnosis...

I’m sorry to be a huge pain but I am on several other HU Forums, not because I d...

Splodge60

•4 years ago

48 Replies

INR Result

My INR APS target 3.5 -4.5 Any reasons why it’s been sticking under 4.0 for almost a month now , 3.6 , 3.7 , 3.2 and Today 3.4 . Definitely Not feeling Right...

My INR APS target 3.5 -4.5 Any reasons why it’s been sticking under 4.0 for alm...

Markgammon06

•4 years ago

6 Replies

Aps INR concern

I have just stared anticoagulation i'm on Acenocoumarol. I have taken 4 x 1mg for the last two days. The nurse came this morning to do my INR it was 2.2 which...

I have just stared anticoagulation i'm on Acenocoumarol. I have taken 4 x 1mg fo...

Jillymo

•4 years ago

41 Replies

A question and answer session with Prof Hughes

This will be on the GHIC Facebook page...... MaryF The link is here: https://www.facebook.com/TheGrahamHughesInternationalCharity/

This will be on the GHIC Facebook page...... MaryF The link is here: http...

MaryF

Administrator•4 years ago

19 Replies

YouTube with Prof Graham Hughes and GHIC

https://www.youtube.com/channel/UC2DitzAXygM1We73hLGn6xw MaryF

MaryF

Administrator•4 years ago

6 Replies

Rheumatology update

Just to update in case anyone is interested, following on from previous posts. I had my consultation at London Bridge yesterday with a new rheumatologist as my...

Just to update in case anyone is interested, following on from previous posts. I...

Chris1802p

•4 years ago

14 Replies

Prolonged APTT but negative Lupus anticoagulant

Is it normal for patients with APS, but negative Lupus anticoagulant, to have slightly prolonged APTT 42.2 sec (normal range: 25.9-36.6 sec) with normal INR...

Is it normal for patients with APS, but negative Lupus anticoagulant, to have sl...

Christinoula

•4 years ago

4 Replies

New to this

This is all reasonably new to me. It’s tiredness or lethargy or just downright exhaustion associated with APS?

This is all reasonably new to me. It’s tiredness or lethargy or just downright e...

Bluma

•4 years ago

9 Replies

RE- Stopping warfarin

Just an update on the post from last week . St Thomas's called my daughter yesterday and asked if we could go to the hospital for a face to face appointment...

Just an update on the post from last week . St Thomas's called my daughter yest...

s-mac

•4 years ago

6 Replies

Headache getting worse right side of head aps

Hi everyone I have had a pounding headache right side if head that's getting worse since last week does anyone else have this ? I have had a migraine in...

Hi everyone I have had a pounding headache right side if head that's getting wor...

JohnnySouthside

•4 years ago

3 Replies

Dizziness update

Ref my post yesterday. Here is an update. I talked with my specialist in haematology today, and she agreed to let my try increasing my INR to the range...

Ref my post yesterday. Here is an update. I talked with my specialist in haemato...

Jonr

•4 years ago

17 Replies

Exercise is dangerous!

I usually go for a walk with the dog every day in our lovely 21C midday weather. Feeling a bit tired last Friday so decided to take a shortcut through a...

I usually go for a walk with the dog every day in our lovely 21C midday weather....

Ozchick

•4 years ago

8 Replies

Memory

My memory has got really,really bad , much worse over the last coupe of weeks I am only in my early sixties and getting very jealous of people who are 100 +...

My memory has got really,really bad , much worse over the last coupe of weeks I ...

daisyd

•4 years ago

8 Replies

Dizziness

Hi I have the last weeks struggled with dizziness and today even double vision, lasted 3-4 minutes. I measure my INR myself and stay between 2-3. Anyone else...

Hi I have the last weeks struggled with dizziness and today even double vision,...

Jonr

•4 years ago

22 Replies

Pain from blood test

Hi, I’m what’s known as a hard stick - not much help when you have a blood disorder! About two weeks ago when they were doing a draw, they had to go to the...

Hi, I’m what’s known as a hard stick - not much help when you have a blood disor...

GillyA

•4 years ago

6 Replies

Heat affecting me worse then ever

Dont let this happen to you! Trying to avoid heat exhaustion like i experienced last summer. That was awful. It happened because i was out working in my...

Dont let this happen to you! Trying to avoid heat exhaustion like i experienc...

Wittycjt

•4 years ago

4 Replies

A gentle reminder about politics and religion

Hi, it is not permitted on Health Unlocked, on any forum, including this one, to have posts about religion or politics, probably for a very good reason. We...

Hi, it is not permitted on Health Unlocked, on any forum, including this one, t...

MaryF

Administrator•4 years ago

APS and Lupus SLE D Dimer Test

Hi I have APS and Lupus SLE. I am on warfarin and hydroxychloroquine. I have near enough constant feelings of tingling, numbness and fluid in my legs and I...

Hi I have APS and Lupus SLE. I am on warfarin and hydroxychloroquine. I have n...

Bobbydoodle

•4 years ago

8 Replies

APS Discovered?

What year did APS get named as a syndrome? I had APS in 1968 (could not pass blood test required in NC) to get married. Later in 1970 the Army said I had...

What year did APS get named as a syndrome? I had APS in 1968 (could not pass b...

yodak

•4 years ago

4 Replies

London Lupus Centre help please

Hi can anyone help? Last year I was under Natasha Jordan privately at the London Lupus Centre at London Bridge after 2 positive Lupus Anticoagulant results...

Hi can anyone help? Last year I was under Natasha Jordan privately at the Londo...

Chris1802p

•4 years ago

7 Replies

No Leg now

Hi it’s been a while since I posted! I don’t like to complain... I’m having a rough time! The place where I go to have my legs made has made me 2 bad legs in...

Hi it’s been a while since I posted! I don’t like to complain... I’m having a ro...

Debbweb01

•4 years ago

44 Replies

Just fed up!

Just a general moan as with all the rest of you the fatigue is horrid and as I run my own business Monday to Friday I’m flat out so Saturdays are always a rest...

Just a general moan as with all the rest of you the fatigue is horrid and as I r...

Greenmil3

•4 years ago

12 Replies

Lumps and bumps

Along with the terrible bruising and the lumps from the Lovenox shots I believe my stomach is quite bloated. Does that sound familiar?

Along with the terrible bruising and the lumps from the Lovenox shots I believe ...

Bluma

•4 years ago

19 Replies

Beta2Glycoprotein1 IgM positive for APS - anyone the same?

Hi ! I was recently diagnosed with APS after having a stroke. I tested positive only for Beta2 Glycoprotein1 Ig M. I tested positive for this 7 years ago, so...

Hi ! I was recently diagnosed with APS after having a stroke. I tested positive ...

Uzoigwe

•4 years ago

9 Replies

Clinic letter gives some clarity

Now I’ve got the clinic letter and some details are clarified. I still need to wait for the 3 month test for formal diagnosis, but they have already tested...

Now I’ve got the clinic letter and some details are clarified. I still need to w...

GillyA

•4 years ago

1 Reply

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2020

New COVID 19 vaccine

Vitamin D helps us fight Covid-19, major study finds

APS snd pregnancy

Antiphosholipid syndrome, lifelong anti coagulation. Now being stopped.

aps neurologist yorkshire?

Trying to get to grips with APS

INR Result

Aps INR concern

A question and answer session with Prof Hughes

YouTube with Prof Graham Hughes and GHIC

Rheumatology update

Prolonged APTT but negative Lupus anticoagulant

New to this

RE- Stopping warfarin

Headache getting worse right side of head aps

Dizziness update

Exercise is dangerous!

Memory

Dizziness

Pain from blood test

Heat affecting me worse then ever

A gentle reminder about politics and religion

APS and Lupus SLE D Dimer Test

APS Discovered?

London Lupus Centre help please

No Leg now

Just fed up!

Lumps and bumps

Beta2Glycoprotein1 IgM positive for APS - anyone the same?

Clinic letter gives some clarity

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