Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for August 2021

Vaccine on triple positive with neurological

Hy all 🙂 hope youre well. I have triple positive primary aps and ive had ischemias, tia’s, loss of balance and delirium episodes. I take warfarin (inr 2-3) &...

Hy all 🙂 hope youre well. I have triple positive primary aps and ive had ischem...

•3 years ago

Newly lupus anticoagulant positive and feeling confused

Hi all, I have just found this site and would love if anyone could help me understand the meaning of my test results. I know your not doctors but just general...

Hi all, I have just found this site and would love if anyone could help me under...

•3 years ago

Help!

Hi I have had a diagnosis of APS for over 10 years. Can anyone explain why I recently tested negative for APL antibodies but positive for IGM -121? I don’t...

Hi I have had a diagnosis of APS for over 10 years. Can anyone explain why I re...

•3 years ago

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New guy.

Male 49 Uk. Recently diagnosed with APS

Male 49 Uk. Recently diagnosed with APS

•3 years ago

Pulmonary embolism Treatment

Hi I’ve been diagnosed with APS as a result of having clots in the lungs (Pulmonary embolism). Current treatment is Apixaban (Eliquis) 5 mg tablet morning and...

Hi I’ve been diagnosed with APS as a result of having clots in the lungs (Pulmon...

•3 years ago

Sydenham's Chorea

has anyone dealt with Sydenham's Chorea?

has anyone dealt with Sydenham's Chorea?

•3 years ago

Two doses of enoxaparin inj a day for APS stroke survivors?

I ve had a couple of dibilatating strokes but w alot of PT(physio) i am very close to 98%. My question is i am on enoxaparin 2.2 mg/kg every twelve hours is...

I ve had a couple of dibilatating strokes but w alot of PT(physio) i am very clo...

•3 years ago

Calcuim

Hello after few night’s discomfort and not being able to sleep with a lump on left testicle got appointment with doctor he took a look and I was put straight...

Hello after few night’s discomfort and not being able to sleep with a lump on l...

•3 years ago

Spoke to soon

Back in hospital with internal bleeding from where I had the op . God it’s painful. Has anyone else had this problem x

Back in hospital with internal bleeding from where I had the op . God it’s painf...

•3 years ago

Tingly fingers

Hi not sure how to really describe this but basically recently I’ve been getting tingly thumbs and fingers on both hands not pins and needles but it just last...

Hi not sure how to really describe this but basically recently I’ve been getting...

•3 years ago

Got my op done

Finally after 8 months I got my operation done yesterday 🎉🎉I don’t know what all the fuss was . Injections are going fine , back on warfarin today and...

Finally after 8 months I got my operation done yesterday 🎉🎉I don’t know what a...

•3 years ago

The APS research lab at the University of Michigan

I highly recommend signing up for the emails from the Jason Knight Lab at the University of Michigan. "Join Our Email List: If you are interested in receiving...

I highly recommend signing up for the emails from the Jason Knight Lab at the U...

•3 years ago

Knee placement

I have at last had an X-ray on my Rt knee shows severe arthritis with lack of joint space, I am seeing a private physio at the mo for my back. She has said I...

I have at last had an X-ray on my Rt knee shows severe arthritis with lack of jo...

•3 years ago

Clexane

This morning I did something I haven't done in the 5 years I've been on clexane, I forgot my morning dose. It was a bit of a fraught morning and maybe thats...

This morning I did something I haven't done in the 5 years I've been on clexane,...

•3 years ago

Pins and needles

Monday morning tingling in limbs which isn't to out of the ordinary because the start of every morning is rough for the first 3 hours and then I know...

Monday morning tingling in limbs which isn't to out of the ordinary because ...

•3 years ago

Anyone with a similar experience?

Hello! I hope you are all doing great! A year ago I had optic neuritis without any previous diagnosis or symptoms. I was hospitalized and treated with complete...

Hello! I hope you are all doing great! A year ago I had optic neuritis without a...

•3 years ago