Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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leg weakness

Does anyone have leg weakness? Not like completely giving way but making it feel dodgy to stand up and physically exhausted? after just like walking a few...

Does anyone have leg weakness? Not like completely giving way but making it feel...

Greenmil3

•2 months ago

11 Replies

Set of symptoms - who can relate?

Hey everyone, For quite some time now, I've been struggling with a set of weird symptoms, and I'm desperate to find the cause. I recently tested positive for...

Hey everyone, For quite some time now, I've been struggling with a set of weird...

rik_

•3 months ago

24 Replies

APS & Hearing Loss?

Hi all, just wondering if anyone else (or how common it is?) has experienced hearing loss as a result of their APS? I’m also wondering how far this may go....

Hi all, just wondering if anyone else (or how common it is?) has experienced hea...

Tofino5

•2 years ago

8 Replies

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Hot flashes?

Anyone have hot flushing- it is 100 times worse than hot flashes? Does it come with flares?

Anyone have hot flushing- it is 100 times worse than hot flashes? Does it come w...

Nursewendy3761

•8 years ago

31 Replies

G.P today to request testing for Hughes syndrome

Good morning 😊 I'm diagnosed with polycythaemia and fibro myalgia, but the more I read about Hughes the more I feel that this is what I have. I'm going to...

Good morning 😊 I'm diagnosed with polycythaemia and fibro myalgia, but the mo...

daisy82

•8 years ago

7 Replies

Constant loud ringing in ear

My husband has a constant loud ringing in his ear and terrible headaches on the same side. He only has 15% hearing in the same ear. Hearing test performed at...

My husband has a constant loud ringing in his ear and terrible headaches on the ...

Tammysimons

•8 years ago

5 Replies

No iron (ferritin) left in body....is this because of new Warfarin diet....?!

Visited Nephrologist yesterday who has offered me an iron infusion due to ferritin level of 4......anemia !? Is this because I have changed my diet because of...

Visited Nephrologist yesterday who has offered me an iron infusion due to ferrit...

loppylou68

•8 years ago

8 Replies

Tired and joint pain

How long before you start to feel the benefit of hydroxy chloroquine. I've been on 200 for about 8 weeks and don't feel any better at all. I'm also taking...

How long before you start to feel the benefit of hydroxy chloroquine. I've been...

stargazer5761

•8 years ago

6 Replies

Despair and sadness

Dear fellow sufferers, I hope you all are good and well. I was diagnosed with both APS and Lupus almost two years ago, after my first bilateral pulmonaire...

Dear fellow sufferers, I hope you all are good and well. I was diagnosed with b...

DreamerLux

•8 years ago

25 Replies

Worried.......

I also suffer from Hughes syndrome/Aps , my question is I am taking 13mg of Coumadin daily my inr is usually anywhere between 2.5 and 3.0 but I still have...

I also suffer from Hughes syndrome/Aps , my question is I am taking 13mg of Coum...

jeanietrawick

•8 years ago

5 Replies

Vission: Floaters?

Greetings, This will be my first post. I am hoping for some information and help, regarding side effects and vision. I apologize for the long length. My...

Greetings, This will be my first post. I am hoping for some information and hel...

maybe61

•8 years ago

5 Replies

Help!

I cane home from surgery with a catheter fitted. Woke up rosay with bag full of blood. inr is 3.2 -gave been on clexane 100mg alongside warfarin since op Am...

I cane home from surgery with a catheter fitted. Woke up rosay with bag full of ...

Fusch

•8 years ago

10 Replies

Depression

My memorie is getting worse what can i do

Jonn

•8 years ago

14 Replies

CRPS/RSD--Headaches, Ocular migraines, back of head feels squeezed!

A year ago after an ankle injury that would not heal, I was diagnosed with RSD. I have many of the classic symptoms. Constant pain which I can describe as...

A year ago after an ankle injury that would not heal, I was diagnosed with RSD....

racemiami

•8 years ago

19 Replies

Black circles under eyes

Hello everyone. I haven't posted anything lately but I am on every day. Just wondering if anyone else has black circles under your eyes. I am only on a baby...

Hello everyone. I haven't posted anything lately but I am on every day. Just won...

Susanlouise

•8 years ago

7 Replies

Pinball

Hi all! I've been lurking here for a while without posting. I have a question. Does anyone have twitching in both legs that you can actually see (sort of like...

Hi all! I've been lurking here for a while without posting. I have a question. ...

Pinball

•8 years ago

15 Replies

Hi

I was diagnosed with Hughes Syndrome about 18 months ago following tests after a TIA. I am now struggling with other illnesses which I have never had before!...

I was diagnosed with Hughes Syndrome about 18 months ago following tests after a...

M_Hem

•8 years ago

9 Replies

dizziness and light headed

Hi there, Has anyone else experienced dizziness or severe light headedness? I have been experiencing this for about 4 months. No change in my medication in...

Hi there, Has anyone else experienced dizziness or severe light headedness? I h...

JOEW

•8 years ago

15 Replies

Why is my body sore to touch

Ok so it feels like flu but I haven'tg or flu , and my skin is so sore and if I touch anything cold it kills its like a icy pain and its makingm e feel so...

Ok so it feels like flu but I haven'tg or flu , and my skin is so sore and if I ...

kezebabe

•8 years ago

5 Replies

Sjögren's syndrome

What is Sjögren's Syndrome? Is it related to Hughes syndrome? Just found out my sister in law has it.

What is Sjögren's Syndrome? Is it related to Hughes syndrome? Just found out my ...

Nanny23

•8 years ago

20 Replies

Tinnitus

Hello does anyone have any experience of tinnitus, i have been suffering about 2 years now with a swooshing and pulsating noise in my ear. any help or...

Hello does anyone have any experience of tinnitus, i have been suffering about 2...

Jenkine

•8 years ago

16 Replies

So confused and so miserable

Went to Florida to be snowbirds for the winter months I have MS, Lupus,Hughes and a few more. My 2nd hospitalization in less than one month. Was rushed into...

Went to Florida to be snowbirds for the winter months I have MS, Lupus,Hughes an...

dar58

•8 years ago

30 Replies

Coughing Up Blood

I was wondering if any one has ever coughed up blood after excertion? I have had this problem and many tests with no answers. Reply if possable. Thanks

I was wondering if any one has ever coughed up blood after excertion? I have had...

Michelle_Tower

•8 years ago

11 Replies

Fearing exercise

I know this is my own fear, but I don't exercise for fear of causing a clot to move and cause damage if ingot my heart rate up too much. My form of APS is only...

I know this is my own fear, but I don't exercise for fear of causing a clot to m...

mylafont

•8 years ago

9 Replies

Stiff eye

Hello - from time to time over the last few weeks I have had an odd sensation in right eye - as though the muscles around my my eye socket and top of cheek...

Hello - from time to time over the last few weeks I have had an odd sensation in...

NicBay

•8 years ago

8 Replies

Joint pain

Hi all. Despite now being settled on warfarin inr 3-4 and hydrocychloroquine, I have developed some new symptoms. Memory fog with my inr at 3.6, pain back of...

Hi all. Despite now being settled on warfarin inr 3-4 and hydrocychloroquine, I ...

Fusch

•8 years ago

19 Replies

APS and Morphea

Around 25 years ago I was diagnosed with the skin condition Morphea for which I received variou courses of treatment,whilst I still have the characteristic...

Around 25 years ago I was diagnosed with the skin condition Morphea for which I ...

NicBay

•8 years ago

3 Replies

APS and alcohol

Hi does anyone with APS find that the effects of alcohol are exaggerated. I have been recently diagnosed and have found periodically my body will not tolerate...

Hi does anyone with APS find that the effects of alcohol are exaggerated. I hav...

NicBay

•8 years ago

16 Replies

Traveling pain to my Joints and my calf muscles

Greetings, I am a 39 year old male from the Bronx, New York. I have 3 older siblings, and tons of Nieces and Nephews as well as Great Nieces and Nephews. My...

Greetings, I am a 39 year old male from the Bronx, New York. I have 3 older sibl...

MrCally

•9 years ago

4 Replies

Seizures

Does anyone on here suffer seizures? I have APS, Lupus and two aneurysms in the brain (small at last MRA). Most APS problems have been cerebral (silent stroke...

Does anyone on here suffer seizures? I have APS, Lupus and two aneurysms in the ...

minnime63

•9 years ago

13 Replies

Write a post or ask a question

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

Symptoms posts

leg weakness

Set of symptoms - who can relate?

APS & Hearing Loss?

Hot flashes?

G.P today to request testing for Hughes syndrome

Constant loud ringing in ear

No iron (ferritin) left in body....is this because of new Warfarin diet....?!

Tired and joint pain

Despair and sadness

Worried.......

Vission: Floaters?

Help!

Depression

CRPS/RSD--Headaches, Ocular migraines, back of head feels squeezed!

Black circles under eyes

Pinball

Hi

dizziness and light headed

Why is my body sore to touch

Sjögren's syndrome

Tinnitus

So confused and so miserable

Coughing Up Blood

Fearing exercise

Stiff eye

Joint pain

APS and Morphea

APS and alcohol

Traveling pain to my Joints and my calf muscles

Seizures

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